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507 total results

Comments (460)

I have had high triglycerides for forty years a low HDL. In my case, it had...

https://connect.mayoclinic.org/comment/1226850/

related to my two year stint with Myelofibrosis

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 1 10:15am

Hi @wellness3070. I'd also like to introduce you to other members who have myelofibrosis or are...

https://connect.mayoclinic.org/comment/132597/

introduce you to other members who have myelofibrosis

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2017

Honestly, I really do not think my O/H knows if I have ET or Myelofibrosis. I...

https://connect.mayoclinic.org/comment/1281668/

think my O/H knows if I have ET or Myelofibrosis

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 14 11:38am

Welcome, @rspriggle. I can only imagine your shock of receiving the diagnosis of primary myelofibrosis, especially...

https://connect.mayoclinic.org/comment/616932/

receiving the diagnosis of primary myelofibrosis

Discussion: Primary Myelofibrosis diagnosis in 40’s

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2021

So I turn 70 next year. Transplant has never been mentioned, I hope there is some...

https://connect.mayoclinic.org/comment/1351764/

BTW myelofibrosis and hypothyroidism

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 19 1:40pm

Hi @mumblipeg , Thanks for sharing your store and great to hear you just have pre-myelofibrosis...

https://connect.mayoclinic.org/comment/1349772/

and great to hear you just have pre-myelofibrosis

Discussion: Question about how you each received your diagnosis of MPN

Support Group: Blood Cancers & Disorders

Posted: Jul 16 3:36pm

I too have Myelofibrosis I did a bone marrow biopsy prior to starting Jakafi. They did...

https://connect.mayoclinic.org/comment/1099094/

I too have Myelofibrosis I

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2024

My husband found out in January he has myelofibrosis, it was a shock to us. He...

https://connect.mayoclinic.org/comment/1412275/

husband found out in January he has myelofibrosis

Discussion: Myelofibrosis: Anyone have experience with Vonjo (pacritinib)?

Support Group: Blood Cancers & Disorders

Posted: Oct 9 8:37pm

Hi dunewalker, Since I really do not know what I actually have, a have not taken...

https://connect.mayoclinic.org/comment/1268772/

ET diagnosis seemingly changed to Myelofibrosis ... /H changed my diagnosis from ET to Myelofibrosis

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 28 2:24pm

Hydroxyurea tends to lower blood cells, so it's unlikely to help with low platelets. JAK inhibitors...

https://connect.mayoclinic.org/comment/1249599/

Myelofibrosis can present with either

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Mar 3 2:09pm

Hello Connection Community - for those that have Myelofibrosis - my particular type is primarily anemia-...

https://connect.mayoclinic.org/comment/1348019/

Connection Community - for those that have Myelofibrosis

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 14 11:30am

Hi @dawnmarieyoung I just wanted to follow-up with you to see if you caught my reply...

https://connect.mayoclinic.org/comment/1368963/

reply to your question about BMT for Myelofibrosis

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Aug 12 10:15am

Welcome to Mayo Connect, @chrisatwell. We all occasionally need a lifeline. And sometimes all it takes...

https://connect.mayoclinic.org/comment/1265486/

Were you also diagnosed with myelofibrosis

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 24 8:21am

I was exposed to Agent Orange in 1968-69, at the height of the Vietnam War. I...

https://connect.mayoclinic.org/comment/1434552/

few months ago, my diagnosis became Myelofibrosis

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Nov 9 1:09pm

You will find on this site lot’s encouraging and people with words of wisdom on your...

https://connect.mayoclinic.org/comment/1312965/

husband was diagnosed in January with myelofibrosis

Discussion: Primary Myelofibrosis: What is life going to be like now?

Support Group: Blood Cancers & Disorders

Posted: May 26 12:30am

Thank you so much for your positive comments on Ojjaara. For two years I have not...

https://connect.mayoclinic.org/comment/1167877/

I have not received treatment for myelofibrosis

Discussion: Primary Myelofibrosis with JAK2: Anyone have Ojjaara (momelotinib)?

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2024

NAC sounds interesting. My pains are not from myelofibrosis. I don't have bone pain these days....

https://connect.mayoclinic.org/comment/132662/

My pains are not from myelofibrosis.

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2020

Hi again @davi0937, You have company as I was diagnosed with that also, but in February...

https://connect.mayoclinic.org/comment/1349931/

know if you have primary or secondary myelofibrosis ... I think you have primary myelofibrosis

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 16 8:49pm

I was diagnosed by Mayo with myelofibrosis several years ago. Since then, various clinics have repeatedly...

https://connect.mayoclinic.org/comment/699543/

I was diagnosed by Mayo with myelofibrosis ... clinics have repeatedly said I have myelofibrosis

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2022

Thank you so much for proving this link, sdduan. It's really interesting to hear high-level MPN...

https://connect.mayoclinic.org/comment/1166064/

line: The progression of ET to myelofibrosis

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2024