Clear Search

To narrow your search, try adding quotation marks around phrases.

Search tips
  • Search by keywords or complete phrases.
  • To narrow your search, try adding quotation marks around phrases.
  • Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.
902 total results
Comments (872)
Sounds like GCA and am glad they have started treatment. Classic symptoms. Have had GCA, not...
Sounds like GCA and am glad they have ... Have had GCA, not counting the HA and ... I expect to be on Actemra for another ... GCA can cause brain aneurysm, abdominal ... Actemra can cause cancer.
Discussion: Possible GCA
Posted: Feb 21, 2025
Hello @mhi. I've been losing weight too - 21 lbs. since mid-November. However, that's when I...
when I was taken off Prednisone and Actemra ... (GCA) because my WBC and neutrophils ... I'm back on Actemra, every two weeks
@stonewheel It used to be that prednisone was the "only option" for PMR/GCA. The side effects...
the "only option" for PMR/GCA ... were FDA approved for either PMR or GCA ... have any serious side effects from Actemra ... GCA patients have an easier time being
Posted: Jan 3 8:39am
@chamberlainrebekah5 Here is a thread that has been active lately - https://connect.mayoclinic.org/discussion/who-is-on-rinvoq-for-gca-vs-actemra/ I have been taking...
connect.mayoclinic.org/discussion/who-is-on-rinvoq-for-gca-vs-actemra ... / I have been taking weekly Actemra ... Are you miserable because of GCA or
Discussion: Traveling with PMR
Posted: Feb 13 12:45pm
@alonna I was similar to you when I was taking prednisone to treat GCA. I would...
when I was taking prednisone to treat GCA ... I started taking Actemra 6 weeks after ... I'm still taking Actemra, but I
Posted: Mar 1 7:36pm
Hi! I am new to this phase. My hospital lab shows my IL-6 at a ‘high’...
I tested because I might have GCA and ... would like to have Actemra prescribed ... did you have that determined your GCA
Posted: Mar 2 3:12pm
@jeanrod825 My husband and I ate at a very good restaurant! We both felt something off...
emergency room for testing (Lupus, GCA ... WITH NO EVIDENCE FOUND TO SUPPORT GCA ... lowered dose PREDNISONE tapered to ACTEMRA ... " GCA?? ... GCA IS supposed to directly affect
@pappy6 I still do an Actemra infusion every month. There is some flexibility and sometimes the...
@pappy6 I still do an Actemra infusion ... have not been able to completely stop Actemra ... patient with an isolated case of PMR or GCA ... not so sure isolated cases of PMR or GCA
I've been on monthly Actemra infusions since January 2025. Actemra allowed me to taper off of...
I've been on monthly Actemra infusions ... While on Actemra, I had gotten COVID ... Actemra told me that he will taper me ... but not what they were before PMR/GCA ... was always very active before PMR/GCA
@julieahp Hello. I am interested in your experience with Tyenne. I have GCA and started on...
I have GCA and started on the usual ... high dose pred infusions, then added Actemra ... but it was quite painful compared to Actemra
Is Rinvoq working for you? Have you tapered off Prednisone? I'm currently being treated with a...
treated with a monthly infusion of Actemra ... I am happy with Actemra but I'm ... options besides Prednisone to treat PMR/GCA ... is light-years ahead of other PMR/GCA
Posted: Feb 12 6:02am
@caroljeand Let's hope so! I don't want to stop the celebration but the game isn't over...
Actemra was working for PMR/GCA but ... my ophthalmologist said Actemra wasn ... My ophthalmologist switched Actemra ... memo wasn't sent for treating PMR/GCA ... the "only option" for PMR/GCA