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Comments (2,394)

@slkanowitz - Hello. Thank you for this information. All the tests you mentioned above except the...

https://connect.mayoclinic.org/comment/1190071/

atypical symptoms after ruling out sjogrens

Discussion: ANA Titer 1:1280 pattern homogeneous and speckled o/w negative work-up

Support Group: Autoimmune Diseases

Posted: Dec 14, 2024

I have all the same and also other unusual autoimmune issues It is now called Sjogrens...

https://connect.mayoclinic.org/comment/1186685/

autoimmune issues It is now called Sjogrens

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Dec 8, 2024

He was considering Sjogrens but due to the negative workup that is no longer being considered....

https://connect.mayoclinic.org/comment/1185508/

He was considering Sjogrens but due

Discussion: ANA Titer 1:1280 pattern homogeneous and speckled o/w negative work-up

Support Group: Autoimmune Diseases

Posted: Dec 6, 2024

Hello @vleigh, @connie1954 and @carolgail1949, Thank you for sharing your experience with BMS. I don't have...

https://connect.mayoclinic.org/comment/1183513/

Back": Cindy's Recovery from Sjogren ... resources/interviews-patients/cindy-sjogrens-bms

Discussion: Burning Mouth Syndrome. I have it very severe.

Support Group: Skin Health

Posted: Dec 2, 2024

I've been on Gabapentin for fibro for 5+ years (300mg twice a day) for joint and...

https://connect.mayoclinic.org/comment/1182459/

BUT I was diagnosed with Sjogrens in ... Covid in 2023, my doctors think the Sjogrens ... been treating as Fibro might be a Sjogrens

Discussion: Anyone tried Gabapentin for Fibromyalgia?

Support Group: Fibromyalgia

Posted: Dec 1, 2024

@hannahbernard1 definitely look thru some of the other listings Sjogren’s mentioned in other places and your...

https://connect.mayoclinic.org/comment/1180907/

look thru some of the other listings Sjogren

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Nov 27, 2024

Thanks, @deborahyost3. I too saw an eye doctor many years ago due to all the red...

https://connect.mayoclinic.org/comment/1180391/

That eye doc had also mentioned Sjogren

Discussion: Sjogren's likely - how to prepare for rheumatologist

Support Group: Autoimmune Diseases

Posted: Nov 26, 2024

My big question is whether or not I actually have Sjogren’s based on the new test...

https://connect.mayoclinic.org/comment/1177838/

is whether or not I actually have Sjogren

Discussion: Sjogren's likely - how to prepare for rheumatologist

Support Group: Autoimmune Diseases

Posted: Nov 22, 2024

I have Sjogren's and ILD. I have had Sjogren's for many years but I was diagnosed...

https://connect.mayoclinic.org/comment/1267420/

I have Sjogren's and ILD. ... I have had Sjogren's for many years

Discussion: Sjogrens and Lung issues

Support Group: Autoimmune Diseases

Posted: Mar 26 2:35pm

Guessing when you say she has Lupus and “sturgeon” it was autocorrected? Does she have this...

https://connect.mayoclinic.org/comment/1269375/

www.mayoclinic.org/diseases-conditions/sjogrens-syndrome

Discussion: Is there a cure for inflamed tongue fungus?

Support Group: Ear, Nose & Throat (ENT)

Posted: Mar 29 12:12pm

The cyst removal would not have shown Sjogren's. The lip biopsy takes a sample of the...

https://connect.mayoclinic.org/comment/1272622/

cyst removal would not have shown Sjogren ... If your bloodwork indicates Sjogren&

Discussion: Ana positive

Support Group: Autoimmune Diseases

Posted: Apr 2 12:24pm

Hi Missey, I have: Encephalitis Rheumatoid Arthritis Sjogren’s Syndrome Lupus Hashimoto’s CVID Per literature, significant flares...

https://connect.mayoclinic.org/comment/1293358/

Encephalitis Rheumatoid Arthritis Sjogren

Discussion: Prolia dangers for those with autoimmune disease

Support Group: Bones, Joints & Muscles

Posted: Apr 30 9:45am

I was over on the High Coronary Calcium Score: How do others feel emotionally? thread for...

https://connect.mayoclinic.org/comment/984981/

makes no sense given that I also have Sjogrens

Discussion: Extremely high calcium score at 42 - is there any positive here??

Support Group: Heart & Blood Health

Posted: Dec 22, 2023

I was prescribed pilocarpine- 2 to 3 tablets daily-for extreme dry mouth. It worked very well,...

https://connect.mayoclinic.org/comment/1020111/

as you learn about All the Effects Sjogren

Discussion: I have Sjogrens and dryness is progressively getting worse.

Support Group: Autoimmune Diseases

Posted: Feb 21, 2024

Having a rare auto immune disease is indeed a conundrum. Many doctors will have no idea...

https://connect.mayoclinic.org/comment/1229799/

Because you have a Sjogren’s and RA

Discussion: Research for rare autoimmune diseases

Support Group: Autoimmune Diseases

Posted: Feb 5 7:36am

I am sorry to hear you are struggling with diagnosis. As I mentioned in my original...

https://connect.mayoclinic.org/comment/1067150/

antibody tests, I tested positive for the Sjogren ... option in med for treatment of my Sjogren

Discussion: Living with LPSVS (long post-COVID vaccination syndrome)

Support Group: Post-COVID Recovery & COVID-19

Posted: May 13, 2024

I too have this. As a result of SFN caused by Sjogren's Disease. According to my...

https://connect.mayoclinic.org/comment/1235191/

As a result of SFN caused by Sjogren

Discussion: Is loss of balance your primary complaint with neuropathy?

Support Group: Neuropathy

Posted: Feb 12 10:47am

suetex,, THANK YOU!!!, MY Rheumatologist did not want me to have the IVIG and the Retuximab,...

https://connect.mayoclinic.org/comment/1148425/

Retuximab, she concerned because my Sjogren

Discussion: Managing Small Fiber Neuropathy, Sjogren's, Hashimoto's

Support Group: Autoimmune Diseases

Posted: Sep 27, 2024

Ive suffered from sjograns since 1989. Many things affected me with sj. But haven't had a...

https://connect.mayoclinic.org/comment/1216672/

Ive suffered from sjograns since 1989

Discussion: Idiopathic Autoimmune Treatment For Symptom

Support Group: Autoimmune Diseases

Posted: Jan 19 2:22pm

I have after much nagging on my part, finally been given the diagnosis of SFN caused...

https://connect.mayoclinic.org/comment/1215681/

given the diagnosis of SFN caused by Sjogren

Discussion: Idiopathic Autoimmune Treatment For Symptom

Support Group: Autoimmune Diseases

Posted: Jan 18 12:02pm