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194 total results
Comments (183)
Hello @stevep123, Welcome to Connect. You are definitely not alone. It can be overwhelming with your...
neuropathy and have no experience with IVIG ... did a search of Connect for "stopping ... IVIG" and thought you might like ... search=stopping+IVIG.
Support Group: Neuropathy
Posted: Aug 1, 2025
Cidp is chronic. Are you receiving ivig? Or subq? That’s what stops the mylan from being...
Are you receiving ivig? ... That’s what stops the mylan from being ... down. 7 weeks in the hospital with ivig
Support Group: Autoimmune Diseases
Posted: Dec 19, 2025
My son has been diagnosed with Autoimmune GFAP astrocytopathy at 8 years of age. If you...
the week his bladder & bowels stopped ... longer digesting food and his lungs stopped ... rounds of plasmapheresis, 4 rounds of ivig
Discussion: Relapse after GFAP
Support Group: Autoimmune Diseases
Posted: Oct 16, 2025
Wow - you hit the nail right on the head. "Instead of receiving the best of...
from steroids, Cellcept, Rituximab, IVIG ... EXHAUSTING and at what point do I stop
Support Group: Epilepsy & Seizures
Posted: May 6, 2025
I am desperately seeking options for my 20-year-old with LV for almost 7 years. Xarelto showed...
time at the highest doses and then stopped ... What about IVIG? ... Is IVIG clean and safe? ... on her right arm that faded after stopping
Posted: Jan 21, 2025
Welcome Toolman 53! I too have had a combination of GBS and CIDP although my timeline...
In spite of stopping the drug my symptoms ... recovered somewhat after five days of IVIG ... I am currently on IVIG and recently
Support Group: Neuropathy
Posted: Nov 9, 2024
Has anyone here seen Mayo for CIDP treatment? My dad who is 74 has been receiving...
My dad who is 74 has been receiving IVIG ... for 2 years but they seemed to have stopped
Support Group: Neuropathy
Posted: Aug 19, 2022
I have a daughter who was diagnosed with SPS in 3/2019 but went undiagnosed for several...
Usually extra Clonidine stopped the ... Unfortunately she has received IVIG ... facilities which will take someone on IVIG
Support Group: Brain & Nervous System
Posted: Jan 1, 2022
Hi Jim! I’m so excited for you to start your infusions!! I hope that they bring...
My son tried IVIg last summer. ... decide if he wanted to continue on or stop ... you have any more questions about IVIg
Support Group: Neuropathy
Posted: Sep 23, 2021