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582 total results
Comments (562)
You wrote: "How are you doing with Actemra?" Actemra seems to be working well for me,...
blood tests are very near my pre-PMR/GCA ... At one point before treatment it hit ... Before treatment, during the height
Posted: Jul 6, 2023
I have GCA and it took me a long time to get to 10mg, three years,...
I have GCA and it took me a long time ... is still working on coming up with treatment
Posted: Jun 16, 2023
What does remission feel like??? For me it is being off prednisone first and foremost. The...
Notice that PMR and GCA were on the ... The treatment for secondary adrenal ... Otherwise the treatment is a small maintenance
I received Actemra for PMR 4 years ago.. Actemra was requested and approved. Actemra works very...
other autoimmune disorders but not GCA ... prednisone for more than 12 years for the treatment ... PMR is mediated by IL-6 mimicking GCA ... should follow recommendations for treatment ... recently been FDA approved for the treatment
Thanks for your comments. My Prednisone tapering schedule goes down to 10 mg in 2 weeks,...
non-cranial Giant Cell Arteritis (GCA ... My Actemra & Prednisone treatment ... exactly the one used to treat the GCA ... nejmoa1613849 Perhaps non-cranial GCA
Hello~I'm so happy to have found this group. When I lost the sight in my left...
left eye and was then diagnosed with GCA ... I found a support group for PMR/GCA ... considered the side effects part of the treatment
I would also suggest the arterial biopsy at the temple to rule out a cousin of...
Steroids are a part of the ongoing treatment ... have a friend with PMR, and two with GCA ... early stages of being diagnosed with GCA
My inflammation markers (ESD and CRP) are both low normal (EDD = 4 mm/hr and CRP...
It is far, far less than before treatment ... was diagnosed with PMR and possible GCA ... to the Actemra trials for treating GCA ... In addition to the pain before treatment ... have a stroke (this happened after treatment
Posted: Apr 10, 2023
Here's my understanding of what I will be dealing with in terms of the payment schemes...
will cover just under 4 months of treatment ... prescription for Actemra to treat GCA ... combination of PMR and non-cranial GCA ... GCA only indicated by blood markers ... after weeks to months of prednisone treatment
I wouldn't think Genetech would care about the diagnosis as long as a doctor thinks Actemra...
evidence that "long term" treatment ... the same inflammation mechanism as GCA ... Since Actemra was FDA approved for GCA ... likely that PMR would also respond to treatment
I sympathize with you! I was diagnosed with PMR and took prednisone for 13 years before...
Therein lies the problem with long term treatment ... Even GCA is difficult to diagnose after
Discussion: PMR and RA
Support Group: Autoimmune Diseases
Posted: Feb 9, 2023
@joeblo746, This is from 2017 and mentions Hydroxychloroquine as a PMR treatment although I had not...
mentions Hydroxychloroquine as a PMR treatment ... Although 40% to 60% of patients with GCA ... Latest Advances in the Diagnosis and Treatment ... Although this site rates the treatments ... www.stuffthatworks.health/polymyalgia-rheumatica/treatments
@joeblo746, If the 20 mg doesn't get it done for you it's time to have a...
that have had Giant Cell Arteritis (GCA ... their PMR generally have to start treatment
Posted: Aug 17, 2022
Hi @mzamyl, my rheumatologist told me that tapering is a fine balancing act. A doctor friend...
prednisone is needed - with PMR and GCA ... Eventually PMR and GCA go away. ... with this disease before there was a treatment
I don't have the time to research when I last wrote but, short story, had Grover's...
Then in 2020 I developed GCA, went on ... husband's death brought on the GCA ... only thing I have not done is the UVA treatment
Support Group: Skin Health
Posted: Feb 22, 2022