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Comments (1,932)
Wow. My father has PMR (and may or may not have had GCA) and is very...
https://connect.mayoclinic.org/comment/861232/
s currently been holding at 7.5 mg prednisone ... reluctant to begin a trial dose of prednisone ... My dad also requires a very slow taper ... realize it could take so long to get off ... prednisone, that adrenal insufficiency
I haven't had GCA but have had 2 occurrences of PMR. First time took 3 and...
https://connect.mayoclinic.org/comment/848777/
time took 3 and half years to get off ... of prednisone and I was in remission ... The second time I was able to taper ... off in 1 and half years which I think ... of prednisone.
I have been off and on prednisone for about 30 years. At the beginning I could...
https://connect.mayoclinic.org/comment/872112/
I have been off and on prednisone for ... At the beginning I could be off for ... daily and then 5 mg and now 10 mg tapering
Hi, @jimbontexas, what is your first name? My name is Ame Stanko and I live in...
https://connect.mayoclinic.org/comment/869926/
I was treated with high doses of Prednisone ... starting March 16th and then weaned off ... I can't recall what my taper was
Hello @leon1649, I think the average length of time for most folks with PMR to get...
https://connect.mayoclinic.org/comment/871715/
with PMR to get into remission and taper ... off of prednisone is 2 to 5 years. ... and it took me 1 and half years to taper ... off of prednisone. ... Do you keep a daily log with your prednisone
I've posted to this thread before, but I happen to be a registered dietitian who eats...
https://connect.mayoclinic.org/comment/907293/
I started with 10 mg. of Prednisone ... and it took over a year to wean off ... again, so I went back on 2 mg. and tapered ... off in about 6 months.
Sara, I wish I could say that gummies are the answer for weight loss. I think...
https://connect.mayoclinic.org/comment/908568/
It did take me 19 months to taper off ... Prednisone, but I wouldn't say
I had 2 different eras of prednisone use. The first 20 years were characterized by 60-100...
https://connect.mayoclinic.org/comment/909656/
rapidly tapered to zero in a 1-2 months ... I never had any problems tapering off ... Then I could never taper off prednisone ... I tried but I just couldn't taper ... off.
Hello @chzuck, I see that you have already met another new member @kipster and I would...
https://connect.mayoclinic.org/comment/911028/
I was started at 20 mg prednisone for ... off and I stayed in remission until ... off the second time around which I ... but I'm not sure it's the prednisone ... off of prednisone?
Thanks for your reply John. My rheumatologist has said a few times that I may end...
https://connect.mayoclinic.org/comment/620474/
After 14 months, recently tapering off ... pain return, I am back on 5 mg. of Prednisone ... As I taper to 4 it’s getting bad again
Hi @mpm, You definitely need to advocate for yourself. My Mayo rheumatologist started me on 20...
https://connect.mayoclinic.org/comment/916054/
rheumatologist started me on 20 mg prednisone ... first time took me 3 and half years to taper ... off and the second time around 6 years ... later took me 1 and a half years to taper ... off.
I have peripheral neuropathy too. It was confirmed by an EMG and a nerve conduction study...
https://connect.mayoclinic.org/comment/842749/
that it seems to be improving since I tapered ... off prednisone.
1) Prednisone is ... Prednisone also interferes with vitamin ... Because of taking prednisone, I was ... I have been off prednisone for 3 years
Okay, just about ready to give up. On 17.5 Prednisone down from 20 started in April....
https://connect.mayoclinic.org/comment/921096/
On 17.5 Prednisone down from 20 started ... I wanted to try Prednisone and for two ... I tapered to 15 and had to start again ... Maybe I was better off when I got cortisone ... How can I ever get off it?
I am 57 years old and have had PMR for 2 years now. Started on 20...
https://connect.mayoclinic.org/comment/69250/
Started on 20 mg. of prednisone initially ... and tapered down to over the 2 years ... I refuse to back up on prednisone dosage ... I am beginning to think prednisone is ... addictive as the tapering off is as
Hi @fam8284, I understand your reluctance to take Prednisone, but most people who suffer from PMR...
https://connect.mayoclinic.org/comment/926562/
understand your reluctance to take Prednisone ... artery biopsy and put on 40 mg, with tapering ... it a year and a half, and have been off ... prednisone now for nearly a year. ... She took the Prednisone and was cured
When I tapered off to 0, my hands were painful and the middle finger of my...
https://connect.mayoclinic.org/comment/956714/
When I tapered off to 0, my hands were ... As soon as I went back on 5 mg prednisone
@curtvapor How long have you taken Actemra? My adrenals recovered in spite of 12 years of...
https://connect.mayoclinic.org/comment/959039/
I had to stay on 3 mg of prednisone ... took a long time to get completely off ... I was unable to taper off prednisone ... wondering when I will be able to be off ... rheumatologist thinks I'm better off
I'm happy Actemra works for you. I'm going in the opposite direction with Actemra. I started...
https://connect.mayoclinic.org/comment/959298/
I was able to get off prednisone but ... After I tapered off prednisone the first ... I could not taper off prednisone while ... I tapered off prednisone the second ... neurosurgeon said I would need to be off
I am a few weeks into PMR, having good results with prednisone and now starting my...
https://connect.mayoclinic.org/comment/942277/
into PMR, having good results with prednisone ... and now starting my tapering off over
I don't know all the details but it was 28% of people who were not doing...
https://connect.mayoclinic.org/comment/937114/
were not doing particularly well with tapering ... off prednisone.
"The approval ... active PMR who flared on ≥7.5 mg/day prednisone ... or equivalent during taper." ... Prednisone is very difficult to stop
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