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301 total results

Comments (281)

May I know which specialist diagnosed you with erythromelalgia and Raynaud's? My wife has calf pain...

https://connect.mayoclinic.org/comment/1072993/

which specialist diagnosed you with erythromelalgia

Discussion: Covid Legs and Toes

Support Group: Post-COVID Recovery & COVID-19

Posted: May 22, 2024

Hi @johnbishop, I have nightly bouts of very hot, dry and burning/tingling feet and ankles, aggravated...

https://connect.mayoclinic.org/comment/213782/

At first I suspected erythromelalgia

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: Mar 31, 2021

I had the gene testing done to see if I had the mutation on SCN9a, the...

https://connect.mayoclinic.org/comment/1255601/

on SCN9a, the gene associated with Erythromelalgia

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: Mar 11 1:25pm

How are you doing? I recalled your symptom of burning face when I read about someone...

https://connect.mayoclinic.org/comment/1223497/

They mentioned a condition called Erythromelalgia

Discussion: Maxillary Sinus Tumor and Facial Burning

Support Group: Ear, Nose & Throat (ENT)

Posted: Jan 28 12:54am

@januaryjane- It does sound like Erythromelalgia, the more you describe your symptoms. This must be so...

https://connect.mayoclinic.org/comment/311835/

@januaryjane- It does sound like Erythromelalgia

Discussion: Sun exposure advice

Support Group: Autoimmune Diseases

Posted: May 25, 2020

I also have non diabetic PN and it seems to be getting a lot worse. Most...

https://connect.mayoclinic.org/comment/1357539/

also dealing with Raynaud's and Erythromelalgia

Discussion: Has anyone found a treatment that helps with peripheral neuropathy?

Support Group: Neuropathy

Posted: Jul 27 10:51am

nancyc777 | @nancyc777 | 1 second ago How are you doing? I have erythromelalgia and I...

https://connect.mayoclinic.org/comment/1055203/

I have erythromelalgia and I spend most

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: Apr 22, 2024

How are you doing now? I am spending most of my day on the couch because...

https://connect.mayoclinic.org/comment/1055336/

just read that new studies show that erythromelalgia

Discussion: Erythromelalgia: What medications or therapies have helped you?

Support Group: Autoimmune Diseases

Posted: Apr 22, 2024

Hello, I’m at a loss as to where this should be posted, so I decided here...

https://connect.mayoclinic.org/comment/213724/

I have Erythromelalgia and I can’t find

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: Sep 26, 2020

I brought in photos and a list of symptoms. If you go to someplace like Mayo,...

https://connect.mayoclinic.org/comment/213712/

my photos and said it looked like Erythromelalgia

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: Feb 28, 2020

Hello, I am hoping there is someone here that can help me. I have a 16...

https://connect.mayoclinic.org/comment/213716/

specialists to determine if she in fact has erythromelalgia ... neurologist is the provider which suggested erythromelalgia

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: Jun 24, 2020

My lower legs have a burning sensation in the front and tightness in the calfs. My...

https://connect.mayoclinic.org/comment/903569/

diagnosed by Mayo Clinic in 2006 with Erythromelalgia

Discussion: Peripheral Neuropathy and benign fasciculation syndrome.

Support Group: Neuropathy

Posted: Jul 28, 2023

I was just directed to this site as I am new to Mayo Connect. I was...

https://connect.mayoclinic.org/comment/213763/

I was diagnosed with erythromelalgia ... I have read a lot of comments on erythromelalgia

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: Feb 15, 2021

Hi,Im getting ready to talk to a Dr. for the first time about my Erythromelalgia symptoms....

https://connect.mayoclinic.org/comment/213713/

a Dr. for the first time about my Erythromelalgia

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: May 31, 2020

Hi @hotfooted that must be frustrating finding more questions that answers while researching. I wanted to...

https://connect.mayoclinic.org/comment/264368/

babyur4me as they have experience with erythromelalgia

Discussion: Erythromelalgia and Myeloproliferative disorders

Support Group: Autoimmune Diseases

Posted: Jun 2, 2019

Hi Butterfly.. Your post caught my eye especially I have family members with Scleroderma and I...

https://connect.mayoclinic.org/comment/259485/

Erythromelalgia, Fibromyalgia, Neuropathy

Discussion: Scleroderma and severe iron in brain

Support Group: Autoimmune Diseases

Posted: May 1, 2019

Hi @cherman, Welcome to Connect. While we wait for other members to share suggestions I thought...

https://connect.mayoclinic.org/comment/753064/

#34; -- The Patient's Guide to Erythromelagia ... from The Erythromelalgia Association ... : https://erythromelalgia.org/wp-content ... others might find helpful: https://erythromelalgia.org

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: Sep 23, 2022

Hello teetee7... Are you keeping up with my "experiment" posts on the Frankincense & Myrrh NEUROPATHY...

https://connect.mayoclinic.org/comment/260520/

surprising that it has done so much for my Erythromelalgia

Discussion: Frankincense and Myrrh for Neuropathy pain

Support Group: Neuropathy

Posted: May 19, 2019

Hello @babyur4me, thank you for the private message. @emfm4me responded to your last post with her...

https://connect.mayoclinic.org/comment/213688/

at the Jacksonville Mayo Clinic for Erythromelalgia