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75 total results
Comments (67)
Hi @grandmar -- Ronnie. My husband John has dealt with Sensory Periphery Neuropathy for 20 years....
His neuropathy is due to a genetic disease ... -- Charcot-Marie-Tooth disease (CMT ... You can find more information on CMT ... https://www.cmtausa.org/understanding-cmt ... /what-is-cmt/ John's neuropathy
Support Group: Neuropathy
Posted: May 12, 2019
@njed I have wandered about CMT but when I mentioned the toes and arches the neurologist...
@njed I have wandered about CMT but ... I put the bad balance down due to neuropathy ... I guess its not CMT as no one else in ... my family has CMT and I believe its
Support Group: Neuropathy
Posted: Apr 8 12:51pm
@db72 thanks Suz appreciate it! I have the same diagnosis as you except ive been told...
No one in my family has CMT but I was ... interested in having a patient with neuropathy ... NEUROlogist…NEUROpathy lol.
Support Group: Neuropathy
Posted: Apr 17 6:33pm
I was born with CMT [CHARCO MARIE TOOTH] .CMT is a progressive neuromuscular disease that damages...
I was born with CMT [CHARCO MARIE TOOTH ... ] .CMT is a progressive neuromuscular ... CMT affects an astounding 3 million ... There is currently no cure for CMT. ... The burning from the Neuropathy and
Support Group: Neuropathy
Posted: Feb 4, 2023
I have Charlotte Marie Tooth (CMT) disease which is rare and inherited. I inherited the disease...
I have Charlotte Marie Tooth (CMT) disease ... There are 5 types of CMT. ... for most part includes Long Fibre Neuropathy ... last count there were 2600 diagnosed CMT
Support Group: Neuropathy
Posted: Jun 8, 2024
Same here. I was on Gabapentin 600mg 3X per day for 4 months. Never worked. Currently...
have a family history of peripheral neuropathy ... She ordered one for CMT and HSN. ... Hospital about three (3) years ago for CMT ... 80 known gene mutations that cause CMT ... find out what is actually causing my neuropathy
Support Group: Neuropathy
Posted: Jul 17, 2020
Hello @stefspad, Welcome to Mayo Clinic Connect. There is a CMT discussion on Connect that may...
There is a CMT discussion on Connect ... members in the discussion here: CMT ... /managing-cmt/exercise/lets-move/ ... not to have the associated pain with neuropathy ... that as I have small fiber peripheral neuropathy
Support Group: Neuropathy
Posted: Apr 7, 2020
Hi @rivermaya34. So sorry to hear you have been diagnosed with HNPP. This is such a...
can get the medication list from the CMT ... GRIN (Global registry for inherited neuropathies ... ) and HNPP/CMT (Charcot Marie tooth ... Join the facebook group for HNPP and CMT ... We do fall under CMT1 that's why
Ray, the fact that your brother had terrible neuropathy would have to be a smoking gun....
fact that your brother had terrible neuropathy ... I had CMT testing in 2018 and it came
Support Group: Neuropathy
Posted: Feb 19, 2024
Ray - I get you. Over my first 6 years ( different doctors, 2 medical university...
consistent term used was Peripheral Neuropathy ... doctor’s notes spelled out PN as Poly Neuropathy ... Severe Axonal Sensorimotor Peripheral Neuropathy ... explained why he didn’t believe it was CMT
Support Group: Neuropathy
Posted: Nov 19, 2023
I have at least five generations on my mother’s side who were diagnosed with Hereditary Sensory...
diagnosed with Hereditary Sensory Neuropathy ... (now CMT). ... and CMT4B. ... Oldest daughter was negative for CMT ... and CMT4B.
Discussion: DNA testing
Support Group: Neuropathy
Posted: Oct 20, 2023
@ronoejello1, @SusanEllen66 - I would be interested to hear how your appointment went with Dr. David...
neurologists at the 2016 Minnesota Neuropathy ... program… Program for Minnesota Neuropathy ... David Walk: “The Basics of Neuropathy ... trialbulletin.com/lib/entry/ct-02260388 • CMT ... /PMC4392824/ • PXT-3003 Study for CMT1A
Support Group: Neuropathy
Posted: Aug 31, 2023
Hello Colleen (@colleenyoung), John (@johnbishop), and all! My husband John has Peripheral Neuropathy. Initially (approx. 20...
My husband John has Peripheral Neuropathy ... Charcot-Marie-Tooth, type 2A" (CMT2A ... ), an hereditary neuropathy. ... perhaps a "new" subgroup of CMT ... Sumner, a Neurologist in the CMT Department
Support Group: Neuropathy
Posted: Aug 10, 2018