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Comments (3,687)

Sorry for the late response. I was diagnosed after I went to my obgyn cause I...

https://connect.mayoclinic.org/comment/710484/

I can’t get a referral from my Nero.

Discussion: Adrenals and how do you know if their not working

Support Group: Diabetes & Endocrine System

Posted: May 22, 2022

There is a patient in the Neuro V Long-Haulers facebook group who had severe vision issues...

https://connect.mayoclinic.org/comment/710210/

There is a patient in the Neuro V Long-Haulers

Discussion: Anyone experiencing dry eyes and vision changes?

Support Group: Post-COVID Recovery & COVID-19

Posted: May 21, 2022

The Facebook group Neuro V Long-Haulers is a great source for information, help, and support for...

https://connect.mayoclinic.org/comment/710207/

The Facebook group Neuro V Long-Haulers

Discussion: Idiopathic neuropathy and dizziness.

Support Group: Neuropathy

Posted: May 21, 2022

I feel your pain! I've had LSN for 6 long frustrating years. Same with the cough...

https://connect.mayoclinic.org/comment/705720/

My ENT tried all the neuro drugs on

Discussion: Anyone have Laryngeal Sensory Neuropathy?

Support Group: Ear, Nose & Throat (ENT)

Posted: May 5, 2022

He actually lives in Madison, WI and I would think UW-Madison might be an option. He’s...

https://connect.mayoclinic.org/comment/703970/

Do you think requesting through Neuro

Discussion: How to get help to manage ulcerative colitis along with Parkinson’s

Support Group: Parkinson's Disease

Posted: Apr 29, 2022

@becsbuddy yes he is seen at Yale and has a Neuro-ophthalmologist. Since I posted my question,...

https://connect.mayoclinic.org/comment/697335/

becsbuddy yes he is seen at Yale and has a Neuro-ophthalmologist ... I posted my question, his original Neuro ... also an oncologist agrees with the Neuro

Discussion: Ocular Myotonia VS Myasthenia Gravis

Support Group: Autoimmune Diseases

Posted: Apr 9, 2022

I need to know exactly what CES is I had rotator cuff surgery winded up in...

https://connect.mayoclinic.org/comment/696033/

numb from the knee to ankle went to nero

Discussion: Cauda Equina Syndrome: Difficulty with going to the bathroom

Support Group: Spine Health

Posted: Apr 4, 2022

I’m going to look at the site @runnergirl. I too think we must speak up. I...

https://connect.mayoclinic.org/comment/694743/

Last week I asked my Neuro for a Podiatrist

Discussion: Idiopathic Small Fiber Neuropathy Research

Support Group: Neuropathy

Posted: Mar 31, 2022

Hi everyone. DJ. Roberts I went through the and same situation. I seen 3 neurologist 1...

https://connect.mayoclinic.org/comment/693468/

I seen 3 neurologist 1 neuro surgeon

Discussion: My experience with Small Fiber Neuropathy

Support Group: Neuropathy

Posted: Mar 27, 2022

Thank you for your reply. I am 66 and in a dark state of depression and...

https://connect.mayoclinic.org/comment/691538/

x1f62b;) doubled the Wellbutrin and neuro

Discussion: Restless legs syndrome (RLS) and mirtazapine

Support Group: Depression & Anxiety

Posted: Mar 21, 2022

I’m sad to share that I have not found any answers for our condition. I do...

https://connect.mayoclinic.org/comment/688868/

appointment with Northwestern’s Long Covid Neuro ... Hoping they have some insight on our neuro

Discussion: Anyone Found Help/Explanation for Long Covid Neurological Symptoms?

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 12, 2022

I would try again at Rochester if that is the clinic you prefer. I called for...

https://connect.mayoclinic.org/comment/688735/

called for appt as a self referral to neuro

Discussion: Can you apply to another location?

Support Group: Visiting Mayo Clinic

Posted: Mar 11, 2022

@shack76 diagnosing autoimmune diseases is so difficult for everyone!! When i first got so sick, no...

https://connect.mayoclinic.org/comment/687320/

and we were finally connected with a neuro-immunologist

Discussion: Multiple Autoimmune Diseases & Post Covid

Support Group: Autoimmune Diseases

Posted: Mar 7, 2022

Having same actions I am so tired and wore out it also happens whn I sleep...

https://connect.mayoclinic.org/comment/687057/

sleep or lay down same feel about nero

Discussion: Strange neurological symptoms - myoclonic jerks

Support Group: Brain & Nervous System

Posted: Mar 7, 2022

I'm trying to get into the neurology department. My local neuro is the one who started...

https://connect.mayoclinic.org/comment/686888/

My local neuro is the one who started ... Scottsdale more likely to get me into the neuro

Discussion: Can you apply to another location?

Support Group: Visiting Mayo Clinic

Posted: Mar 6, 2022

A blessed Friday from me and yours great city HOUSTON TX. Will add …. CELEBRATING THE...

https://connect.mayoclinic.org/comment/686466/

Add neuro on my hands since 2020 to

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Mar 4, 2022

My initial symptom, which started 2 weeks after the first Pfizer vaccine, was muscle spasms in...

https://connect.mayoclinic.org/comment/684064/

Many people in the Neuro V Long-Haulers

Discussion: TS-HDS Antibody and Small Fiber Neuropathy

Support Group: Neuropathy

Posted: Feb 24, 2022

@lsittll Congrats on your new neuro and the Zonisamide. Your last neuro seemed to be unreasonable...

https://connect.mayoclinic.org/comment/683634/

@lsittll Congrats on your new neuro ... Your last neuro seemed to be unreasonable ... My neuro always treats me as a patient ... I think your new neuro will be a winner

Discussion: Seizures change and auras change too?

Support Group: Epilepsy & Seizures

Posted: Feb 22, 2022

Unfortunately I am currently without a diagnosis. I was diagnosed for 8 years with MS. My...

https://connect.mayoclinic.org/comment/678313/

She says I have an autoimmune neuro

Discussion: Myasthenia gravis; Making an informed decision for my Treatment Path

Support Group: Autoimmune Diseases

Posted: Feb 7, 2022

I got a moderate case of Covid in July 2021. Have had 2 vaccines. Since then...

https://connect.mayoclinic.org/comment/677385/

walk a lot or exercise I have a huge Neuro ... Also having the weirdest Neuro feelings