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Comments (55)
@mahmoudbakry, you might also be interested in this related discussion: - Primary Myelofibrosis: Continue watch &...
https://connect.mayoclinic.org/comment/1046374/
interested in this related discussion:
- Primary ... Myelofibrosis: Continue watch & ... /connect.mayoclinic.org/discussion/primary-myelofibrosis
@ang3, I hope you saw the helpful posts from @cindyem and @hanya. You may also be...
https://connect.mayoclinic.org/comment/1261470/
interested in this related discussion:
- Primary ... Myelofibrosis with JAK2: Anyone have ... /connect.mayoclinic.org/discussion/primary-myelofibrosis-with-jak2
Hi Dillydally, There are several discussions where members are talking about myelofibrosis and treatments. Here are...
https://connect.mayoclinic.org/comment/675825/
discussions where members are talking about myelofibrosis ... are a couple to get you started:
- Myelofibrosis ... /connect.mayoclinic.org/discussion/myelofibrosis ... -24a025/
- Primary Myelofibrosis diagnosis ... /connect.mayoclinic.org/discussion/primary-myelofibrosis-diagnosis-in
Hi @carolannt, if you would like to get a second opinion at Mayo Clinic, you can...
https://connect.mayoclinic.org/comment/963448/
a few other discussions about
- Primary ... Myelofibrosis https://connect.mayoclinic.org ... search=Primary+Myelofibrosis
In addition
Glad you popped over to this discussion group, Scott. I'm tagging fellow myelofibrosis members like @teriberi123...
https://connect.mayoclinic.org/comment/658685/
I'm tagging fellow myelofibrosis ... - Primary Myelofibrosis diagnosis ... /connect.mayoclinic.org/discussion/primary-myelofibrosis-diagnosis-in
I have been diagnosed with primary myelofibrosis for 6 yrs, after having elevated platelets, and after...
https://connect.mayoclinic.org/comment/1171967/
I have been diagnosed with primary myelofibrosis
There is a lot of information but the final comment was: The patient’s positive CALR mutation...
https://connect.mayoclinic.org/comment/1256039/
with morphological features favoring primary ... Myelofibrosis.
Thanks for catching that. Yes, I have primary myelofibrosis. I have an oncologist that is holding...
https://connect.mayoclinic.org/comment/1043713/
Yes, I have primary myelofibrosis.
Bad news last time at the doc office, the doctor told me that I suffer from...
https://connect.mayoclinic.org/comment/1044397/
doctor told me that I suffer from pmf primary ... myelofibrosis with low risk asymptomatic
Welcome, @rspriggle. I can only imagine your shock of receiving the diagnosis of primary myelofibrosis, especially...
https://connect.mayoclinic.org/comment/616932/
shock of receiving the diagnosis of primary ... myelofibrosis, especially in your 40s
My husband was diagnosed with primary myelofibrosis 1 month ago. The doctor hasn’t stated him on...
https://connect.mayoclinic.org/comment/1249038/
My husband was diagnosed with primary ... myelofibrosis 1 month ago.
Recently diagnosed with essential thrombocythemia and primary myelofibrosis with MPL mutation. Blood transfusions and iron infusions...
https://connect.mayoclinic.org/comment/764111/
with essential thrombocythemia and primary ... myelofibrosis with MPL mutation.
How does one know that Prostate cancer is progressing? What are the symptoms? What clues does...
https://connect.mayoclinic.org/comment/953505/
I also have primary myelofibrosis.
My husband was diagnosed at 69, a year ago, with Primary Myelofibrosis including Jak2 mutation. A...
https://connect.mayoclinic.org/comment/693147/
diagnosed at 69, a year ago, with Primary ... Myelofibrosis including Jak2 mutation
My husband had Lymes and Erlichiosis (another tick-borne disease) 12-15 years ago. In 2021 he was...
https://connect.mayoclinic.org/comment/764388/
he was diagnosed with Jak2 MPN, or Primary ... Myelofibrosis.
I'm 77 and 6 yrs ago I was found to need a TAVR for severe aortic...
https://connect.mayoclinic.org/comment/1164101/
biopsy and that led to a diagnosis of primary ... myelofibrosis and in a few months treatment
Hi @bjsdancer, I'm tagging @rcand10s who wrote about being diagnosed with Primary Myelofibrosis in 2013. I'm...
https://connect.mayoclinic.org/comment/101833/
wrote about being diagnosed with Primary ... Myelofibrosis in 2013.
JAK2 Myelofibrosis I have been on Ojjarra for almost three months. It is a half dose...
https://connect.mayoclinic.org/comment/1210536/
JAK2 Myelofibrosis
I have been on Ojjarra ... hands of the Mayo Clinic expert in Primary ... Myelofibrosis, Dr.
Hello @sunnyside17. Mayo Clinic does discuss some of the diseases and disorders that the Myeloproliferative Group...
https://connect.mayoclinic.org/comment/272989/
myeloproliferative-disorders-group/ovc-20201578), including:
- Primary ... myelofibrosis
- Post-essential thrombocythemia ... myelofibrosis
- Post-polycythemia vera ... myelofibrosis
- Polycythemia vera
-
Hi @nolan, welcome to Mayo Clinic Connect. You'll notice that I moved your message to this...
https://connect.mayoclinic.org/comment/194373/
thrombocythemia, polycythemia vera, primary ... myelofibrosis and others.
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