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31 total results
Comments (26)
@melissawolfe1981, I thought you might like to scan through the discussions and comments on ME/CFS and...
through the discussions and comments on ME ... /CFS and headaches while you wait for ... search=ME%2FCFS+and+headaches. ... Misunderstood and Misdiagnosed: A New Look at ME ... /CFS: https://youtu.be/kmrUpXZel9A
Support Group: Autoimmune Diseases
Posted: Oct 1 9:19am
@heminhaw My head pain/ symptoms (5 years and counting) - "puzzle with many pieces". Ear Nose...
Me - Dairy products (food sensitivity ... 1- Neck was very tense - referred me ... /CFS and post-Covid, research needed ... She sharply rejected views that ME/CFS ... illnesses." (Akiko Iwasaki gives me
@tls5alex Not sure if this will help... 10/19/2023 - Harlan Krumholz and Akiko Iwasaki (Rishi Shiah,...
Runny nose, Phlegm in back of throat, Headache ... 8/25/2025 - Immunologist: Hope for ME ... /CFS and post-Covid, research needed ... /CFS and long/post-COVID. ... She sharply rejected views that ME/CFS
October 1 2020 cxvid hit me. Since then 24 x 7 headaches and migraine with auras,...
October 1 2020 cxvid hit me. ... Since then 24 x 7 headaches and migraine ... 8/25/2025 Immunologist: Hope for ME ... /CFS and post-Covid, research needed ... She sharply rejected views that ME/CFS
Support Group: Headache & Migraine
Posted: Sep 13 6:11pm
I have been at the Long Covid and ME/CFS clinic at Stanford University for the last...
I have been at the Long Covid and ME ... /CFS clinic at Stanford University for ... have dramatically reduced fatigue, headaches
Thank you for the assistance, Colleen! I’ve never been diagnosed with ME/CFS. I’ve done a lot...
I’ve never been diagnosed with ME/CFS ... research over a period of many years, and ME ... /CFS is the only thing I’ve found that ... symptoms: shortness of breath, dizziness, headache
Me too, And it (also) began with a diagnosis of Polymyalgia Rheumatica and high doses of...
Me too, And it (also) began with ... , that same doctor didn't tell me ... He's also diagnosed me with CFS. ... Then, they all sent me home to have ... the "really bad headache" they
Support Group: Brain & Nervous System
Posted: Aug 18, 2024
Hi @lisalucier, Thank you for responding. I do hope @johnbishop might have some helpful input. I've...
sharp pain) *High blood pressure *Headaches ... thought it could be something like CFS ... /ME, but her response made it clear ... could even find a doctor who treated ME ... The first told me I'm in pain because
Support Group: Autoimmune Diseases
Posted: Sep 19, 2017
Becky, As always you are there to add great advice! It will be three years in...
he is now in orthopedics and treats me ... /CFS and its symptoms. ... trying to figure out my dizziness, headaches ... My body just gave up on me!) ... trying to help with symptoms of the headaches
Support Group: Just Want to Talk
Posted: Feb 23, 2021
Hi Barbara, To my knowledge, Post Interferon Syndrome (PIS) has only been recently been acknowledged by...
have better luck finding help with a ME ... /CFS specialist as the PIS is a subset ... of ME/CFS. ... /CFS. ... Severe migraine headaches (after accumulative
Support Group: Infectious Diseases
Posted: Nov 16, 2019
Wow. I thought I was the only one. I have both fibromyalgia, and PMR too. The...
now, I am not being treated for the CFS ... not tolerate any doctor who treats me ... doctor with no compassion have at me ... a whopper of a headache. ... A Vietnam Vet told me to do it.
Discussion: Fibro or PMR
Support Group: Fibromyalgia
Posted: Aug 13, 2024
Hi All POTS People, I think I have previously given input to this discussion but can't...
I was diagnosed with CFS and fibromyalgia ... CFS is probably still laying in wait ... more sleep than others is my only CFS ... GI problems and headaches have not gone ... Please ask me anymore questions you
I can relate to what you are going through. I am almost exactly 8 weeks out...
post-exertional malaise, sore muscles, headaches ... the free app Visible: Long Covid and ME ... /CFS.
Discussion: I am so damn tired
Posted: Mar 5, 2024
Hi there- I am sorry to hear that your daughter is also going through this. It's...
She is well aware of EBV and CFS. ... seem to help some people with EBV and CFS ... It makes perfect sense to me about the ... He also has GI issues, chronic headaches
Support Group: Infectious Diseases
Posted: Mar 5, 2018
I hear you. I feel your pain. In 2009 -2009 I participated in a 2nd Stage...
I was consequently diagnosed with ME ... /CFS. ... Severe migraine headaches (after accumulative ... corroborated my conviction that my ME ... /CFS, in general, I feel we must do
Support Group: Infectious Diseases
Posted: Aug 4, 2019
I have been taking clonazepam for 30 years. I am 73 years old and I have...
I’ve had CFS for 26 years along with ... My new doctor immediately told me that ... She cut me down to one pill in the morning ... have ringing in my ears, a horrible headache ... do I convince my new doctor to let me
Support Group: Depression & Anxiety
Posted: Jan 10, 2023
The more I read about ME/CFS the more I am convinced this is what is affecting...
The more I read about ME/CFS the more ... convinced this is what is affecting me ... Even when I read about ME/CFS in children ... said that in adolescents dizziness, headaches
Support Group: Just Want to Talk
Posted: Jun 13, 2022
Hi StillAway, I’ve had long term Covid for almost 3 months. I also have Fibromyalgia, Sjögrens...
Sjögrens (which is Autoimmune) and CFS ... It’s definitely put me in a flare this ... symptoms: nasal congestion, throat pain, headache
Discussion: Long Covid pain
Support Group: Chronic Pain
Posted: Jan 12, 2024
Hello there, I totally understand and empathize with your pain management challenges. I’ve been dealing with...
serious and debilitating cases of CFS ... take several aspirin to get rid of a headache ... do you take more aspirin when the headache ... Me and most opioid patients have found
Support Group: Fibromyalgia
Posted: Apr 13, 2023