octreotide - search | You searched for comments

To narrow your search, try adding quotation marks around phrases.

Search tips

Search by keywords or complete phrases.
To narrow your search, try adding quotation marks around phrases.
Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.

759 total results

Comments (696)

I have had four rounds of Lutathera. I continue to be on an injection of Lanreotide...

https://connect.mayoclinic.org/comment/806746/

taken off the daily injections of octreotide

Discussion: Recurrence with Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 5, 2023

@sophiarose I’m sorry you’re having such a rough time with treatment. I have been taking the...

https://connect.mayoclinic.org/comment/1128152/

I have been taking the 28 day octreotide ... treatments (make people feel sick) and octreotide ... you know which side effects are from octreotide ... My octreotide injections are very expensive

Discussion: Short acting Ocreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 21, 2024

Hello @pattirushing I'm glad to hear that you have completed the initial treatment for the lung...

https://connect.mayoclinic.org/comment/847375/

When will you begin the octreotide injections

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2023

Thank you @hopeful33250, it is much appreciated. She has had a CT scan and a Tektrotyd...

https://connect.mayoclinic.org/comment/749330/

has had a CT scan and a Tektrotyd (octreotide

Discussion: Support for Young Adult with carcinoid tumor on ovary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 14, 2022

Yes, however I take Octreotide instead of the LAN. I’ve done a food journal and found...

https://connect.mayoclinic.org/comment/1445324/

Yes, however I take Octreotide instead

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 23, 2025

@pipo It's a long list. Distal Pancreatectomy Y90 to both lobes of liver Octreotide/Lanreotide Cyberknife to...

https://connect.mayoclinic.org/comment/1407713/

Pancreatectomy Y90 to both lobes of liver Octreotide

Discussion: Has anyone had NET show up on CT scan, I had CT scan in 23

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 3, 2025

@nannybb Oh, and the only followup for the DIPNECH/NETs has been CT scans at various intervals...

https://connect.mayoclinic.org/comment/1540765/

hypothyroidism did not change after starting octreotide

Discussion: Diagnosis Frustrated: How you were diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 1 11:19pm

At minimum every 6 months, but also as needed if symptoms dictate. My endocrinologist is very...

https://connect.mayoclinic.org/comment/843305/

For now, octreotide is doing a good

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 14, 2023

My brother had PRRT after having surgery and Octreotide injections every 28 days. The tumor growth...

https://connect.mayoclinic.org/comment/877313/

had PRRT after having surgery and Octreotide

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 12, 2023

Hello , I haven't heard of the avastin. Doc recently found AVMs in my gastrointestinal tract...

https://connect.mayoclinic.org/comment/1254428/

gastrointestinal tract and have suggested octreotide

Discussion: Anyone have experience with HHT or Osler-Weber Rendu?

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2025

I asked my oncologist about the NO EPI and if it should be on my medical...

https://connect.mayoclinic.org/comment/137547/

Then they would just administer the octreotide

Discussion: My Husband was newly diagnosed with Carcinoid Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 31, 2017

I have had a difficult time with diarrhea and loose stools after colon cancer as well....

https://connect.mayoclinic.org/comment/597537/

I have tried many things, Octreotide

Discussion: The gastro after effects of colorectal cancer

Support Group: Colorectal Cancer

Posted: Apr 26, 2021

I was diagnosed March 2022 stage 4 grade 2 18%, primary tumour on the tail of...

https://connect.mayoclinic.org/comment/1049788/

I receive 20mg octreotide every 28days

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12, 2024

@nana120 I wasn't told of any dietary restrictions when I started my octreotide injections, but maybe...

https://connect.mayoclinic.org/comment/937831/

dietary restrictions when I started my octreotide ... I do know octreotide really took away ... have several side effects from the octreotide ... so I love octreotide. ... Octreotide also increased some side-effects

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 28, 2023

Sorry to hear about your cancer and fatigue. I’ve been in treatment for recurrent breast cancer,...

https://connect.mayoclinic.org/comment/1552421/

s the meds (Kisqali, Letrozole and octreotide

Discussion: Why do I get so tired so easy?

Support Group: Neuroendocrine Tumors (NETs)

Posted: 1 day ago

Hey Mark, I've had Octreotide, Lanreotide, and SI resection surgery. I'm currently doing monthly Lanreotide shots....

https://connect.mayoclinic.org/comment/1410494/

Hey Mark, I've had Octreotide, Lanreotide