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354 total results
Comments (343)
Hello. Thank u for ur email. I had an intramedullary spinal cord tumor. It was respected...
neurological deficits n now also have arachnoiditis ... Any help, info, or support group would
Support Group: Spine Health
Posted: Jan 23, 2020
David, I know the feeling of terrible pain for which there's no known cure. I know...
;s been an active discussion about arachnoiditis ... johnbishop or @hopeful33250 could help ... out with helpful links.
Support Group: Chronic Pain
Posted: Nov 30, 2019
Please be patient. He has RETIRED but keeps a very small staff to help with his...
RETIRED but keeps a very small staff to help ... Institute of Health.) which lists Arachnoiditis
Support Group: Spine Health
Posted: Sep 24, 2019
Hi, I´m Joan. Chronic Pain for many years, stemming from Arachnoiditis (finally diagnosed in 2010, though...
Pain for many years, stemming from Arachnoiditis ... tincture drops, but it has not really helped ... couple of months and find it VERY helpful ... If I can be of help to anyone, will
Support Group: Chronic Pain
Posted: Aug 6, 2019
Thank you Jennifer. I think pudendal nerve pain was another rabbit hole that one of my...
It looks like arachnoiditis is my problem ... nerve clumping and this means I have arachnoiditis ... pain pump was put in that doesn't help
Support Group: Spine Health
Posted: Jul 15, 2019
Thought it might be good to check in with some of you who have talked about...
were experiencing with your adhesive arachnoiditis ... of sharing in this conversation to help ... suggestions for others of what has helped
Dear Lisa, I´m not sure if I let you know that I followed your advice and...
because of the two conditions (Adhesive Arachnoiditis ... appears that certain symptoms will be helped
Support Group: Spine Health
Posted: Jun 29, 2019
Hi @neet, I would like to add my welcome to Connect along with @lisalucier and other...
few articles on head injuries and arachnoid ... you've seen them or if they are helpful ... structural brain injury associated with arachnoid ... pubmed/27032926 Haemorrhage into an arachnoid ... Organization for Rare Disorders - Arachnoid
Posted: Jun 25, 2019
I am so sorry you are going through this. Where is yours located? Both you and...
Looking for a specialist that deal with arachnoid ... Are you still looking for help?
Discussion: Arachnoid Cyst
Support Group: Spine Health
Posted: Mar 3, 2019
@clairecas Thank you so much, Claire. I truly appreciate your prayers. My love for and faith...
Osteoarthritis, dysphasia, Arachnoiditis ... Now I’m 65 and in ministry helping abused ... We suffer so we can help others who
Support Group: Neuropathy
Posted: Feb 24, 2019
Hi @jseibert and welcome to Connect. You may have noticed that I moved your post to...
post to this existing discussion on Arachnoid ... with others who have experience with arachnoid ... relevant discussion that you may find helpful ... /discussion/arachnoiditis/ It must ... bessiealice as they have mentioned arachnoid
Discussion: Arachnoid Cyst
Support Group: Spine Health
Posted: Feb 13, 2019
I have AA and a rheumatologist helped me. I have a doctor friend that has Arachnoiditis...
I have AA and a rheumatologist helped ... I have a doctor friend that has Arachnoiditis ... This is what helped me the most.
Support Group: Spine Health
Posted: Jan 29, 2019
Hello, my son is now 4 years old and was diagnosed with an archnoid cyst on...
years old and was diagnosed with an archnoid ... going to give a little back story to help ... is when they diagnosed him with the Archnoid
Discussion: Arachnoid Cyst
Support Group: Spine Health
Posted: Jan 10, 2019
Thank you, John. You know, sometimes if I walk barefoot on a tile floor (which I...
(which I avoid bc it triggers the Arachnoiditis ... Maybe this will help someone… when the
Discussion: neuropathy
Support Group: Neuropathy
Posted: Jan 4, 2019
Hello @llc927, welcome to Connect. Here are a couple of conversations you may find helpful to...
couple of conversations you may find helpful ... at and introduce yourself in: - Arachnoiditis ... /connect.mayoclinic.org/discussion/arachnoiditis ... i-am-desperate-to-find-a-dr-who-treats-arachnoiditis-i-live ... connect.mayoclinic.org/discussion/any-adhesive-arachnoiditis-members-here
Support Group: Chronic Pain
Posted: Sep 6, 2018
Pam, I too have Adhesive Arachnoditis from way too many steroid injections and other procedures that...
Pam, I too have Adhesive Arachnoditis ... If you read about Arachnoditis/ Failed ... opened the eyes of many doctors about Arachnoditis ... and soul for his patients Hope this helps
Support Group: Spine Health
Posted: Jul 14, 2018
Hi. I. Am. Suffering. With. Excruciating pain in my back going down my legs every day...
every day of my life I have adhesive arachnoiditis ... upgrade it needs to have something to help ... in every sense of the word I need help ... out there that knows where I can get help ... with this dreadful disease please help
Support Group: Spine Health
Posted: Jan 21, 2018