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855 total results
Comments (781)
I’m trying to connect with someone who not only has multiple myeloma but also amyloidosis to...
https://connect.mayoclinic.org/comment/873112/
only has multiple myeloma but also amyloidosis
@loribmt thank you for this really helpful post, Lori! I had shortness of breath since 2013,...
https://connect.mayoclinic.org/comment/1041665/
year later finally diagnosed with amyloidosis ... almost 20% of patients with MM have Amyloidosis
Ty I have been checked for amyloidosis and I don't have it. I believe mine was...
https://connect.mayoclinic.org/comment/102962/
Ty I have been checked for amyloidosis
Hi @marykatr, your post led me to do a bit of internet searching. I learned that...
https://connect.mayoclinic.org/comment/1183818/
Willebrand Syndrome with Primary (AL) Amyloidosis ... your husband first diagnosed with AL Amyloidosis
My husband was diagnosed with MGUS not long ago. He went to a cardiologist in Jacksonville...
https://connect.mayoclinic.org/comment/931005/
after being diagnosed with Cardiac Amyloidosis ... and the Cardiologist specialized in Amyloidosis
An "easy" test for amyloidosis is a fat pad biopsy in which the doctor removes a...
https://connect.mayoclinic.org/comment/1450003/
An "easy" test for amyloidosis ... multiple symptoms that pointed to amyloidosis
I have since been diagnosed with AL Amyloidosis. Kappa Light Chain restricted. I am receiving treatment...
https://connect.mayoclinic.org/comment/1226891/
have since been diagnosed with AL Amyloidosis
@gman007 Just a small thing. Neuropathy can come from many different disorders. Yours must be from...
https://connect.mayoclinic.org/comment/156324/
Mine is from amyloidosis.
With cardiac TTR-wild type, what are the advantages/disadvantages of CRT (cardiac resynchronization therapy-defibrillator) in improving EF,...
https://connect.mayoclinic.org/comment/381145/
improving EF, Afib, and reducing amyloidosis
Relative to previous question about solid organ transplant and familial amyloidosis, concern is about wild type...
https://connect.mayoclinic.org/comment/381155/
solid organ transplant and familial amyloidosis
FLC is free light chains (kappa and lambda). Measurement of these is used to help diagnoses...
https://connect.mayoclinic.org/comment/1144049/
also monitor multiple myeloma and amyloidosis
@njcarolnjn Hi, my friend. Just read your note, and recognize myself in it. I knew I...
https://connect.mayoclinic.org/comment/72263/
learned a lot about various forms of Amyloidosis ... I have some form of FreeLiteChain Amyloidosis ... I may have such things as AL (Amyloidosis ... at HTTPS://bit.Ly/1w7j4j8, titled Amyloidosis ... Series 13 or Amyloidosis Series 12.
@casey1329 My husband who is 80 yrs old has been suffering for months with the same...
https://connect.mayoclinic.org/comment/900586/
as well as finding he has Cardiac Amyloidosis ... hematologist ordered 2 biopsies to confirm Amyloidosis ... : the results confirmed Amyloidosis ... these proteins which are causing his Amyloidosis ... He started with Vyndamax for his Amyloidosis
Hi @honeymamabee, I expanded the title of your discussion to reflect your question and added it...
https://connect.mayoclinic.org/comment/1117967/
- Cardiac Amyloidosis
https://connect.mayoclinic.org ... /discussion/cardiac-amyloidosis-1/
My diagnosis is in. Negative for amyloidosis. A hypertrophic, asymmetrical heart wall septum, plus a slightly...
https://connect.mayoclinic.org/comment/1220047/
Negative for amyloidosis. ... lambda was the original concern for amyloidosis ... pad) biopsy were all negative for amyloidosis
@lisabeans Perhaps you need to rule out a few things. I would start by ruling out...
https://connect.mayoclinic.org/comment/137327/
deposit disease, or commonly called Amyloidosis ... find a list of many of the common Amyloidosis ... Search for Amyloidosis, then study that
@kibwezi Hi. One of the triggers of Sjogren's, and SICCA which is very close to Sjogren's,...
https://connect.mayoclinic.org/comment/170411/
of the Protein Deposit Disease, or Amyloidosis ... at ALNYLAM.com, Mayoclinic.org, and Amyloidosis ... Read the stuff on various forms of Amyloidosis
With both psoriatic and rheumatoid arthritis, and lung lesions, you are in the zone where it...
https://connect.mayoclinic.org/comment/143209/
yourself checked for some form of amyloidosis ... doctor you see is not experienced with amyloidosis ... Call the amyloidosis foundation or Mayo
Hi Becky, if you go to this site again that @colleenyoung posted, you’ll see a box...
https://connect.mayoclinic.org/comment/738621/
some current conversations regarding amyloidosis ... Diagnosed with AL Amyloidosis. ... connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what
@kayabbott I had the abdomen biopsy that came back negative. However, I had a spinal biopsy...
https://connect.mayoclinic.org/comment/1456295/
spinal biopsy and tested positive for amyloidosis
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