Actemra – search | You searched for comments

To narrow your search, try adding quotation marks around phrases.

Search tips

Search by keywords or complete phrases.
To narrow your search, try adding quotation marks around phrases.
Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.

2,073 total results

Comments (2,008)

Thank you so much for your input. You are giving me hope that I will feel...

https://connect.mayoclinic.org/comment/1299414/

I have mentioned Actemra to my doctor

Discussion: Tapering off prednisone with GCA temporal arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 7 9:11pm

Sorry to hear you're feeling lousy. I was tapering 1mg every 2 weeks, until I got...

https://connect.mayoclinic.org/comment/1346590/

I don't think the actemra assists

Discussion: Actemra

Support Group: Autoimmune Diseases

Posted: Jul 12 1:14pm

@ldg001 Taking my husband off the prednisone unfortunately is not an option at the moment. However,...

https://connect.mayoclinic.org/comment/1104355/

He's taking Actemra which is a weekly

Discussion: STOP! Don't do this if you have osteoporosis

Support Group: Osteoporosis & Bone Health

Posted: Jul 12, 2024

I have just gone from 6mg to 5 mg Prednisone and am feeling nervous about my...

https://connect.mayoclinic.org/comment/969257/

Recently my rheumatologist put me on Actemra

Discussion: How often does PMR progress to GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 22, 2023

My pulmonologist suggested Ofev but I've hesitated because I recently started Actemra which is supposed to...

https://connect.mayoclinic.org/comment/908034/

hesitated because I recently started Actemra

Discussion: Interstitial pulmonary fibrosis

Support Group: Lung Health

Posted: Aug 5, 2023

Hi, I have GCA~~my diagnosis was missed time after time until I suffered the consequences. Personally,...

https://connect.mayoclinic.org/comment/857329/

three days of IV pred, along with Actemra

Discussion: Is everyone here diagnosed with PMR seeing a rheumatologist?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 9, 2023

I have taken Actemra for the last 4 years. I got off prednisone about 3 years...

https://connect.mayoclinic.org/comment/795868/

I have taken Actemra for the last 4

Discussion: PMR and exhaustion

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 12, 2023

I had monthly Actemra infusions for 1 year, tapering to every other month for 1 year...

https://connect.mayoclinic.org/comment/815852/

I had monthly Actemra infusions for

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 23, 2023

Your taper seems to be going well. That's about normal. When I get to 7 I...

https://connect.mayoclinic.org/comment/610078/

also do an injection on Friday of Actemra

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 19, 2021

I was diagnosed with PMR and GCA in late June of 2024. I started on 60...

https://connect.mayoclinic.org/comment/1280997/

day then, and started taking weekly Actemra

Discussion: Taking Prednisone for PMR &!actemra to wean off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 13 1:37pm

Hopefully the Actemra will start helping you soon and you'll be able to start tapering the...

https://connect.mayoclinic.org/comment/1283288/

Hopefully the Actemra will start helping

Discussion: Taking prednisone before sleep.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 16 11:31am

I had Dr. Scott Volgesang. Very nice man with a sense of humor that I also...

https://connect.mayoclinic.org/comment/983320/

Going off Actemra might be a good choice

Discussion: Biologic caused infections

Support Group: Autoimmune Diseases

Posted: Dec 19, 2023

I too have LCA , 80 years old and live in Australia. Don't know but reasonably...

https://connect.mayoclinic.org/comment/868337/

#39;t know but reasonably sure that Actemra

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 28, 2023

It has taken me 2 years to get to 7 mg of Prednisone from 80 mg....

https://connect.mayoclinic.org/comment/737276/

Up and down, Methotrexate and Actemra

Discussion: Chronic Fatigue while tapering Prednisone for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 14, 2022

Hello again, @maryflorida. So happy you will be referred to a neurologist. My neurologist is part...

https://connect.mayoclinic.org/comment/333557/

Because she has me on Actemra, I get

Discussion: Vascular neuropathy?

Support Group: Neuropathy

Posted: Jan 31, 2021

We should compare notes sometime. My uveitis was "steroid responsive." It was also called "severe" and...

https://connect.mayoclinic.org/comment/812461/

My first biologic ever was Actemra just ... turned out when I was switched back to Actemra ... have also done monthly infusions of Actemra

Discussion: Timing of taking prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 16, 2023

@ddmo Hi Dianne. You may find the following discussion useful. It includes my comments along with...

https://connect.mayoclinic.org/comment/977844/

/connect.mayoclinic.org/discussion/actemra ... When Actemra enabled me to taper off

Discussion: GCA conserns

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 9, 2023

Actemra is FDA approved for GCA only. Kevzara is FDA approved for PMR only. Either of...

https://connect.mayoclinic.org/comment/951085/

Actemra is FDA approved for GCA only ... After Actemra was started, I got off