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181 total results
Comments (160)
I had a diagnosis in April 2011 of AL amiloidosis with one organ involved, my liver....
https://connect.mayoclinic.org/comment/88301/
I had a diagnosis in April 2011 of AL ... amiloidosis with one organ involved ... a great pathologist who suspected amyloidosis ... has led to my diagnostic of amyloidosis ... AL with severe hepatic dysfunction.
Discussion: Diagnosed with AL Amyloidosis. What can I expect?
Support Group: Blood Cancers & Disorders
Posted: Mar 13, 2016
@kgoodwin9 Yes to all you said. One thing you should know is that that there over...
https://connect.mayoclinic.org/comment/161427/
that there over 1,000 mutations of Amyloidosis ... good place to start is by reading the Amyloidosis ... seems to be a combination of hATTRwt, AL ... I would suggest you read my Amyloidosis
Discussion: Anyone have the FGFR3 antibody gene?
Support Group: Neuropathy
Posted: Jan 2, 2018
@Predictable Sorry about that. I was trying to make the point that, with the stuff you...
https://connect.mayoclinic.org/comment/169814/
over a thousand recognized forms of Amyloidosis ... MM, AL, hATTRwt, CGel, CCys, AH, AAlz ... , Lupus and more., all part of the Amyloidosis
Discussion: Stiff Heart
Support Group: Heart & Blood Health
Posted: Dec 20, 2017
@jeffrow Hi, friend. I think I have written earlier, but I have been thinking about you,...
https://connect.mayoclinic.org/comment/176535/
) AL Deposit Disorder • Serum ... Immunofixation Electrophoresis; AL ... Serum FLC = Serum FreeLiteChain© AL ... AL, LCDD I have also made reference ... pdf, at: HTTPS://bit.Ly/1w7j4j8 "Amyloidosis
Discussion: Need to find out what's wrong with me
Support Group: Autoimmune Diseases
Posted: Dec 16, 2017
@sunshine49 Aw, for Cryin' Out Loud. Sounds like we have some more doctors to educate. Sorry...
https://connect.mayoclinic.org/comment/175619/
exhibiting a large stack of the symptoms of Amyloidosis ... of some sort, probably Light Chain (AL ... the Patient Needs To Know..." about Amyoidosis ... And read my own story called "Amyloidosis ... And also read the symptoms of amyloidosis
Discussion: Desperate for answers
Support Group: Autoimmune Diseases
Posted: Nov 24, 2017
Thank you so much for sending all of this information I will read and look at...
https://connect.mayoclinic.org/comment/715963/
overriding factors due to wild type cardiac amyloidosis ... with a smaller amount of cardiac AL
Discussion: Low T-Cell - Bone Marrow Biopsy
Support Group: Blood Cancers & Disorders
Posted: Jun 9, 2022
Yes. My husband is being taken care of a Cardiologist and Hematologist even though we live...
https://connect.mayoclinic.org/comment/902503/
sure that my husband has the right Amyloidosis ... They want to know if he has the AL or ... TTR Amyloidosis or if there is something
Discussion: My Autologous Stem Cell Transplant Journey - Mayo, Phoenix
Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy
Posted: Jul 26, 2023
@usafretired15 You present a very interesting picture to me; a lot like mine, with a couple...
https://connect.mayoclinic.org/comment/213866/
, LECT2, Apolipoprotein, Gelsolin, AL ... and kidney protein issues such as Amyloidosis ... Have the doc get in touch with Mayo Amyloidosis ... Grogan's videos on diagnosing Amyloidosis
Discussion: Diagnoses of PBC not making sense anymore
Support Group: Autoimmune Diseases
Posted: Aug 30, 2018
@lazyironman What a name! Anyway,I respond to your input, and am glad to see you popped...
https://connect.mayoclinic.org/comment/177363/
mutation, or several mutations (probably AL ... , ACys, AGel, etc), of Amyloidosis. ... them could even recognize the word, Amyloidosis
Discussion: Living with Pulmonary Fibrosis (sometimes): Finding strength
Support Group: Lung Health
Posted: Dec 28, 2017
Why you dont give egcg curcumine and reveratrol in your patients? If you look up in...
https://connect.mayoclinic.org/comment/381140/
diagnostiquee as younger patient of Belgium d amylloidosis'localised ... al in the heart, the most eminent specialists
Event: Video Q&A about Amyloidosis – What Patients Need to Know
Posted: Jun 2, 2015
@jkellyjones One of most serious consequences of Crohn's and nearly all the other variations and mutations...
https://connect.mayoclinic.org/comment/176477/
other variations and mutations of Amyloidosis ... family we have A-Cys, A-Gel, Crohns, AL ... Anyway, the diagnosis of any form of amyloidosis
Discussion: Diagnosed with Crohn's but having weird symptoms
Support Group: Inflammatory Bowel Disease (IBD)
Posted: Dec 1, 2017