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1,156 total results
Discussions (85)
Polycythemia vera (PV) and bone pain: What helps?
Polycythemia vera (PV) and bone pain ... My bone pain with PV is becoming worse
Last active: Sep 7, 2024
PV positive & Jak2 neg - good thing??
PV positive & Jak2 neg - good thing ... understanding from reading is 95% of PV
Last active: Jul 14, 2023
Diagnosed polycythemia vera at 26: Any young PV patients out there?
polycythemia vera at 26: Any young PV ... the process of being diagnosed with PV ... researched and know everything about PV ... Any young PV patients out there to offer
Last active: Jan 1 10:39am
JAK2/PV who’s on HU and Low Dose Aspirin
JAK2/PV who’s on HU and Low Dose Aspirin ... Has anyone with JAK2/PV who’s on 1000mg
Last active: Dec 5, 2025
Food recommendation for PV patients who should not eat iron
Food recommendation for PV patients ... end of March and was diagnosed with PV ... provide nutritional information for PV
Last active: Jun 12, 2025
Does anyone have information on PV with a low hemoglobin/ red count
Does anyone have information on PV with ... I’m labeled as having PV and have been ... in the literature about anemia with PV
Last active: Jun 24, 2023
Anyone had adverse effects from Jakafi (ruxolitinib) for PV?
effects from Jakafi (ruxolitinib) for PV ... Three years ago diagnosed with PV After ... HAS ANYONE WITH PV TAKEN JAKAFI?
Last active: Nov 24, 2024
I am curious: What symptoms did everyone have in the beginning for PV?
everyone have in the beginning for PV ... everyone have in the beginning for PV
Last active: Oct 1, 2025
My mom has Polycythemia Vera: Can PV be managed without phlebotomies?
My mom has Polycythemia Vera: Can PV ... HiMy mom (74) was diagnosed with PV ... Hemotologist believes it may have had PV ... Can PV be managed without phlebotomies
Last active: Oct 29, 2025
Anyone struggling with Polycythemia Vera, low iron and Hypothyroidism?
if anyone else is struggling with PV ... merry-go-round with trying to balance meds for PV
Last active: Apr 7, 2025