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113 total results
Comments (107)
I was diagnosed in 2022 with WM w/ IgM neuropathy. 12 Rituxan infusions latter neuropathy not...
I was diagnosed in 2022 with WM w/ IgM ... neuropathy. 12 Rituxan infusions latter ... neuropathy not better. ... I thought IgM anti MAG are peripheral ... neuropathies.
Posted: Jul 19, 2023
Hello @3charlie, Welcome to Connect. There is some information on the test but I'm not sure...
drc-20355691 Since you mentioned IgM ... and neuropathy, you might find it helpful ... scan through the other discussions on IgM ... and neuropathy. ... search=Igm+neuropathy.
Support Group: Neuropathy
Posted: Dec 29, 2024
@positivehealth ... I have not been treated for Rituximab and frankly don't want to be at...
at this stage of my WM (started at IgM ... 2622, Neuropathy w/ AMA 1531). ... This attacks the IgM (cancerous) clonal ... 71.4% effective in treating peripheral neuropathy ... After one month on Brukinsa my IgM dropped
Support Group: Neuropathy
Posted: Aug 7 10:39am
I am a patient that does my homework. We have to do that in this day...
first diagnosis was easily determined (IgM ... WM first BECAUSE I have peripheral neuropathy ... , which can be caused (in-part) by IgM ... Brukinsa can kill those cancerous IgM ... hopefully" reduce or eliminate my neuropathy
Posted: Aug 6 10:07am
@pkeelan56 Are you saying that Mayo said that Rituxan is the only treatment for anti-MAG neuropathy?...
is the only treatment for anti-MAG neuropathy ... Brukinsa is effective (eliminating IgM ... probably used in more virulent (higher IgM ... Having said that, my neuropathy pain ... the drug attacks the nerve lining IgM
Support Group: Neuropathy
Posted: Aug 6 7:33am
@roslyn2314 I also developed small fiber neuropathy after my first shingrix vaccine and still have it....
roslyn2314 I also developed small fiber neuropathy ... I have selective IgM deficiency and ... said that because I don’t have enough IgM
Support Group: Neuropathy
Posted: 1 day ago
Sorry to hear that you've been dealing with the nueropathy so long. I am a 74...
you've been dealing with the nueropathy ... I had intermittant neuropathy (various ... was at least partially from IgM Anti-MAG ... That confirmed that IgM cancer B-cells ... considered normal as the "killing of IgM
Support Group: Neuropathy
Posted: Aug 5 7:44am
@savomic Hello, I’m a retired pathologist who was diagnosed with a MGUS IgM kappa with also...
pathologist who was diagnosed with a MGUS IgM ... I’m also positive for anti-MAG neuropathy ... the investigators studying anti-MAG neuropathy ... out of 200 patients with anti-MAG neuropathy
Support Group: Neuropathy
Posted: Jun 4 9:37pm
@kmb205 Also, has anyone else had issues with lower back pain and neck pain who has...
pain and neck pain who has anti-mag/IgM ... MGUS with neuropathy? ... I had had minor neuropathy symptoms
Support Group: Autoimmune Diseases
Posted: Jun 14 7:25am
Ok. My husband was treated locally before he found out what he really had. They told...
The tell tale sign was his IGM blood ... He was developing Neuropothy before ... The treatment brought his IGM to normal ... has a blood test every 6 months and IGM
Support Group: Autoimmune Diseases
Posted: Jul 12 5:00pm
@marcwall ... In addition, I forgot to mention this. If someone has high IgM monoclonal cells...
If someone has high IgM monoclonal cells ... were (at least in-part) causing my neuropathy ... both the cancer and the peripheral neuropathy
Support Group: Neuropathy
Posted: Jul 20 8:39am
I have hand tremors. I have probably had them longer than I knew about the MGUS...
other symptoms as well like intense neuropathy ... My IgM has been hanging out around 1100
Posted: Jul 10 7:15am
Dear all, I have a question for those with anti-MAG neuropathy or clinicians/researchers familiar with it....
a question for those with anti-MAG neuropathy ... monoclonal MGUS rather than the usual IgM ... is classically associated with an IgM ... IgG monoclonal protein rather than IgM ... antibody shown to be IgG rather than IgM
Sorry you are experiencing this. Do you have WM? A year before I was diagnosed with...
myeloma, I was experiencing frequent neuropathy ... The IgM clonal cells are notorious for ... creating symptoms like neuropathy ( ... IgM attacking myelin nerve sheathing
This is very rare, but trigeminal neuropathy can be caused by numerous things. One of them...
This is very rare, but trigeminal neuropathy ... One of them is from IgM monoclonal intrusion ... it is 71.4% likely to resolve the neuropathy ... They can run a IgM ANA test to see if ... you have an elevated number of IgM
Support Group: Neuropathy
Posted: Jul 20 7:26am