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Comments (2,291)

Does anyone else with non-IgM MGUS get pain in their bicep and thigh muscles. I don't...

https://connect.mayoclinic.org/comment/951161/

Does anyone else with non-IgM MGUS get

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2023

Justin, I've seen this nurse before...she has been very thorough. I have no problem seeing her,...

https://connect.mayoclinic.org/comment/74575/

So far, I'm still MGUS.

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Mar 25, 2018

I just have a slight allergy which seems to be aggravated by Revlimid. I always got...

https://connect.mayoclinic.org/comment/747659/

MGUS and smoldering myeloma

Discussion: CPAP silicone allergy: Anyone know of other options? Solutions?

Support Group: Sleep Health

Posted: Sep 9, 2022

Thanks for the reassurances. There are so many moving parts to this disease. My kidney function...

https://connect.mayoclinic.org/comment/1295071/

idea how kidneys come into play with MGUS

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: May 2 12:42pm

@spmreads1 My MGUS blood analysis has been very stable since I was diagnosed three years ago....

https://connect.mayoclinic.org/comment/1101159/

@spmreads1 My MGUS blood analysis

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 7, 2024

Sounds sadly too familiar to me. What are AFOs? All these abbreviations are new to me....

https://connect.mayoclinic.org/comment/1062336/

Now I have MGUS ? as well.

Discussion: Peripheral Neuropathy life changing

Support Group: Neuropathy

Posted: May 4, 2024

I have tender spots over bones, particularly over ribs. They can be painful when palpated. They...

https://connect.mayoclinic.org/comment/1055782/

So far I am in the MGUS club with mildly

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2024

My hem/onc doc didn’t poo, poo, herbal treatment, but he sure didn’t recommend it. He said...

https://connect.mayoclinic.org/comment/849232/

that suggests that it is helpful to MGUS

Discussion: MGUS and Curcumin/Tumeric

Support Group: Blood Cancers & Disorders

Posted: Apr 25, 2023

Greetings Two and a half years with MGUS, feeling great, in fact all the normal blood...

https://connect.mayoclinic.org/comment/793231/

Greetings Two and a half years with MGUS

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 6, 2023

I do feel some comfort and relief. I'm on a six month "check in" schedule but...

https://connect.mayoclinic.org/comment/1206779/

was diagnosed before my quite stable MGUS

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 8 11:52am

Good summary. I hadn't even noticed the link to all these papers. I based my opinion...

https://connect.mayoclinic.org/comment/1312772/

Curcumin may not be helpful for IgM MGUS

Discussion: Can weight gain cause progression from MGUS to myeloma?

Support Group: Blood Cancers & Disorders

Posted: May 25 5:11pm

Good morning! I am going to vote with the majority here and advocate for a specialist....

https://connect.mayoclinic.org/comment/934863/

PCP’s read about MGUS in their training ... Avoid Google and Facebook MGUS pages ... I am about three years out from my MGUS

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2023

Hello, I am new to all of this. Our doctor informed me three weeks ago that...

https://connect.mayoclinic.org/comment/972332/

informed me three weeks ago that I have MGUS ... only stated that he believes it to be MGUS

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2023

Hi, MGUS and Beyond, friends. @Lynne756, welcome! Glad you mentioned Ferritin. Mine is currently 11 and...

https://connect.mayoclinic.org/comment/785862/

Hi, MGUS and Beyond, friends. ... the implications of this IgM Kappa MGUS

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 17, 2022

Hi Deborah, what kind of practice are you working with now to have your bloodwork monitored?...

https://connect.mayoclinic.org/comment/813340/

Multiple Myeloma and works with lots of MGUS ... Try to remember that statistically, MGUS

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Feb 18, 2023

@omemee There can be several causes of foamy urine. If you have a full bladder, and...

https://connect.mayoclinic.org/comment/725241/

indeed have kidney involvement from MGUS ... assuming it must be related to the MGUS

Discussion: Question to ask about MGUS Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2022

Most of my bloodwork is normal. I don't have small fiber, but instead polyneuropathy for 8...

https://connect.mayoclinic.org/comment/1201547/

have celiac (normal bloodwork) and MGUS

Discussion: Can I have an autoimmune disease with perfect lab results?

Support Group: Autoimmune Diseases

Posted: Jan 1 8:03am

Full body DEXA is paid by Medicare and Supplemental? I know full body MRI is not....

https://connect.mayoclinic.org/comment/1297436/

MGUS I tell people is like being a no

Discussion: M-spike dropped from .13 to .08.

Support Group: Blood Cancers & Disorders

Posted: May 5 12:34pm

@buckett Interesting questions. I believe that neuropathy is an established connection with MGUS. You see it...

https://connect.mayoclinic.org/comment/1222254/

is an established connection with MGUS

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 26 12:37pm

Thanks for your replies folks. I am SO happy to be on Forteo and it looks...

https://connect.mayoclinic.org/comment/1150542/

about elevated ALP because I have MGUS

Discussion: Elevated ALP after 3 months of Forteo

Support Group: Osteoporosis & Bone Health

Posted: Oct 2, 2024