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Comments (2,132)

Thank you for your reply. I do respond to the IVIG and my symptoms lessen but...

https://connect.mayoclinic.org/comment/1013404/

I also have Sjögren's Syndrome which

Discussion: Myasthenia Gravis: A debilitating MONSTER

Support Group: Autoimmune Diseases

Posted: Feb 10, 2024

My mom has Sjogren's and takes pilocarpine. She says it helps her eyes some, but her...

https://connect.mayoclinic.org/comment/1008900/

My mom has Sjogren's and takes pilocarpine

Discussion: I have Sjogrens and dryness is progressively getting worse.

Support Group: Autoimmune Diseases

Posted: Feb 3, 2024

My doc says negative ANA results don’t rule out Sjogrens so how can one get a...

https://connect.mayoclinic.org/comment/1008688/

negative ANA results don’t rule out Sjogrens

Discussion: Anyone else with autoimmune flare ups?

Support Group: Digestive Health

Posted: Feb 3, 2024

Hi, I am 59 years old female with CIDP, Lupus RA, OA, Sjogrens, Graves, TBI and...

https://connect.mayoclinic.org/comment/1007436/

old female with CIDP, Lupus RA, OA, Sjogrens

Discussion: Does medical marijuana work for chronic pain?

Support Group: Chronic Pain

Posted: Jan 31, 2024

Have a few questions for those of you that are suffering from PMR and Sjogrens. This...

https://connect.mayoclinic.org/comment/1004575/

you that are suffering from PMR and Sjogrens ... He expressed possibly Sjogrens or Long ... back to back so it makes sense; my Sjogrens ... did they run to determine if you had Sjogrens ... o What do they use to treat Sjogrens

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 27, 2024

Geez... So these so called doctors are just trying to alleviate symptoms with drugs!! All these...

https://connect.mayoclinic.org/comment/1003627/

Also possible sjorgrens syndrome.

Discussion: Complex, wasting, unknown spinning wheels.

Support Group: Brain & Nervous System

Posted: Jan 25, 2024

I was diagnosed w/ PN in 1999 when I was 23. No one has been able...

https://connect.mayoclinic.org/comment/999589/

I also have Sjorgren's and Fibromylagia

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Jan 18, 2024

Hi. My name is Sara 59 years old with severe pain in my muscles and joints....

https://connect.mayoclinic.org/comment/998145/

is CIDP, lupus, osteoarthritis, RA, sjogrens

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Jan 16, 2024

It is more common than you think, something like 20-25% I started out that way If...

https://connect.mayoclinic.org/comment/997615/

out that way If you google the "Sjogrens ... Foundation" and "Sjogren&#39

Discussion: is there such a thing as zero negative Sjogren’s?

Support Group: Autoimmune Diseases

Posted: Jan 15, 2024

In response to the original comment, I also feel like each of my doctor’s is focused...

https://connect.mayoclinic.org/comment/995080/

I also have MS and Sjogren’s.

Discussion: Autoimmune illness and small fiber neuropathy

Support Group: Neuropathy

Posted: Jan 10, 2024

Hello Ccorrconro, I sent you a hug because I know exactly what you are going through!...

https://connect.mayoclinic.org/comment/993936/

have tested positive for SLE, and Sjogrens

Discussion: Undifferential Conective tissue disease, Sjogrens, symptoms of Lupus

Support Group: Autoimmune Diseases

Posted: Jan 8, 2024

Hey John. Thanks for the welcome. I’ve been to Mayo three separate times and each time...

https://connect.mayoclinic.org/comment/991797/

lupus to migraines to arthritis to Sjogrens

Discussion: Tired of the gaslighting

Support Group: Autoimmune Diseases

Posted: Jan 5, 2024

I’m concerned that A. You are getting nowhere with current medical care B that you might...

https://connect.mayoclinic.org/comment/989630/

Learn all you can about lupus, Sjögrens

Discussion: Frustrated and continuing to look for diagnosis

Support Group: Autoimmune Diseases

Posted: Jan 1, 2024

I had a Sjögren's flare up so bad that my skin was diagnosed with ICHTHYOSIS Vulgaris:...

https://connect.mayoclinic.org/comment/989540/

I had a Sjögren's flare up so bad ... The two (Sjögren's & Myasthenia

Discussion: Showering with Sjogren’s

Support Group: Autoimmune Diseases

Posted: Jan 1, 2024

Given the brief history only mentioning Sjögrens, I would pose some questions to think about. Any...

https://connect.mayoclinic.org/comment/989437/

the brief history only mentioning Sjögrens ... hot flashes and not related to your Sjögrens

Discussion: Question: weird nighttime ( sleep) experiences,. Anyone else had this?

Support Group: Autoimmune Diseases

Posted: Dec 31, 2023

I was having increasingly high monocytes and then my platletts were low so my oncologist (I...

https://connect.mayoclinic.org/comment/987843/

(I have neuropathy caused by Sjogren

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2023

I also have Sjogerns and was suffering with dry mouth and eyes. Now, this is just...

https://connect.mayoclinic.org/comment/985391/

I also have Sjogerns and was suffering

Discussion: Advice! Civemeline only works once a day. Pilocarpine not work

Support Group: Autoimmune Diseases

Posted: Dec 23, 2023

Thanks for the nod. I have background in clinical neurophysiology, and managed non nursing departments in...

https://connect.mayoclinic.org/comment/984025/

Sadly I know almost nothing about Sjogren ... And people who really needed it - Sjogrens

Discussion: Just diagnosed with colitis...given Budesonide $$$$

Support Group: Digestive Health

Posted: Dec 20, 2023

I would like to hear from people that have SFN caused by Sjogren's Syndrome- without pain...

https://connect.mayoclinic.org/comment/981072/

from people that have SFN caused by Sjogren

Discussion: Neuropathy: Numbness only, no pain

Support Group: Neuropathy

Posted: Dec 15, 2023

I have these every so often. But I believe they are related to the Small Fiber...

https://connect.mayoclinic.org/comment/974063/

received as a gift with the advent of Sjogren

Discussion: Body vibrations when falling asleep or waking?

Support Group: Sleep Health

Posted: Dec 2, 2023