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971 total results
Discussions (42)
Questions on IVIg treatment for what I have: Axonal sensory-motor
#34;axonal sensory-motor peripheral neuropathy ... Basically, it's no longer just small ... fibers that are effected. ... it does seem this treatment is more helpful ... for autoimmune neuropathy.
Support Group: Neuropathy
Last active: Sep 11, 2023
Post viral syndrome peripheral nerve hyperexcitability
-year-old navigating recovery from what ... ’s been described as post-viral small ... neuropathy or motor neuron disease ... background and profession --- What ... ’s Helping Me: Gabapentin (600 mg
Support Group: Neuropathy
Last active: Apr 12 6:07pm
Have severe neuropathy don’t know the cause or what to do
Have severe neuropathy don’t know the ... cause or what to do ... I’ve been dealing with neuropathy for ... I’ve been diagnosed with small fiber ... don’t know where or who to go for help
Support Group: Neuropathy
Last active: May 3, 2022
SFN, CRPS, POTS, CMT?
Then in 2016 I developed small fiber ... dropped the cmt diagnosis and said small ... fiber neuropathy and no muscle involvement ... I take lyrica, it helps when I'm ... Does any of what I'm saying sound
Support Group: Neuropathy
Last active: Jun 14 2:21pm
I feel like Physical Therapy is making small fiber neuropathy worse
feel like Physical Therapy is making small ... fiber neuropathy worse ... been given stretching exercises to help ... feel like I just have to listen to what
Support Group: Neuropathy
Last active: Sep 29, 2022
Be aware
leaving this message but if I can help ... (also small fiber neuropathy). ... have had two bunch biopsies showing small ... fiber neuropathy. ... Here is what I am trying to get across
Support Group: Neuropathy
Last active: Jul 15, 2024
Autonomic and Peripherial neuropathy
test. the diagnosis was "painful small ... fiber neuropathy". ... was hoping to get some feedback on what ... might be helping. ... I think that has helped slow things
Support Group: Neuropathy
Last active: Sep 30, 2021
Tegretol for Length-Dependent Small Fiber Neuropathy
Tegretol for Length-Dependent Small ... Fiber Neuropathy ... Gabapentin, and finally Lyrica for what ... So this might be helpful to anyone who ... to try it, and hopefully this will help
Support Group: Neuropathy
Last active: Jan 13, 2023
20 plus yrs parathyroidectomy for mediastinal adenoma, elevated PTH
I have symptoms of peripheral neuropathy ... which is normal, but does not negate small ... fiber neuropathy. ... What gets my mind wandering is some ... Fast forward I can't help but wonder
Last active: Jan 30, 2024
Looking for answers. No diagnosis yet. What next?
What next? ... (Yes that is what he said) Needless ... She has been ruled out small fiber and ... large fiber neuropathy. ... doses of Lyrica and has tried Xanax to help
Support Group: Neuropathy
Last active: Mar 26, 2022
Neuropathy caused by ilioinguinal nerve entrapment
, Small fiber Neuropathy and Ilioinguinal ... stimulator installed, with time It helped ... numbness down my left leg, (I think the small ... Fiber Neuropathy diagnosis of 2012 ... pulsed radio frequency (PRFL) ablation, what
Support Group: Neuropathy
Last active: Oct 27, 2023
Could AFOs help with balance?? They are helping me!
have numbness and tingling from my neuropathy ... ... all similar and made of carbon fiber ... They come in small, medium, large sizes ... are experiencing similar issues from neuropathy ... #39;ve attached a photo to show you what
Support Group: Neuropathy
Last active: Dec 11, 2024
Neurology/ diet/ IVIG
I want to share what I learned today ... to help others. ... His wife had what I had as far as neuropathy ... I did it’s part of small fiber neuropathy ... York they use them in landfills to help
Support Group: Neuropathy
Last active: Mar 8, 2024
Dull Burning Ear Pain in One Ear
with an ENT, who finished up doing what ... unnecessary balloon dilation procedure for what ... neurologist initial diagnosis was Small ... Fiber Neuropathy caused by an unknown ... was prescribed for a 12-week period helped
Last active: Feb 3 8:36am
Have you tested positive for synucleinopathy?
positive for synucleinopathy and with small ... fiber neuropathy? ... So this is what he said that they said ... fiber neuropathy diagnosis. ... What a nightmare of a life.
Support Group: Parkinson's Disease
Last active: May 13 7:12am
SFN- 80% loss of sensation, no pain.
Hello- In 2006, I was diagnosed with small ... nerve fiber neuropathy- idiopathic. ... exercise 5 days a week to see if it helps ... wouldn’t feel anxious and that would help ... I honestly don’t know what to do but
Support Group: Neuropathy
Last active: Oct 24, 2022
Neuropathy: Numbness only, no pain
was first diagnosed with idiopathic small ... fiber peripheral neuropathy and numbness ... mentioned being diagnosed with large fiber ... fiber PN. ... If yes, would you kindly tell me what
Support Group: Neuropathy
Last active: Jun 12 10:43am
Metanx, Repatha, Statins and making sure doctors keep check...
notice any change in my idiopathic small ... fiber neuropathy in my feet. ... It is a supplement designed to help ... . prescribed by my cardiologist to help ... But what I am realizing is how much
Support Group: Neuropathy
Last active: Dec 27, 2024
Autoimmune diagnosing problem
have come back clear except a few small ... I came back positive for small fiber ... neuropathy, I failed all six stages ... so unstable I can't walk with out help ... I don't know how I'm supposed to help
Support Group: Autoimmune Diseases
Last active: Jan 29, 2022
Small Nerve Fiber Neuropathy (Idiopathic) EYE ISSUES
Small Nerve Fiber Neuropathy (Idiopathic ... I told him is related to my small nerve ... fiber. ... I know what a syrinx is and what it ... If he tells me he can't help me
Support Group: Brain & Nervous System
Last active: May 17 3:50pm