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123 total results

Comments (119)

@garyintlv, you may also be interested in the experiences shared in these related posts about Besrimi:...

https://connect.mayoclinic.org/comment/1233220/

shared in these related posts about Besrimi ... search=Besrimi%20

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Feb 9 5:09pm

Are you that are on Besrimi experiencing any hair loss. I am getting pretty thin on...

https://connect.mayoclinic.org/comment/1332950/

Are you that are on Besrimi experiencing

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Jun 22 5:18pm

Thank you so very much. This is helpful. Best to you on your Besrimi journey. I've...

https://connect.mayoclinic.org/comment/1161041/

Best to you on your Besrimi journey.

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2024

I was never on Pegasys. I have only been on Hydra, Angralide, Eliquis and now Besrimi

https://connect.mayoclinic.org/comment/1158681/

Hydra, Angralide, Eliquis and now Besrimi

Discussion: After 3 months on hydroxyurea, I am going to ask to switch to Besremi

Support Group: Blood Cancers & Disorders

Posted: Oct 17, 2024

I could not take the Hydroxyurea either. I am now getting injections of Besrimi every other...

https://connect.mayoclinic.org/comment/1159379/

I am now getting injections of Besrimi

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2024

My hematologist was the one that the Besrimi had to come from a specialty pharmacy and...

https://connect.mayoclinic.org/comment/1158212/

hematologist was the one that the Besrimi

Discussion: After 3 months on hydroxyurea, I am going to ask to switch to Besremi

Support Group: Blood Cancers & Disorders

Posted: Oct 16, 2024

I have been on Besrimi for a few months now and am having no side effects....

https://connect.mayoclinic.org/comment/1228582/

I have been on Besrimi for a few months

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Feb 3 11:19am

I am on Besrimi. I have had 4 injections. I get them every other week. When...

https://connect.mayoclinic.org/comment/1153069/

I am on Besrimi. ... I have had no side effects to the Besrimi

Discussion: After 3 months on hydroxyurea, I am going to ask to switch to Besremi

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2024

I could not take HU either but I did not have GI problems. I had really...

https://connect.mayoclinic.org/comment/1234750/

I have been on Besrimi injections since

Discussion: GI issues after 7 months on Hydroxyurea - What’s next?

Support Group: Blood Cancers & Disorders

Posted: Feb 11 6:54pm

I had a change of my vision while on Hydrea. I went to my eye dr...

https://connect.mayoclinic.org/comment/1168473/

I am now on Besrimi injections every

Discussion: Are visual disturbances related to ET or hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2024

I started taking Hydrea and had no side effects for 6 months. In 6 months I...

https://connect.mayoclinic.org/comment/1161007/

Now I am on the Besrimi injections and

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2024

I have the same thing, bone pain. That was one of my first symptoms to show...

https://connect.mayoclinic.org/comment/1388187/

When the Besremi is working I don&#39

Discussion: Does your oncologist acknowledge that ET may cause bone pain?

Support Group: Blood Cancers & Disorders

Posted: Sep 6 3:41pm

Thanks you for this info. My Dr sees no reason to pursue Besremi since HU is...

https://connect.mayoclinic.org/comment/1384490/

My Dr sees no reason to pursue Besremi

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Sep 1 4:37pm

I should have stuck with Hydroxyurea. The first Besremi shot in Feb. Biweekly thereafter. Starter dose...

https://connect.mayoclinic.org/comment/1386975/

The first Besremi shot in Feb. ... I wish the Dr had advised Besremi is

Discussion: After 3 months on hydroxyurea, I am going to ask to switch to Besremi

Support Group: Blood Cancers & Disorders

Posted: Sep 4 10:07pm

Glad to hear that the Besremi is working for folks! Anyone getting depression as a side...

https://connect.mayoclinic.org/comment/1379597/

Glad to hear that the Besremi is working ... Pegasys, the interferon used before besremi ... from the front lines for those using Besremi

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Aug 26 9:03am

Good morning, I wanted to share my positive experience with Besremi in case it is helpful...

https://connect.mayoclinic.org/comment/1378906/

share my positive experience with Besremi ... I started Besremi on July 2, 2025.

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Aug 25 10:59am

My Hematologist wants my HCT below 45, so I have started phlebotomy every month. Not fun....

https://connect.mayoclinic.org/comment/1369210/

keep HCT down, then I will switch to Besremi

Discussion: What hematocrit (HCT) targets indicate phlebotomy needed for PVC?

Support Group: Blood Cancers & Disorders

Posted: Aug 12 2:56pm

Two types of interferon, Pegasys and newer generation Besremi. Many ET patients take baby aspirin only...

https://connect.mayoclinic.org/comment/1339184/

interferon, Pegasys and newer generation Besremi ... Besremi seems better tolerated. ... Fewer people on Besremi in U.S. due

Discussion: Question for 2025 and ET Patients

Support Group: Blood Cancers & Disorders

Posted: Jul 1 3:01pm

I saw my haematologist today. My platelets are well within normal range after taking 100mcg Besremi...

https://connect.mayoclinic.org/comment/1345693/

within normal range after taking 100mcg Besremi

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Jul 11 8:48am

Hi, I have Triple Negative ET. I am only 42 years old and my symptoms started...

https://connect.mayoclinic.org/comment/1381410/

I am on Besremi and have been for around ... Oncologist decided that the next step was Besremi ... and unfortunately we noticed that Besremi ... I love Besremi.

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Aug 28 2:34pm