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Comments (3,687)

Wow, great information, thank you for writing that out. I will check out Larsen and make...

https://connect.mayoclinic.org/comment/731092/

My next appointment with my neuro-Opthalmologist

Discussion: Brain not "showing me" my peripheral vision

Support Group: Eye Conditions

Posted: Jul 26, 2022

I was put in touch with an epilepsy specialist and he’s having me do a 4...

https://connect.mayoclinic.org/comment/730590/

hr EEG this week in the AM at the neuro

Support Group: Epilepsy & Seizures

Posted: Jul 25, 2022

I knew I had ms, I looked for 16 years. I have every symptom mainly falling....

https://connect.mayoclinic.org/comment/728978/

famous in adult MS & children's neuro

Discussion: Seeking Help for Unknown Medical Issue

Support Group: Autoimmune Diseases

Posted: Jul 21, 2022

I did have the EMG. I also recently had a brain MRI, to rule out the...

https://connect.mayoclinic.org/comment/727793/

even though it was at my request—the Neuro

Discussion: Constant excruciating leg cramps

Support Group: Chronic Pain

Posted: Jul 17, 2022

How long have you been using the prism lenses? Brain plasticity is not instantaneous, may take...

https://connect.mayoclinic.org/comment/727572/

Can you get a neuro ophthalmologist

Discussion: Brain not "showing me" my peripheral vision

Support Group: Eye Conditions

Posted: Jul 16, 2022

If you haven't joined yet, I recommend joining the Neuro V Long-Haulers Facebook group. There is...

https://connect.mayoclinic.org/comment/725471/

joined yet, I recommend joining the Neuro

Discussion: COVID vaccines and neuropathy

Support Group: Neuropathy

Posted: Jul 10, 2022

I haven't gotten Evusheld. My autoimmune issue coincided with my neurological damage and symptoms after the...

https://connect.mayoclinic.org/comment/725465/

with neurological injuries in the Neuro

Discussion: Just approved: Evusheld for the pre-exposure prevention of COVID-19

Support Group: Transplants

Posted: Jul 10, 2022

She is aware of my EDS, I have an extensive list, all my Drs freak out...

https://connect.mayoclinic.org/comment/725059/

Then my Neuro prescribed the wrong meds

Newsfeed Post: Headaches and EDS – Common and Painful

Blog: Ehlers-Danlos Syndrome

Posted: Jul 9, 2022

Robyn, Twenty five years is a long time to deal with medical issues. It can become...

https://connect.mayoclinic.org/comment/724486/

They also have neuro-opthalmologists

Discussion: Small Fiber Neuropathy biopsy test results

Support Group: Neuropathy

Posted: Jul 7, 2022

Robyn, Sorry for the running off of words. I tried to edit and they said it...

https://connect.mayoclinic.org/comment/723991/

Although I am already seeing a neuro-opthalmologist

Discussion: Small Fiber Neuropathy biopsy test results

Support Group: Neuropathy

Posted: Jul 5, 2022

I have had what I would call flare ups body wide twitching on and off for...

https://connect.mayoclinic.org/comment/723950/

Had all the Nero and blood tests and

Discussion: Peripheral Neuropathy and benign fasciculation syndrome.

Support Group: Neuropathy

Posted: Jul 5, 2022

Am in HOUSTON. LOOKING FOR MEDICAL PRESCRIPTIONS. I have CBD, GUMMIES ETC. Just need MG and...

https://connect.mayoclinic.org/comment/723881/

On the NEEDLING, please see a Dr NEURO

Discussion: Anyone tried Dry Needling or Acupuncture for Pain or Neuropathy?

Support Group: Neuropathy

Posted: Jul 5, 2022

Long story my friend :( After 25 wonderful years in Paxil 20 it stopped helping. And...

https://connect.mayoclinic.org/comment/720401/

Neuro put me on Primidone and Mayo psych

Discussion: Brain zaps, mine are constant…Anyone else?

Support Group: Depression & Anxiety

Posted: Jun 23, 2022

I developed sudden peripheral neuropathy after the Covid vaccine. My initial symptom after the first vaccine...

https://connect.mayoclinic.org/comment/717425/

to learn more, you could join the Neuro

Discussion: Toe twitching/fasciculations?!

Support Group: Brain & Nervous System

Posted: Jun 14, 2022

I have had nystagmus and vertigo for 20 years--was not bad at first. Recently developing pain...

https://connect.mayoclinic.org/comment/715879/

neurologists, ENT, vertigo clinics, neuro

Discussion: Constant Dizziness

Support Group: Brain & Nervous System

Posted: Jun 9, 2022

I’m thinking that Primidone could be having an impact on my depression/anxiety, agitation, etc that I...

https://connect.mayoclinic.org/comment/714571/

The neuro didn’t mention any of this

Discussion: Restless legs syndrome (RLS) and mirtazapine

Support Group: Depression & Anxiety

Posted: Jun 5, 2022

@artist01, @becsbuddy, @merpreb @sueinmn, @johnbishop, @loribmt, @kilh, @artscaping, and all...Hello, my friends with precious babies, rabbits,...

https://connect.mayoclinic.org/comment/714377/

Mayo neuro gives him botox relief.

Discussion: What's outside of your picture window today?

Support Group: Just Want to Talk

Posted: Jun 4, 2022

I love the topic, focus on what we can do! I just got back from Canada...

https://connect.mayoclinic.org/comment/712649/

few years were rough, cancer, GI, neuro

Discussion: A discussion for people over 60: Let's focus on what we can do

Support Group: Aging Well

Posted: May 30, 2022

I’m sorry your symptoms are still worsening. I am 18 months out from symptom start (first...

https://connect.mayoclinic.org/comment/712123/

As for the Neuro Long Haulers Facebook

Discussion: COVID vaccines and neuropathy

Support Group: Neuropathy

Posted: May 28, 2022

Wow. This thread went cold almost a month now. My leg symptoms are worsening now. Fast...

https://connect.mayoclinic.org/comment/711760/

help grease the IVIg wheels (only way neuro ... seruminst.htm P.S. join the Facebook “Neuro

Discussion: COVID vaccines and neuropathy

Support Group: Neuropathy

Posted: May 27, 2022