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Comments (2,416)

All biologics are expensive and the cost of Kevzara is no different. There is a loophole...

https://connect.mayoclinic.org/comment/1013655/

For people with GCA however, Actemra

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 11, 2024

I too have never heard of an MRI being used in place of a biopsy. I...

https://connect.mayoclinic.org/comment/993759/

I was diagnosed with GCA and PMR in

Discussion: PMR and Head Drop

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 8, 2024

This is all very sad that people cannot get into see a rheum. I suppose that...

https://connect.mayoclinic.org/comment/988096/

I was first diagnosed with PMR and GCA

Discussion: There is a national shortage of rheumatologists.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 29, 2023

Hi Krueg, I was diagnosed with GCA and PMR in 2017. I was on 60-80mg of...

https://connect.mayoclinic.org/comment/987551/

Hi Krueg, I was diagnosed with GCA and

Discussion: Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 28, 2023

It would have been interesting if my IL-6 level was checked before starting a biologic medication...

https://connect.mayoclinic.org/comment/948477/

https://www.actemra.com/gca/considerations

Discussion: PMR with normal blood markers

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 16, 2023

Hello @marymckeith, It sounds like you may be tapering too fast. I started at 20 mg...

https://connect.mayoclinic.org/comment/894043/

. --- GCA & PMR - Treat-to-target

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 11, 2023

Hi, yes. I have experienced severe side effects. High blood pressure, high A1C, memory loss, severe...

https://connect.mayoclinic.org/comment/868874/

I was put on 40mg for suspected GCA,

Discussion: Prednisone Side Effects

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29, 2023

I was diagnosed with GCA in 2020 and put on 80 mg. of Prednisone(so that I...

https://connect.mayoclinic.org/comment/735299/

I was diagnosed with GCA in 2020 and

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 8, 2022

Hi Jeff, glad you found this forum and most importantly you are getting relief from your...

https://connect.mayoclinic.org/comment/286769/

the PMR or even worse ( in my case) GCA

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 16, 2021

My PMR started back in 2013. And it was really touch and go with exercise but...

https://connect.mayoclinic.org/comment/619575/

recover somewhat and PMR then became GCA

Discussion: PMR and exercise: What helps you?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 25, 2021

I had an interesting experience yesterday. I'm currently at 7 mg. I started that dose last...

https://connect.mayoclinic.org/comment/1250270/

I have PMR and GCA.

Discussion: How to Slowly and Safely Taper Off Prednisone but ... no set rules.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 4 11:14am

Hi @gailg, I can't answer your question about doctors in Colorado,but I had full onset PMR...

https://connect.mayoclinic.org/comment/1120295/

I had GCA. ... The possibility of occult GCA should

Discussion: PMR with normal blood markers

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 8, 2024

What study were you a part of? About 7 years ago, my rheumatologist wanted to enroll...

https://connect.mayoclinic.org/comment/925912/

because the ongoing study was for GCA ... the same guidelines established for GCA

Discussion: What's your experience with Actemra for GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 7, 2023

Hi zaa, Hopefully you will feel much better on the Prednisone. It gave me energy and...

https://connect.mayoclinic.org/comment/616563/

Anorexia is one of the PMR, GCA symptoms ... increased risk of aortic aneurism with GCA

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 14, 2021

They ordered the biopsy and I did not have GCA. I was put on prednisone 20...

https://connect.mayoclinic.org/comment/1099650/

ordered the biopsy and I did not have GCA

Discussion: A Bizarre Change in Condition

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 5, 2024

I was diagnosed with PMR in April of 21. The low doses of prednisone, 6-7MG seemed...

https://connect.mayoclinic.org/comment/975747/

with the idea that I was experiencing GCA

Discussion: How often does PMR progress to GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 6, 2023

I won't quibble with anything your rheumatologist said. The most important thing is that you have...

https://connect.mayoclinic.org/comment/932890/

because there are many things about PMR/GCA

Discussion: New PMR patient, wondering if mornings will become pain free someday

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 19, 2023

Hi@samara66, The short stabbing pains were mostly on the right side of my face and went...

https://connect.mayoclinic.org/comment/906489/

My mother in law had GCA, and she had

Discussion: PMR diagnosed but now headache for almost a month.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 2, 2023

I also belong to a group in the UK and they are hard pressed to get...

https://connect.mayoclinic.org/comment/864788/

are hard pressed to get Actemra for GCA

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 22, 2023

I don't want anyone to be afraid once they get to single digits. SLOW SLOW This...

https://connect.mayoclinic.org/comment/860898/

Entering my third year of GCA, I finally

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 16, 2023