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When is your worse time of day with PMR?
I am wondering if anyone else is experiencing this like I am. Before I was diagnosed, when I got up in the morning I was in terrible shape, hardly walk or move my arms etc, and as the day went on I felt better. The afternoons and early evenings were pretty good comparatively. Then I got the correct diagnosis and they started me on the prednisone at 30mg a day. Took my pain away and a month later, started to taper, got down to 15 mg a day and couldn't stand the pain and now I am right back up where I started at 30mg. Ugh!! I don't like the prednisone and I don't like the PMR !! Anyway, now I am finding that I'm not too bad in the morning when I get up and by the mid afternoon I am running completely out of steam and have quite a bit of pain/soreness some days. Not every day is the same. Some days I'm not too bad and others it's down right nasty!! I feel like this is just the opposite to everything I read about PMR, I thought it was worse in the morning and as the day goes on you feel better.
Does anyone else experience this as well?
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I had my most energy in the morning. I had a terrible time sleeping. My arms and shoulders were so sore that I could not find a good spot. I had to pull myself out of bed. Of course once I started on steroids then I was fine. My life was normal. I still had the most energy in the morning and afternoons and evenings I was worn out. I tapered down to my lowest possible dose of pain tolerance. I then stayed there for 6 months and went to zero prednisone in two weeks. my lowest possible dose was 10mg while the PMR was acting up.
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4 ReactionsI have had PMR for 4 years and been on prednisone about 3.5 years. Before I was diagnosed I had the classic symptoms which were much worse in the morning and were better as the day wore on. Like you, on prednisone it has been somewhat reversed. I take prednisone in the morning and feel OK after an hour or two. Getting toward the evening I have more pain. For stretches of time I will wake up around 2 AM in pain on maybe 50% of nights. The interesting thing is that if I stay awake the pain will ease off some by morning even if I don't take any Tylenol. Prednisone mimics our natural hormone cortisol which has its own daily cycle of ups and downs. Throw in activity level and stress and it can be hard to figure out what's going on, but yes I generally feel better in the morning and worse toward evening.
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4 ReactionsAll good info - thank you. So exhausted some days!! I just want to be done with all this.
Thank you for your response. Hope you are feeling better.
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2 ReactionsMy worst time is definitely in the morning. I can barely walk due to hip pain and now my knees are shot …probably requiring replacement. The pain lessens as day wears on but is always there after I sit down . It takes a few minutes to reduce it once I get going again. I’m down to 7 mg / pred atm and reducing 1 mg a month 🤞…I get Actemra shots once a week and that really can reduce the pain but it wears off after 3 days …I’m shocked at my reduced mobility but don’t know what to do about it other than push through..nights are good when I go to bed but a few hours later pain wakes me requiring stretching and change of position.I usually have to to that every 2-3 hours . I’m still able to reduce the prednisone so far …so hopeful that will continue…then my nights will be more restful when I’m off it completely.
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6 ReactionsI have the same problem ,have been like this 3years. Seems like any strenuous activity most days makes the pain worse in afternoon and evening . I feel like I get so many mixed messages. I am now tampering down on prednisone and will be taking methatrexate instead . I hope this will help. I'm also on actemra infusions for aterites. Doesn't seem to help the pmr. I'm curious if others find doing anything some days make your pain worse.
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2 ReactionsI'm just wondering why doses of prednisone are so different. Some start at 10 15, you 30? I took 15 and after a daytime pain was gone. Went down to down to 10 and now reducing 1 mg every 3 weeks. Tapering is hell. Extreme fatigue, heart racing up to 173 and bad throat pain for 20 minutes! Anxiety
Well I said to the rheumatologist, I've had PM
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2 ReactionsI'm just wondering why doses of prednisone are so different. Some start at 10 15, you 30? I took 15 and after a daytime pain was gone. Went down to down to 10 and now reducing 1 mg every 3 weeks. Tapering is hell. Extreme fatigue, heart racing up to 173 and bad throat pain for 20 minutes! Anxiety
Well I said to the rheumatologist, I've had PMS, PMR, there's no PMQ is there?
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1 Reaction@happywhenhealthy
Sometimes dosing is based on weight, but sometimes it's at the doctor's whim so to speak. My rheumatologist started me at 15mg and I may as well have taken a baby aspirin. It took 25mg for me to feel any relief, but I was 6'3" and 245# at the time. Some people have more severe symptoms too. Personally, I think there are different versions of what we call PMR.
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You seem to have symptoms like I do. I've had this for 3yrs and having a tough time getting of prednisone. I get under 10mg and it flares back up. Good luck and hope you get better soon
Pre-prednisone PMR ( period that lasted at least 2 years): Upon rising straight through till 4 PM.
For the last half year or so before pred, there was no late in the day easing of symptoms.