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15 total results
Comments (12)
Hi @auntsue303 I'm sorry to hear your husband has developed an enlarged spleen. I know from...
hear your husband has developed an enlarged ... spleen. ... and an enlarged spleen, I did a quick ... search=MDS+%2B+Enlarged+spleen What ... feel it is a side effect from the MDS
Posted: May 12 9:26am
After many years of dealing with MDS and MF my spleen was Huge. I had a...
After many years of dealing with MDS ... and MF my spleen was Huge. ... doctor started me on VONJO, and my spleen ... for the past couple years and the Spleen ... has not enlarged again.
Posted: Mar 7, 2024
Hi @time4dje and welcome to Mayo Connect. Myelodysplastic syndromes (MDS) are a group of disorders caused...
The spleen acts as a filter in the body ... and may enlarge in patients with MDS ... This can cause the spleen to work harder ... ve most likely discovered, when the spleen ... enlarges it’s uncomfortable causing
Posted: May 1 2:52pm
I have MF and MDS. My spleen was huge and the pain and discomfort were bad....
I have MF and MDS. ... My spleen was huge and the pain and ... alignment so they could radiate my spleen ... Within a month my spleen was no longer ... enlarged, the pain was totally gone
My original MDS diagnosis indicated a higher level of risk. My local hematologist suggested treatment with...
My original MDS diagnosis indicated ... After visiting an mds expert at a center ... benefit, high cost and possibility of enlarged ... spleen/ evidence that long term use ... been living life for 3 years post MDS
Discussion: MDS and Neupogen
Posted: Mar 1, 2019
@bromlj1 - I’m deeply sorry you’re navigating a high-risk MDS diagnosis—it’s a lot to take in....
sorry you’re navigating a high-risk MDS ... chills—likely stem from low blood counts or spleen ... enlargement, common in MDS. ... High-risk MDS with TP53 mutations and ... symptoms are addressed (e.g., imaging for spleen
I have been diagnosed with MDS 2016. Now I have been diagnosed with CMML. 3 yrs...
I have been diagnosed with MDS 2016. ... Also my spleen is very enlarged so ... hoping the hydroxurea will shrink my spleen
Posted: Jun 16, 2025
Hi, ı am a patient who does have a MF/MDS overlap with JAk2 and SBF31 mutations,...
ı am a patient who does have a MF/MDS ... made the change in diagnosis to the MDS ... I developed an enlarged spleen, .
Posted: Nov 26, 2020
Yep... I'm in there with both of you. MDS and MF. There are a couple of...
MDS and MF. ... The Spleen will take up some of the ... keep things going, but at the cost of enlarging ... a major role in shrinking down my Spleen
Posted: Jul 23, 2023
You are correct, everyone is different. 16 year ago a routine physical showed that my platelets...
Bone marrow biopsy showed MF and MDS ... My spleen was greatly enlarged and they ... a very short time my pain from the spleen
Posted: Nov 2, 2023