Actemra – search | You searched for comments

To narrow your search, try adding quotation marks around phrases.

Search tips

Search by keywords or complete phrases.
To narrow your search, try adding quotation marks around phrases.
Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.

2,073 total results

Comments (2,008)

I started on 60 mg. of Prednisone last July 2024. Beginning of December, I was at...

https://connect.mayoclinic.org/comment/1302833/

rheumatologist and told her I wanted to get Actemra

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 12 7:42pm

Exactly ... people love to blame one thing and not hold something else accountable. More often...

https://connect.mayoclinic.org/comment/1270406/

I'm on Actemra and my cholesterol

Discussion: Anyone tried Kevzara for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 30 5:14pm

Thank you both for your responses! I have had osteoporosis for a long time, and that...

https://connect.mayoclinic.org/comment/1013794/

made this transition, I could use Actemra

Discussion: Crohn's plus Polymyalgia Rheumatica

Support Group: Autoimmune Diseases

Posted: Feb 11, 2024

Thank you for sharing your long experience with PMR. It puts my 2 and a half...

https://connect.mayoclinic.org/comment/858127/

I plan to try Actemra probably starting

Discussion: PMR and Inflammation Markers

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 11, 2023

Other than an IL-6 level being interesting to know, I haven't had that level checked. I...

https://connect.mayoclinic.org/comment/1226858/

prior to starting a biologic like Actemra

Discussion: what does the community consider a normal SED rate for GCA/PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 1 10:19am

My worst time is definitely in the morning. I can barely walk due to hip pain...

https://connect.mayoclinic.org/comment/1302495/

reducing 1 mg a month 🤞…I get Actemra

Discussion: When is your worse time of day with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 12 11:52am

Thanks for starting the group in Strava. I'll join later today after I complete my walk....

https://connect.mayoclinic.org/comment/1279804/

prednisone per day and take weekly Actemra

Discussion: Exercise is so important

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 12 7:16am

I saw my PCP twice, it was my ophthalmologist who sent me to ER when I...

https://connect.mayoclinic.org/comment/931955/

Actemra is the medication my rheumatologist

Discussion: Think I have Giant Cell Arteritis (or GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 18, 2023

Addison's disease is primary adrenal insufficiency. With Addison's disease, the adrenal glands make too little of...

https://connect.mayoclinic.org/comment/1367309/

Actemra will make it easier to taper

Discussion: Damage to adrenals? Addison's Disease?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 9 7:11pm

That is a good question! I think most rheumatologists are reluctant to start elderly people on...

https://connect.mayoclinic.org/comment/1378411/

My treatment with Actemra has achieved

Discussion: Anyone having any luck with treating PMR without any specific medicati

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 24 4:26pm

No ... only anecdotal accounts of what I read on forums like this. I don't have...

https://connect.mayoclinic.org/comment/1317602/

I'm happy that Actemra works for

Discussion: PMR and the taper

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 31 10:04pm

I'm glad you are starting Actemra and it takes a few weeks, maybe even more, before...

https://connect.mayoclinic.org/comment/865410/

I'm glad you are starting Actemra

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 23, 2023

After 9 months of watching my mobility slowing suffer to the point of not being able...

https://connect.mayoclinic.org/comment/860648/

was scheduled to start my shots of Actemra

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 16, 2023

So delighted to read the daily "scientific experiment" of our autoimmune life journey. Then the "Spoon...

https://connect.mayoclinic.org/comment/1372801/

Tomorrow I will schedule my first Actemra

Discussion: How do you plan your day and conserve energy? Are you a Spoonie?

Support Group: Autoimmune Diseases

Posted: Aug 17 2:04pm

I was slated for an "urgent" lumbar spinal fusion 10 years ago for severe and acute...

https://connect.mayoclinic.org/comment/1099693/

I was off Actemra and was taking Prednisone ... significant amount of pain when I'm on Actemra ... decreased in size after I restarted Actemra

Discussion: Prednisone is like running UP a DOWN staircase

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 5, 2024

I was diagnosed with PMR and GCA in late June 2024. I have had a good...

https://connect.mayoclinic.org/comment/1249119/

I have had a good experience with Actemra

Discussion: Actrema advice

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 3 5:18am

I started on 15 mg prednisone, went up to 20 a week later. I finally saw...

https://connect.mayoclinic.org/comment/1218993/

I haven't been offered Actemra,