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664 total results
Comments (640)
Sounds like GCA and am glad they have started treatment. Classic symptoms. Have had GCA, not...
https://connect.mayoclinic.org/comment/1242342/
Sounds like GCA and am glad they have ... Have had GCA, not counting the HA and ... I expect to be on Actemra for another ... GCA can cause brain aneurysm, abdominal ... Actemra can cause cancer.
Hello @mhi. I've been losing weight too - 21 lbs. since mid-November. However, that's when I...
https://connect.mayoclinic.org/comment/333260/
when I was taken off Prednisone and Actemra ... (GCA) because my WBC and neutrophils ... I'm back on Actemra, every two weeks
Actually the sooner you start Actemra, the better. It helps you to taper faster and with...
https://connect.mayoclinic.org/comment/1334491/
Actually the sooner you start Actemra ... a day of prednisone when I started Actemra ... It takes up to 2 months for Actemra ... prednisone during that time to control your GCA ... stop taking prednisone when you start Actemra
I started my Actemra infusions in January 2024. I chose the infusions. If I would have...
https://connect.mayoclinic.org/comment/1344679/
I started my Actemra infusions in January ... when I was first diagnosed with PMR/GCA ... Actemra has been a game changer for
Thank you for your post. It is extremely helpful. I was diagnosed with GCA in November...
https://connect.mayoclinic.org/comment/1346548/
I was diagnosed with GCA in November ... I started on Actemra injections in March
Hi Jeff, It’s been a while since I’ve been here. PMR diagnosis in about 2016. Still...
https://connect.mayoclinic.org/comment/1340040/
GCA was a concern, jaw locking and terrible ... caused chest pain and chest rash, Actemra
I've been taking Actemra for more than 10 months, and I haven't had any headaches. Are...
https://connect.mayoclinic.org/comment/1337367/
I've been taking Actemra for more ... Is the Actemra to treat GCA?
I have PMR and GCA, and I have definitely gotten more colds since I started treatment...
https://connect.mayoclinic.org/comment/1328552/
I have PMR and GCA, and I have definitely ... taking prednisone for a year, and Actemra ... Before getting sick with PMR and GCA
It was the terminology used in the GiACTA study that led to the FDA approval of...
https://connect.mayoclinic.org/comment/1334569/
study that led to the FDA approval of Actemra ... for GCA in 2017.
"Remission ... -----------
The IV formulation of Actemra ... was FDA approved for GCA in 2022. ... ----------------
Long term use of Actemra
Hello @sellrs8, Welcome to Connect. I don't have any experience with Actemra but your mom is...
https://connect.mayoclinic.org/comment/1345017/
don't have any experience with Actemra ... different discussions and comments on Actemra ... and GCA - https://connect.mayoclinic.org ... search=Actemra%20+GCA.
It would depend on your insurance first of all. I have straight Medicare and a Part...
https://connect.mayoclinic.org/comment/1344089/
plan sold in my county will cover Actemra ... I am on Actemra infusions and I was ... The clinical trials for Actemra showed ... around 50% of patients with GCA were ... off prednisone and Actemra after a
I think a lot of people are able to stop Actemra and still have a "sustained...
https://connect.mayoclinic.org/comment/1343986/
think a lot of people are able to stop Actemra ... one of those people and have been on Actemra ... Actemra was stopped a couple of times ... rheumatologist has no plan to stop Actemra ... and for GCA only.
I started 60mg prednisone Jan 2025, and monthly infusions of Actemra since February. The point of...
https://connect.mayoclinic.org/comment/1346036/
Jan 2025, and monthly infusions of Actemra ... The point of Actemra is to reduce GCA ... I have had 6 monthly Actemra infusion ... So,for me, Actemra is great.
I think it’s worth a try. It takes a month or so to kick in but...
https://connect.mayoclinic.org/comment/1346405/
Also have not had a return of GCA symptoms ... I’m very satisfied with this Actemra
Some people with PMR and/or GCA are on prednisone for many years. If they are lucky,...
https://connect.mayoclinic.org/comment/1332082/
Some people with PMR and/or GCA are ... I have PMR and GCA, and I've been ... taking prednisone for a year, and Actemra ... I expect to have to take Actemra for ... of prednisone for 6 weeks to get my GCA
Diagnosed with GCA (temporal arteritis) February 2025, started 60 mg Prednisone. Started monthly ACTEMRA infusions March...
https://connect.mayoclinic.org/comment/1334374/
Diagnosed with GCA (temporal arteritis ... Started monthly ACTEMRA infusions March ... ACTEMRA infusions are to continue monthly
Sorry that you have joined 'the Club'. This is a great forum with wonderful people who...
https://connect.mayoclinic.org/comment/1338607/
diagnosed July 2024 with PMR and possible GCA ... Started on 60 mg. of pred. for the GCA ... I'm am now on 5 mg., thanks to Actemra
I was treated 12 years with Prednisone for refractory PMR. When a biologic called Actemra (tocilizumab)...
https://connect.mayoclinic.org/comment/1340606/
When a biologic called Actemra (tocilizumab ... Actemra is FDA approved for GCA but ... increase when my monthly infusion of Actemra ... seem to have any side effects from Actemra ... I can't say Actemra "cured me
Be careful if you're planning to stop prednisone or Actemra. Stopping prednisone without tapering could make...
https://connect.mayoclinic.org/comment/1337634/
;re planning to stop prednisone or Actemra ... and stopping either prednisone or Actemra ... could cause a GCA flare or make the ... If you have any other symptoms of GCA
I believe the pred side effects worsen the longer you’re on it. I hope Actemra works...
https://connect.mayoclinic.org/comment/1335382/
I hope Actemra works well for you. ... Best wishes to you on your GCA journey
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