Neuropathy hypothyroidism along with diabetes

Posted by artemis1886 @artemis1886, Nov 5 4:42pm

I have a question. Have any of you with small fiber neuropathy along with severe axonal sensorimotor polyneuropathy have these problems after being diagnosed?
2015 diagnosed with the polyneuropathies
2020 diagnosed with hypothyroidism (can cause neuropathy but
I was diagnosed with neuropathy first) thyroid was fine
Cysts and tumor on thyroid
2023 doing testing for diabetes first time glucose levels elevated
found cysts on pancreas A1C level 5.7 glucose 103
Yes that was fasting.
Has anyone had these problems after being diagnosed with neuropathy?
They do not know the etiology (cause) of mine!
University of Boston research neurology is starting testing on me for genetics

Interested in more discussions like this? Go to the Neuropathy Support Group.

John, Volunteer Mentor | @johnbishop | Nov 5 6:31pm

Interesting questions @artemis1886. I have idiopathic small fiber peripheral neuropathy and have also been in the pre-diabetes category most of my life so I pretty much fall into the metabolic syndrome category. I shared my neuropathy journey in another discussion here – https://connect.mayoclinic.org/comment/310341/.

Not too long ago I learned there are some connections between neurological disorders and the metabolic syndrome so I started focusing on trying to change some habits and prevent developing diabetes. Here are a couple of references you might find interesting and possibly make some connections for you.

— The Metabolic Syndrome and Neuropathy: Therapeutic Challenges and Opportunities: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3881591/
— Metabolic syndrome as a risk factor for neurological disorders
https://pubmed.ncbi.nlm.nih.gov/21997383/

artemis1886 | @artemis1886 | Nov 5 7:28pm

In reply to @johnbishop "Interesting questions @artemis1886. I have idiopathic small fiber peripheral neuropathy and have also been in the..." + (show)

I found an interesting article below yours. One problem I have is when I do not get enough sleep and in too much pain my seizures start up. Nights are a worst. There is an article about polycystic ovaries and metabolic syndrome.
I had a total hysterectomy in 2009 due to elevated enzymes for ovarian cancer. They only found cyst all over the ovaries and uterus no ovarian cancer. In two days Iwent from 165 to 210 and diagnosed with lymphedema. I have wore compression hose 20-30 since 2009. My body is really being weird. I had bought over 5,000 dollars worth of clothes. Now I can’t get into them. It’s all frustrating. I went back in my medical records and found a diagnosis of ehlers danlos which is an autoimmune disorder. I remember the neurologist talking about it in 2002 but did not ask questions at the time just blew it off.

artemis1886 | @artemis1886 | Nov 5 7:36pm

It’s not because of seizure meds. I am allergic to all seizure meds. The only thing I can use is Valtoco 10 mgs% diazepam 10 msg nose spray.
Plus on 20 msg potassium twice a day. My body does not produce potassium and having magnesium problems.