Peripheral Neuropathy and benign fasciculation syndrome.

Posted by sherryw @sherryw, Aug 5, 2019

My neurologist diagnosed me with small fiber peripheral neuropathy. He states i also have BFS (benign fasciculation syndrome.) My legs have weird sensations/zaps/pops, especially at night or when I am lying down. Do others have this problem?

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@bhkh

I have had burning sensations under my both feet fore more than year. It started 2-3 weeks after the 3rd dose of my vaccine. As I was a distant runner, the specialists I visited last year were suspicious to an injury/tightness/nerve compression due to high volume of running.
Last may, for a month, I have episodes of electric shocks on both sides of my head and face. But it disappeared.
 Suddenly, my symptoms got worse 4 month ago. Since then, I have experiencing new symptoms in addition to burning, including tingling, fasciculation (constantly in my calf, and sometime on my face, chest, arm, and back), pain on and under my arms, twitching in my outer ear!, burning sensation in my tongue, abdominal pain, etc.
My EMG and central nerve MRIs have been normal.
It's been more than a month since I started taking gabapentin. It has not been very helpful

It seems to me SFN is the culprit, looking at this link

Please let me know if anyone has experienced these symptoms. Any diagnosis? Treatment?

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I had burning feet on a trip to Europe. Found that massage of the soles, or rolling a tennis ball under the foot helped. I also used biofreeze, in the absence of having a cold pack for my feet. There is such as thing as Red Ear Syndrome, linked to cervical back issues (??!!)

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I have muscle twitching everywhere. I have seen a neurologist who recommended EMG to rule out ALS. After 2 EMG and MRI from head to toe, I was diagnosed as Benign Flatulation Syndrome.i have strength and can function . Anyone else with this diagnosis?

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Hi, my name is Paul. I am 74 and not savvy on how to use this. But here it goes. I have been diagnosed with BFS. Not sure how long i have had twitching but a year ago it became very noticeable in both legs. The twitching has now spread everywhere. I am up tonight with both forearms feeling numb. This is new. Anyone else with BFS with numbness?

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Anyone diagnosed with BFS?

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@pauliwog1949

I have muscle twitching everywhere. I have seen a neurologist who recommended EMG to rule out ALS. After 2 EMG and MRI from head to toe, I was diagnosed as Benign Flatulation Syndrome.i have strength and can function . Anyone else with this diagnosis?

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@pauliwog1949

I have muscle twitching everywhere. I have seen a neurologist who recommended EMG to rule out ALS. After 2 EMG and MRI from head to toe, I was diagnosed as Benign Flatulation Syndrome.i have strength and can function . Anyone else with this diagnosis?

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I have had leg muscle tightening in the last few months. My primary Dr indicated it may be electrolyte shortage. I am increasing my intake of coconut water. That has helped some. I read that dehydration can also cause those symtoms. I am increasing my liquid consumption also. I use biofreeze, orthogel, hemp rollon, Bonnie's balm, and Wisemen Healing balm (frankinscense and myrrh oil) to give some nearly immediate relief. Compression socks also help. My discomfort moves around in the calf and thigh muscles in both legs. I use these on hand and wrist tightenings also with some success. Not sure we are in the same boat, but might be worth trying... another 1949'er Ken.

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@pauliwog1949

I have muscle twitching everywhere. I have seen a neurologist who recommended EMG to rule out ALS. After 2 EMG and MRI from head to toe, I was diagnosed as Benign Flatulation Syndrome.i have strength and can function . Anyone else with this diagnosis?

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Thanks for your reply. Mine have been going on for a year. Went to primary and he explored de-hydration. This was early on. He eventually sent me to a neurologist who recommended EMG. Had 2 plus head to toe MRI, everything normal which was a relief. No ALS. my twitching has progressed to anywhere on my body. Recently, cramping in my forearms. Sucks to get old😂

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@pauliwog1949

I have muscle twitching everywhere. I have seen a neurologist who recommended EMG to rule out ALS. After 2 EMG and MRI from head to toe, I was diagnosed as Benign Flatulation Syndrome.i have strength and can function . Anyone else with this diagnosis?

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Hello @pauliwog1949. Welcome to Mayo Clinic Connect. I noticed your two posts on muscle twitching, so you will notice that I've moved your post into a discussion on benign fasciculation syndrome that can be found here:
- Peripheral Neuropathy and benign fasciculation syndrome: https://connect.mayoclinic.org/discussion/peripheral-neuropathy-and-benign-fasciculation-syndrome/

I see members such as @scolio and @schuelle have joined you. What have you been doing since the diagnosis and has anything helped?

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My lower legs have a burning sensation in the front and tightness in the calfs. My feet are either blue/purple and cold or red and hot. Also my knees feel hat, mostly at might. I was diagnosed by Mayo Clinic in 2006 with Erythromelalgia and Raynaud's and 4 years ago with Neuropathy. It seems to be getting worse. Gabapentin gave me no relief. Right now I am taking 2 X-strong Aspirin at bedtime and use Aspercream with Lidocaine. I am thinking about trying CBD capsules. Has anyone tried it for Neuropathy?

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Burning toes and legs hot for 6 months and have fasciculations all over. Had a EMG today, ALS ruled out but the neurologist only guessed it could be Raynauds follow up in 6 months

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