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722 total results
Comments (698)
Sounds like GCA and am glad they have started treatment. Classic symptoms. Have had GCA, not...
https://connect.mayoclinic.org/comment/1242342/
Sounds like GCA and am glad they have ... Have had GCA, not counting the HA and ... I expect to be on Actemra for another ... GCA can cause brain aneurysm, abdominal ... Actemra can cause cancer.
Hello @mhi. I've been losing weight too - 21 lbs. since mid-November. However, that's when I...
https://connect.mayoclinic.org/comment/333260/
when I was taken off Prednisone and Actemra ... (GCA) because my WBC and neutrophils ... I'm back on Actemra, every two weeks
I have been taking monthly infusions of Actemera for two year for PMR and suspected GCA....
https://connect.mayoclinic.org/comment/1366118/
have been taking monthly infusions of Actemera ... for two year for PMR and suspected GCA ... Actemera has worked great for me, no
@kathren I have several comments and questions about your post. I'm surprised that your rheumatologist said...
https://connect.mayoclinic.org/comment/1365404/
surprised that your rheumatologist said Actemra ... I have GCA and PMR, and I had very bad ... far as I know, the other drugs for GCA ... Tyenne is cheaper than Actemra, but ... I have been taking Actemra for a year
I just wanted to share an update. I've been taking Actemra infusions every 4 weeks, since...
https://connect.mayoclinic.org/comment/1367163/
I've been taking Actemra infusions ... you, I picked my poison and chose Actemra ... Before, I acquired PMR/GCA in July 2024 ... Those of you, who take Actemra, have
Thank you. I'm going to ask my rheumatologist about Actemra! Additionally, you mentioned that you were...
https://connect.mayoclinic.org/comment/1368886/
going to ask my rheumatologist about Actemra ... were diagnosed first with PMR before GCA ... m a little worried about missing a GCA ... ve read and reread the symptoms for GCA ... experience that helped you diagnose GCA
I start Acterna infusion next Monday. Diagnosed with GCA in May. Was immediately put on 40mg...
https://connect.mayoclinic.org/comment/1368692/
Diagnosed with GCA in May. ... was down to 10mg waiting to start Acterma ... have two questions for anyone taking Acterma
Yes it was Actemra (tocilizumab). It isn't so new anymore and many people are on Actemra...
https://connect.mayoclinic.org/comment/1368814/
Yes it was Actemra (tocilizumab). ... new anymore and many people are on Actemra ... for mostly GCA. ... had been recently FDA approved for GCA ... I wasn't diagnosed with GCA ...
The UK is a good case study for what happens when Actemra is stopped. In the...
https://connect.mayoclinic.org/comment/1376062/
good case study for what happens when Actemra ... In the UK, treatment of GCA with Actemra ... is working don't even consider Actemra ... rheumatologist believes long term Actemra ... term Prednisone compared to long term Actemra
I started at 60mg (due to GCA confirmed through temporal biopsies) and it took me 1...
https://connect.mayoclinic.org/comment/1375942/
I started at 60mg (due to GCA confirmed ... another six months after that to get off Actemra ... shot of Reclast as I started Pred/Actemra ... photos) Ophthalmologist confirmed not GCA
My chart at the rheumatologist's is interesting. Under problems, it lists these: 1. GCA 2. Long...
https://connect.mayoclinic.org/comment/1378427/
GCA
2. ... Use of a high risk medication (Actemra
I just met with my new rheumatologist now that I have GCA as I just got...
https://connect.mayoclinic.org/comment/1365329/
new rheumatologist now that I have GCA ... My rheumy recommends the monthly Actemra ... good health until the PMR and now the GCA ... Has anyone had success for GCA with ... Has anyone eventually gotten off Actemra
I have been on Actemra infusions for 2.5 months. I have been on prednisone for PMR...
https://connect.mayoclinic.org/comment/1367929/
I have been on Actemra infusions for ... My doctor assumes I also have GCA which ... is why I'm now on Actemra but I ... After my second Actemra infusion I definitely ... If Actemra allows me to sustain a prednisone
I was diagnosed with PMR/GCA in July 2024 and began 60 mg. of pred. With that...
https://connect.mayoclinic.org/comment/1371070/
I was diagnosed with PMR/GCA in July ... I get an Actemra infusion every four
Actemra is only approved in the US for GCA, but I know people with PMR get...
https://connect.mayoclinic.org/comment/1381042/
Actemra is only approved in the US for ... GCA, but I know people with PMR get ... PMR, since GCA can cause vision loss ... It's difficult to know if your GCA ... would rather not find out by having GCA
That’s a very good question. My first round with Giant Cell Arteritis (GCA) and Polymyalgia Rheumatica...
https://connect.mayoclinic.org/comment/1367809/
first round with Giant Cell Arteritis (GCA ... rheumatologist recommended starting Actemra ... While my GCA/PMR symptoms remained unchanged ... It’s worth noting that I receive an Actemra ... between infusions, and many of my GCA
I agree with everything you say in your post. Since many people with PMR have to...
https://connect.mayoclinic.org/comment/1376133/
years, it makes sense that people with GCA ... researchers now believe that PMR and GCA ... I just finished my first year on Actemra ... I strongly prefer Actemra to prednisone ... due to the lack of side effects for Actemra
I engaged in all the 'bad habits' during my youth, at the same time, being a...
https://connect.mayoclinic.org/comment/1373296/
I was diagnosed with PMR/GCA at 68 yo ... Prednisone and take monthly infusions of Actemra
What other conventional DMARDs have you tried? Methotrexate (MTX) is probably used most often but there...
https://connect.mayoclinic.org/comment/1377965/
The thread about Actemra was originally ... I'm a big fan of Actemra (tocilizumab ... A year of Actemra allowed me to taper ... biologics that are FDA approved for GCA ... suggests the outlook for treating PMR and GCA
Sorry the prednisone and methotrexate has not worked for you. @dadcue has mentioned Actemra helped him...
https://connect.mayoclinic.org/comment/1377941/
@dadcue has mentioned Actemra helped ... discussion here:
-- Anyone tried Actemra ... FDA approved for GCA:
https://connect.mayoclinic.org ... /discussion/actemra-tocilizumab-to-treat-pmr
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