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Comments (1,932)
Wow. My father has PMR (and may or may not have had GCA) and is very...
s currently been holding at 7.5 mg prednisone ... reluctant to begin a trial dose of prednisone ... My dad also requires a very slow taper ... realize it could take so long to get off ... prednisone, that adrenal insufficiency
I haven't had GCA but have had 2 occurrences of PMR. First time took 3 and...
time took 3 and half years to get off ... of prednisone and I was in remission ... The second time I was able to taper ... off in 1 and half years which I think ... of prednisone.
I have been off and on prednisone for about 30 years. At the beginning I could...
I have been off and on prednisone for ... At the beginning I could be off for ... daily and then 5 mg and now 10 mg tapering
Hi, @jimbontexas, what is your first name? My name is Ame Stanko and I live in...
I was treated with high doses of Prednisone ... starting March 16th and then weaned off ... I can't recall what my taper was
Support Group: Autoimmune Diseases
Posted: May 31, 2023
Hello @leon1649, I think the average length of time for most folks with PMR to get...
with PMR to get into remission and taper ... off of prednisone is 2 to 5 years. ... and it took me 1 and half years to taper ... off of prednisone. ... Do you keep a daily log with your prednisone
I've posted to this thread before, but I happen to be a registered dietitian who eats...
I started with 10 mg. of Prednisone ... and it took over a year to wean off ... again, so I went back on 2 mg. and tapered ... off in about 6 months.
Posted: Aug 3, 2023
I had 2 different eras of prednisone use. The first 20 years were characterized by 60-100...
rapidly tapered to zero in a 1-2 months ... I never had any problems tapering off ... Then I could never taper off prednisone ... I tried but I just couldn't taper ... off.
Hello @chzuck, I see that you have already met another new member @kipster and I would...
I was started at 20 mg prednisone for ... off and I stayed in remission until ... off the second time around which I ... but I'm not sure it's the prednisone ... off of prednisone?
Thanks for your reply John. My rheumatologist has said a few times that I may end...
After 14 months, recently tapering off ... pain return, I am back on 5 mg. of Prednisone ... As I taper to 4 it’s getting bad again
Hi @mpm, You definitely need to advocate for yourself. My Mayo rheumatologist started me on 20...
rheumatologist started me on 20 mg prednisone ... first time took me 3 and half years to taper ... off and the second time around 6 years ... later took me 1 and a half years to taper ... off.
Posted: Aug 20, 2023
I have peripheral neuropathy too. It was confirmed by an EMG and a nerve conduction study...
that it seems to be improving since I tapered ... off prednisone. 1) Prednisone is ... Prednisone also interferes with vitamin ... Because of taking prednisone, I was ... I have been off prednisone for 3 years
Okay, just about ready to give up. On 17.5 Prednisone down from 20 started in April....
On 17.5 Prednisone down from 20 started ... I wanted to try Prednisone and for two ... I tapered to 15 and had to start again ... Maybe I was better off when I got cortisone ... How can I ever get off it?
Posted: Aug 29, 2023
I am 57 years old and have had PMR for 2 years now. Started on 20...
Started on 20 mg. of prednisone initially ... and tapered down to over the 2 years ... I refuse to back up on prednisone dosage ... I am beginning to think prednisone is ... addictive as the tapering off is as
Posted: Apr 28, 2012
Hi @fam8284, I understand your reluctance to take Prednisone, but most people who suffer from PMR...
understand your reluctance to take Prednisone ... artery biopsy and put on 40 mg, with tapering ... it a year and a half, and have been off ... prednisone now for nearly a year. ... She took the Prednisone and was cured
@curtvapor How long have you taken Actemra? My adrenals recovered in spite of 12 years of...
I had to stay on 3 mg of prednisone ... took a long time to get completely off ... I was unable to taper off prednisone ... wondering when I will be able to be off ... rheumatologist thinks I'm better off
Posted: Nov 4, 2023
I'm happy Actemra works for you. I'm going in the opposite direction with Actemra. I started...
I was able to get off prednisone but ... After I tapered off prednisone the first ... I could not taper off prednisone while ... I tapered off prednisone the second ... neurosurgeon said I would need to be off
Posted: Nov 5, 2023
I don't know all the details but it was 28% of people who were not doing...
were not doing particularly well with tapering ... off prednisone. "The approval ... active PMR who flared on ≥7.5 mg/day prednisone ... or equivalent during taper." ... Prednisone is very difficult to stop
Posted: Sep 26, 2023