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Comments (749)
Relative to previous question about solid organ transplant and familial amyloidosis, concern is about wild type...
https://connect.mayoclinic.org/comment/381155/
solid organ transplant and familial amyloidosis
@njcarolnjn Hi, my friend. Just read your note, and recognize myself in it. I knew I...
https://connect.mayoclinic.org/comment/72263/
learned a lot about various forms of Amyloidosis ... I have some form of FreeLiteChain Amyloidosis ... I may have such things as AL (Amyloidosis ... at HTTPS://bit.Ly/1w7j4j8, titled Amyloidosis ... Series 13 or Amyloidosis Series 12.
Hi @jebcyn Welcome to Mayo Connect. It’s inspirational that you’re a 10 year survivor! Would you...
https://connect.mayoclinic.org/comment/782272/
Would you mind sharing your AL Amyloidosis
Hi Becky, if you go to this site again that @colleenyoung posted, you’ll see a box...
https://connect.mayoclinic.org/comment/738621/
some current conversations regarding amyloidosis ... Diagnosed with AL Amyloidosis. ... connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what
With CHF symptoms-SOB, fatigue, along with irregular heart rate, and preserved ejection factor, you should ask...
https://connect.mayoclinic.org/comment/885239/
physician to also test for cardiac amyloidosis
As you might remember, I have Cancer>MM>Amyloidosis>Gelsolin, among other things. As you know, Gelsolin is a...
https://connect.mayoclinic.org/comment/621871/
might remember, I have Cancer>MM>Amyloidosis ... As you know, Gelsolin is a form of Amyloidosis
You can also google -- Isolated cardiac amyloidosis as well as stiff heart syndrome -- one...
https://connect.mayoclinic.org/comment/102943/
can also google -- Isolated cardiac amyloidosis
Hi Patrick! I was diagnosed with Amyloidosis in March of this year, however I do not...
https://connect.mayoclinic.org/comment/282774/
I was diagnosed with Amyloidosis in
@oliviahutson My husband was suffering from the same symptoms except the bzck issues. He visited the...
https://connect.mayoclinic.org/comment/906775/
cardiologist diagnosed him with Cardiac Amyloidosis ... The amyloidosis was causing all his ... Mayo this week to check which type of Amyloidosis ... Amyloidosis is a very complicated condition
You definitely need alcohol septal ablation surgery. I had HOCM and had the surgery. I still...
https://connect.mayoclinic.org/comment/1162426/
I also have cardiac amyloidosis (stiff
Hi @jan52241. Welcome to Connect! I'm sorry to hear you have felt alone in this diagnosis...
https://connect.mayoclinic.org/comment/104684/
mvpdda and @tmousetis who also have amyloidosis ... want to look at this thread on AL Amyloidosis ... connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what
Hi Old Karl @oldkarl -- I thought about you when I received an email update from...
https://connect.mayoclinic.org/comment/92438/
with hereditary transthyretin (hATTR) amyloidosis ... progression in patients with hATTR amyloidosis ... polyneuropathy from hereditary transthyretin amyloidosis
@sousou Hi, Saida. Glad to help. And for your question, ABSOLUTELY Amyloidosis causes sever constipation. And...
https://connect.mayoclinic.org/comment/179554/
And for your question, ABSOLUTELY Amyloidosis ... A great place to start is the Amyloidosis ... I hope you have downloaded by Amyloidosis
Labs were done prior to the office visit Repeat labs and follow-up office visit in 3...
https://connect.mayoclinic.org/comment/753810/
care of radiologist specializing in amyloidosis
Hi @jan44, I'm sure @vmarra would appreciate connecting with you. I see AL amyloidosis is a...
https://connect.mayoclinic.org/comment/775150/
I see AL amyloidosis is a new diagnosis
@flcrakr1 good morning! How are you doing with your amyloidosis and multiple myeloma? Did you have...
https://connect.mayoclinic.org/comment/656007/
How are you doing with your amyloidosis
Amy, just to be sure you understand clearly, I have been studying amyloidosis for about 18...
https://connect.mayoclinic.org/comment/108549/
understand clearly, I have been studying amyloidosis ... primary systemic hereditary light chain amyloidosis ... I bought a very expensive book, "Amyloidosis ... It is free, usually from www.amyloidosis.org
Hi @azjulie, welcome to the caregivers group on Connect. We have members here who have experience...
https://connect.mayoclinic.org/comment/112032/
discussion:
- Current diagnosis is Amyloidosis ... mayocl.in/2cpKVI7
- Diagnosed with AL Amyloidosis
@sheker And what did they say was your autoimmune disease? Which form of Amyloidosis? Gelsolin? Alzheimer's?...
https://connect.mayoclinic.org/comment/101816/
Which form of Amyloidosis? ... I think I have hereditary Gelsolin Amyloidosis
Hello @sstouten, Welcome to Connect. I'm sorry to hear about your diagnosis, and so glad that...
https://connect.mayoclinic.org/comment/169956/
waldenströms-macroglobulinemia/
– Waldenstroms and amyloidosis ... connect.mayoclinic.org/discussion/waldenstroms-and-amyloidosis
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