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97 total results
Comments (92)
I was diagnosed in 2022 with WM w/ IgM neuropathy. 12 Rituxan infusions latter neuropathy not...
https://connect.mayoclinic.org/comment/898515/
I was diagnosed in 2022 with WM w/ IgM ... neuropathy. 12 Rituxan infusions latter ... neuropathy not better. ... I thought IgM anti MAG are peripheral ... neuropathies.
Hello @3charlie, Welcome to Connect. There is some information on the test but I'm not sure...
https://connect.mayoclinic.org/comment/1199561/
drc-20355691
Since you mentioned IgM ... and neuropathy, you might find it helpful ... scan through the other discussions on IgM ... and neuropathy. ... search=Igm+neuropathy.
Welcome @lreed333, I thought I would jump into your reply to @rpenn and share a discussion...
https://connect.mayoclinic.org/comment/1576709/
-- TS-HDS Antibody and Small Fiber Neuropathy ... discussion/ts-hds-antibody-and-small-fiber-neuropathy ... discussions on monoclonal gammopathy and IgM-kappa ... connect.mayoclinic.org/search/discussions/
-- IgM-kappa
@savomic Hello, I’m a retired pathologist who was diagnosed with a MGUS IgM kappa with also...
https://connect.mayoclinic.org/comment/1590933/
pathologist who was diagnosed with a MGUS IgM ... I’m also positive for anti-MAG neuropathy ... the investigators studying anti-MAG neuropathy ... out of 200 patients with anti-MAG neuropathy
Dear all, I have a question for those with anti-MAG neuropathy or clinicians/researchers familiar with it....
https://connect.mayoclinic.org/comment/1594136/
a question for those with anti-MAG neuropathy ... monoclonal MGUS rather than the usual IgM ... is classically associated with an IgM ... IgG monoclonal protein rather than IgM ... antibody shown to be IgG rather than IgM
Thanks Jerry, sorry you have a similar LPL to Anna. Hers is LPL IgG with Kappa...
https://connect.mayoclinic.org/comment/1527062/
IWMF web site today, although not IgM ... infusions in December which put my Igm ... range (down from 900) , it helped my neuropathy ... is more likely to cause neuropathy ... not so much neuropathy, ' thanks
I was diagnosed with MGUS in July 2025 and with SMM four days ago, in March...
https://connect.mayoclinic.org/comment/1529382/
have 10-15 percent kappa dominant IGM ... have bioclonal gammopathy, with an IGM ... kappa monoclonal protein of .35 and an IGM ... My primary symptom at this point is neuropathy ... hopefully slow the progression of my neuropathy
I was diagnosed with with Igm Mgus in May 2023. In Dec 2023 I experienced pin,...
https://connect.mayoclinic.org/comment/1538482/
I was diagnosed with with
Igm Mgus ... was related to the Igm mgus. ... biopsy in Nov 2025 and diagnosed Igm ... mgus anti mag neuropathy. ( now up ... thoughts/suggestions are for those with Igm
@dcuste Thank you for sharing. Fortunately my hematologist is experienced with WM. She said she would...
https://connect.mayoclinic.org/comment/1538228/
start thinking about treatment when my IGM ... considering doing it earlier due to my neuropathy
@wcooke Walter, Thanks for your response. My husband went to Dana Farber in 2020 and had...
https://connect.mayoclinic.org/comment/1535940/
My husband’s IGM score has been normal ... Just Neuropothy still dealing with.
Yesterday I was diagnosed with Waldenstrom's macroglobulinemia; I have the MYD88 wild type. My primary symptom...
https://connect.mayoclinic.org/comment/1537473/
My primary symptom is peripheral neuropathy ... Has anyone experienced neuropathy this ... normally would not start at my current IgM ... perhaps it would slow progression of my neuropathy
@mike02041950 My treatment at MAYO is more based on if I have a symptom (like Neuropathy)...
https://connect.mayoclinic.org/comment/1538968/
based on if I have a symptom (like Neuropathy ... ) than the IgM level.
I have WM with only IgM of 850 now 550 but have Anti-mag > 70000 for...
https://connect.mayoclinic.org/comment/1073831/
I have WM with only IgM of 850 now 550 ... My neuropathy is still progressing -
Curious to hear more from you and others and possible symptoms. I‘ve been diagnosed a year...
https://connect.mayoclinic.org/comment/944093/
been diagnosed a year ago with MGUS IGM ... Kappa Light Chain and in 2019 with neuropathy ... up I was diagnosed with small fibre neuropathy ... think there is a connection as my neuropathy
Good morning. I was diagnosed with MGUS IgM Kappa with a small fiber neuropathy in 2012....
https://connect.mayoclinic.org/comment/943970/
I was diagnosed with MGUS IgM Kappa ... with a small fiber neuropathy in 2012
Again, COVID in March 2020, 68 yrs old, Raynaud's Diagnosis March 2021, Gluten Neuropathy March 2021,...
https://connect.mayoclinic.org/comment/843900/
#39;s Diagnosis March 2021, Gluten Neuropathy ... IgG, IgE, IgM levels normal.
Hello @savomic, Welcome to Connect. While we wait wait for others to share their experience, I...
https://connect.mayoclinic.org/comment/778224/
positive DADS, involves deposits of IgM ... often linked to a rare demyelinating neuropathy ... acquired demyelinating sensory (DADS) neuropathy ... patients with treatable immune-mediated neuropathies ... /demyelinating-neuropathies/mag/
do you have Igm mgus like me which is linked to the neuropathy
https://connect.mayoclinic.org/comment/755008/
do you have Igm mgus like me which is ... linked to the neuropathy
i have tshds small fiber neuropathy with an Igm monoclonal protein but have other symtoms like...
https://connect.mayoclinic.org/comment/755005/
i have tshds small fiber neuropathy ... with an Igm monoclonal protein but have
Hello (my 1st post) - I have Waldenstrom's - diagnosed 2007 or so. Had bad neuropathy...
https://connect.mayoclinic.org/comment/661646/
Had bad neuropathy which improved somewhat ... 2011, after which my blood levels (IgM
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