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902 total results
Comments (872)
Sounds like GCA and am glad they have started treatment. Classic symptoms. Have had GCA, not...
https://connect.mayoclinic.org/comment/1242342/
Sounds like GCA and am glad they have ... Have had GCA, not counting the HA and ... I expect to be on Actemra for another ... GCA can cause brain aneurysm, abdominal ... Actemra can cause cancer.
Hello @mhi. I've been losing weight too - 21 lbs. since mid-November. However, that's when I...
https://connect.mayoclinic.org/comment/333260/
when I was taken off Prednisone and Actemra ... (GCA) because my WBC and neutrophils ... I'm back on Actemra, every two weeks
@stonewheel It used to be that prednisone was the "only option" for PMR/GCA. The side effects...
https://connect.mayoclinic.org/comment/1473409/
the "only option" for PMR/GCA ... were FDA approved for either PMR or GCA ... have any serious side effects from Actemra ... GCA patients have an easier time being
@chamberlainrebekah5 Here is a thread that has been active lately - https://connect.mayoclinic.org/discussion/who-is-on-rinvoq-for-gca-vs-actemra/ I have been taking...
https://connect.mayoclinic.org/comment/1504905/
connect.mayoclinic.org/discussion/who-is-on-rinvoq-for-gca-vs-actemra ... /
I have been taking weekly Actemra ... Are you miserable because of GCA or
Thanks so much for this thread! I was diagnosed with PMR/GCA in April 2023 following a...
https://connect.mayoclinic.org/comment/1505587/
I was diagnosed with PMR/GCA in April ... Prednisone with weekly injections of Actemra
@kmb181 I was redirected to your post after my weather inquiry. I’m also in NC and...
https://connect.mayoclinic.org/comment/1510260/
if Duke has you on or recommended actemra ... was interested since I’ve also got GCA
@pmrsuzie I stopped taking prednisone about 6 months ago for GCA and PMR. I'm still taking...
https://connect.mayoclinic.org/comment/1510687/
prednisone about 6 months ago for GCA ... I'm still taking Actemra injections
@janb62 I also have GCA, and started on 60 mg prednisone. I also started to lose...
https://connect.mayoclinic.org/comment/1513743/
@janb62
I also have GCA, and started ... prednisone, I have also had monthly Actemra
You started on a high dose for someone with PMR! I started at 60 to treat...
https://connect.mayoclinic.org/comment/1511336/
I started at 60 to treat GCA and PMR ... I've been taking Actemra for a year
@alonna I was similar to you when I was taking prednisone to treat GCA. I would...
https://connect.mayoclinic.org/comment/1517445/
when I was taking prednisone to treat GCA ... I started taking Actemra 6 weeks after ... I'm still taking Actemra, but I
Hi! I am new to this phase. My hospital lab shows my IL-6 at a ‘high’...
https://connect.mayoclinic.org/comment/1517990/
I tested because I might have GCA and ... would like to have Actemra prescribed ... did you have that determined your GCA
@jeanrod825 My husband and I ate at a very good restaurant! We both felt something off...
https://connect.mayoclinic.org/comment/1520244/
emergency room for testing (Lupus, GCA ... WITH NO EVIDENCE FOUND TO SUPPORT GCA ... lowered dose PREDNISONE tapered to ACTEMRA ... " GCA?? ... GCA IS supposed to directly affect
@pappy6 I still do an Actemra infusion every month. There is some flexibility and sometimes the...
https://connect.mayoclinic.org/comment/1520781/
@pappy6
I still do an Actemra infusion ... have not been able to completely stop Actemra ... patient with an isolated case of PMR or GCA ... not so sure isolated cases of PMR or GCA
@jr46 My understanding of clinical trials is if you are in the control group, i. e....
https://connect.mayoclinic.org/comment/1520823/
means most likely you are receiving Actemra ... I cannot believe if you have GCA that
I've been on monthly Actemra infusions since January 2025. Actemra allowed me to taper off of...
https://connect.mayoclinic.org/comment/1521387/
I've been on monthly Actemra infusions ... While on Actemra, I had gotten COVID ... Actemra told me that he will taper me ... but not what they were before PMR/GCA ... was always very active before PMR/GCA
@julieahp Hello. I am interested in your experience with Tyenne. I have GCA and started on...
https://connect.mayoclinic.org/comment/1523267/
I have GCA and started on the usual ... high dose pred infusions, then added Actemra ... but it was quite painful compared to Actemra
@jck51 Please understand that members of Mayo Clinic Connect are not medically trained so we often...
https://connect.mayoclinic.org/comment/1502476/
PMR/GCA/vasculitis are all uncommon ... They are indeed not reliable when on Actemra
Clearly we all get varying information from our Rheumy. My GCA is temporal Arteritis vs large...
https://connect.mayoclinic.org/comment/1503454/
My GCA is temporal Arteritis vs large ... flexibility due to the long half-life of Actemra
Is Rinvoq working for you? Have you tapered off Prednisone? I'm currently being treated with a...
https://connect.mayoclinic.org/comment/1503669/
treated with a monthly infusion of Actemra ... I am happy with Actemra but I'm ... options besides Prednisone to treat PMR/GCA ... is light-years ahead of other PMR/GCA
@caroljeand Let's hope so! I don't want to stop the celebration but the game isn't over...
https://connect.mayoclinic.org/comment/1511299/
Actemra was working for PMR/GCA but ... my ophthalmologist said Actemra wasn ... My ophthalmologist switched Actemra ... memo wasn't sent for treating PMR/GCA ... the "only option" for PMR/GCA
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