Actemra – search | You searched for comments

To narrow your search, try adding quotation marks around phrases.

Search tips

Search by keywords or complete phrases.
To narrow your search, try adding quotation marks around phrases.
Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.

2,070 total results

Comments (2,005)

@gaylerenee Age might be a factor. I omit part of what my rheumatologist told me when...

https://connect.mayoclinic.org/comment/900826/

when he considered starting me on Actemra

Discussion: Weaning off long term use of prednisone.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 23, 2023

Hi John. I am only on 3 mg now, so hopefully I can take a small...

https://connect.mayoclinic.org/comment/211436/

serious side effects in the booklet Actemra

Discussion: New Diagnosis of Polymyalgia Rheumatica (Husband)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 27, 2018

My name is Lynn and I am a mother of a daughter that was diagnosed with...

https://connect.mayoclinic.org/comment/55415/

(Reminade, Humira, Cimzia, Enbrel, Actemra

Discussion: Ankylosing spondylitis: anyone else?

Support Group: Spine Health

Posted: Apr 18, 2017

Trigeminal Neuralgia was dreadful. I didn't ever know when those flares would happen. The wind was...

https://connect.mayoclinic.org/comment/1100379/

Actemra allowed me to get off Prednisone

Discussion: Has Prednisone/Actemra worked to completely heal GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 6, 2024

My husband started a statin months after his PMR diagnosis (diagnosed with PMR in May 2023)....

https://connect.mayoclinic.org/comment/1065339/

still on high-dose prednisone and Actemra

Discussion: Did statin cause PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 10, 2024

It is important that you like your doctor. I didn't like the first rheumatologist I saw....

https://connect.mayoclinic.org/comment/979103/

asked me if I would be willing to try Actemra

Discussion: There is a national shortage of rheumatologists.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 12, 2023

Yes, I kept my vision. The day I was diagnosed with GCA, I went to the...

https://connect.mayoclinic.org/comment/1247936/

tapering the prednisone and taking weekly Actemra

Discussion: Are specialists necessary?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 1 9:46am

I began having symptoms at 54. Of course I didn't know it at the time but...

https://connect.mayoclinic.org/comment/1000418/

I took my last shot of Actemra Nov 14

Discussion: PMR onset under 55?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 20, 2024

Hi @redboat All these things vary so from state to state. Luckily we are still on...

https://connect.mayoclinic.org/comment/873925/

and was almost immediately put on Actemra

Discussion: California Medical Insurance Plans That Cover Actemra

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 6, 2023

Good morning, Cody: I feel with you and this dilemma tha those ILLnesses come forward the...

https://connect.mayoclinic.org/comment/868677/

on methotrexate [once a week] and Actemra

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: May 29, 2023

@johnbishop John, you are a Research MACHINE! lol. Wonderful post, with great insight and suggestions, as...

https://connect.mayoclinic.org/comment/310561/

neutrophils crashed, but still on Actemra

Discussion: Member Neuropathy Journey Stories: What's Yours?

Support Group: Neuropathy

Posted: Feb 19, 2021

I was diagnosed with giant cell arteritis/temporal arteritis over 3 and a half years ago. The...

https://connect.mayoclinic.org/comment/88704/

drug for about a year now called Actemra

Discussion: Adjusting to life with temporal arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 13, 2019

I will be glad to add to the discussion in any way I can. I have...

https://connect.mayoclinic.org/comment/1013722/

glaucoma) and don't want to do Actemra

Discussion: Crohn's plus Polymyalgia Rheumatica

Support Group: Autoimmune Diseases

Posted: Feb 11, 2024

Hello everyone. I was diagnosed with Giant Cell Arteritis in April of this year, after having...

https://connect.mayoclinic.org/comment/1352561/

In addition, I get Actemra infusions

Discussion: Giant Cell Arteritis Diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 20 2:23pm

I was able to get off Prednisone after Actemra was tried. I hope it also works...

https://connect.mayoclinic.org/comment/1066634/

was able to get off Prednisone after Actemra ... was given a new lease on life after Actemra

Discussion: PMR target areas

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 12, 2024

I think much was learned from people in the past who had RA and were treated...

https://connect.mayoclinic.org/comment/1010714/

work for me and for now at least, Actemra

Discussion: How do I get my Rheumatologist to listen ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 6, 2024

Thank-you for the update. Sounds like you are making progress with tapering prednisone. I developed peripheral...

https://connect.mayoclinic.org/comment/860854/

I'm glad that Actemra seems to be

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 16, 2023

Hello @paddington -- Welcome to Mayo Clinic Connect. Thank you for the private message and allowing...

https://connect.mayoclinic.org/comment/197347/

prescribed a biologic steroid-sparing agent Actemra ... My insurance company approved the Actemra

Discussion: Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 19, 2020

Was Actemra providing you with 24 hour pain relief? The only reason I ever spit my...

https://connect.mayoclinic.org/comment/1382422/

Was Actemra providing you with 24 hour

Discussion: Does you doctor recommend splitting?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: 6 days ago

I am 80 year old woman and I was first diagnosed with PMR in 2015 ....

https://connect.mayoclinic.org/comment/1008626/

prednisone and a weekly injection of Actemra

Discussion: Temporal Arteritis, PMR, RA

Support Group: Autoimmune Diseases

Posted: Feb 2, 2024