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Comments (2,264)

Thank you for your reply. I do respond to the IVIG and my symptoms lessen but...

https://connect.mayoclinic.org/comment/1013404/

I also have Sjögren's Syndrome which

Discussion: Myasthenia Gravis: A debilitating MONSTER

Support Group: Autoimmune Diseases

Posted: Feb 10, 2024

I'm negative for Sjogrens but kept getting scratched corneas and scleritis. My eye specialist put me...

https://connect.mayoclinic.org/comment/1261972/

I'm negative for Sjogrens but kept

Discussion: Possible Sjogrens Disease

Support Group: Autoimmune Diseases

Posted: Mar 19 12:56pm

Don't give up! Sadly, with Sjogren's, luck is invoved a lot. Fiding a dr who rocognizes...

https://connect.mayoclinic.org/comment/1252068/

Sadly, with Sjogren's, luck is invoved

Discussion: Sjogren's Question

Support Group: Autoimmune Diseases

Posted: Mar 6 6:43pm

I have Sjogrens diagnosed by biopsies by an ENT went to the eye doctor be tested...

https://connect.mayoclinic.org/comment/1249930/

I have Sjogrens diagnosed by biopsies

Discussion: Sjogren's Question

Support Group: Autoimmune Diseases

Posted: Mar 3 11:28pm

Greetings to someone with this unusual disease. I was diagnosed with Autoimmune Hepatitis in 1996; at...

https://connect.mayoclinic.org/comment/1203035/

the same time I was diagnosed with Sjögren ... Although my father had Sjogren's

Discussion: Autoimmune Hepatitis and remission?

Support Group: Autoimmune Diseases

Posted: Jan 3 9:47am

Hypotension mean it drops low hypertension is high blood pressure. So do you have both or...

https://connect.mayoclinic.org/comment/1231337/

Diagnosed with SLE aka lupus and sjogrens

Discussion: Axonal peripheral neuropathy: Finally, a diagnosis!

Support Group: Neuropathy

Posted: Feb 7 8:18am

I have the same problems. I take Plaquenil and Systane eye drops. At first I was...

https://connect.mayoclinic.org/comment/1240993/

first I was treated for lupus and Sjorgens

Discussion: Sjögren’s syndrome severe dry mouth with loss of taste. Also dry eyes

Support Group: Autoimmune Diseases

Posted: Feb 19 5:58pm

Have never been diagnosed with Sjogren’s but was suffering with very dry mouth beginning in 2019...

https://connect.mayoclinic.org/comment/1267269/

Have never been diagnosed with Sjogren

Discussion: How do you deal with dry eyes?

Support Group: Eye Conditions

Posted: Mar 26 11:40am

I have been considering trying LDN for RA, but I read it may cause fatigue. I...

https://connect.mayoclinic.org/comment/1277193/

dealing with fatigue and possibly Sjogren

Discussion: Please let me know if someone is using LDN

Support Group: Autoimmune Diseases

Posted: Apr 8 1:52pm

You are not alone! After 3 failed ankle fusions my ortho suggested genetic testing, esp since...

https://connect.mayoclinic.org/comment/1250654/

I was also diagnosed with RA, Sjorgens

Discussion: How do you cope with Mixed Connective Tissue Disease (MCTD)?

Support Group: Autoimmune Diseases

Posted: Mar 4 9:53pm

@suetex if you don't mind me asking are you on IvIg for sjogren's only or do...

https://connect.mayoclinic.org/comment/1247148/

mind me asking are you on IvIg for sjogren

Discussion: Sjögren’s syndrome severe dry mouth with loss of taste. Also dry eyes

Support Group: Autoimmune Diseases

Posted: Feb 28 8:27am

Being a grandmother is fantastic! Being a great grandmother is truly a blessing from God above....

https://connect.mayoclinic.org/comment/1269912/

Connective Tissue Disorder, Lupus, Sogren

Discussion: Aortic Aneurysms – Introduce yourself & meet others

Support Group: Aortic Aneurysms

Posted: Mar 30 9:07am

Hello thank you for this post. I’m a Long Covid Patient (1st bout very early ‘20–and...

https://connect.mayoclinic.org/comment/820071/

2nd early ‘22) with RA, EPI, Asthma, Sjogrens

Discussion: Micro Clots

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 3, 2023

I have Sjogren's and can answer questions about SFN and IvIg but not ILD. Best Wishes,...

https://connect.mayoclinic.org/comment/1190934/

I have Sjogren's and can answer

Discussion: Sjogrens and Lung issues

Support Group: Autoimmune Diseases

Posted: Dec 15, 2024

I was only diagnosed officially 3 weeks ago, but gastroparesis has come up several times during...

https://connect.mayoclinic.org/comment/51203/

have an autoimmune disease called Sjogren

Discussion: Gastroparesis with severe symptoms!

Support Group: Digestive Health

Posted: Jan 30, 2019

I had 3 Botox shots. Numbers 1 and 3 did nothing. Number 2 helped for about...

https://connect.mayoclinic.org/comment/282425/

Sjögren’s has worsened so that my tongue

Discussion: pain in my head

Posted: Nov 13, 2019

My antiphospholipid syndrome (clotting disorder) is now in remission (yay!) as the lupus anticoagulant antibody is...

https://connect.mayoclinic.org/comment/1199126/

thinners at the time of my diagnosis of Sjogren

Discussion: Living with LPSVS (long post-COVID vaccination syndrome)

Support Group: Post-COVID Recovery & COVID-19

Posted: Dec 28, 2024

I have Systemic lupus, Sjögren’s and Graves’ disease is now hashimotos since having my thyroid out....

https://connect.mayoclinic.org/comment/1197160/

I have Systemic lupus, Sjögren’s and

Discussion: ANA Titer 1:1280 pattern homogeneous and speckled o/w negative work-up

Support Group: Autoimmune Diseases

Posted: Dec 26, 2024

Thank you so much. I’m sorry you have Sjogrens. That’s not a fun disease to have...

https://connect.mayoclinic.org/comment/1192371/

I’m sorry you have Sjogrens.

Discussion: Trigeminal neuralgia with Sjogrens disease

Support Group: Autoimmune Diseases

Posted: Dec 17, 2024

I’m so sorry for your loss and that your poor grandma had to suffer for so...

https://connect.mayoclinic.org/comment/1192361/

this problem because she also has Sjogrens

Discussion: Trigeminal neuralgia with Sjogrens disease

Support Group: Autoimmune Diseases

Posted: Dec 17, 2024