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2,012 total results
Comments (1,934)
Hi @evelyn123, welcome to Connect. I also have PMR but it is currently in remission. It's...
The first took me about 3 years to taper ... off of prednisone. ... took me about a year and a half to taper ... off of prednisone. ... plan to help you taper off of prednisone
From my personal experience with PMR, no 6 day dose would get rid of it. First...
me 3 and 1/2 years before I could taper ... off of prednisone and be pain free ... me 1 and half years before I could taper ... off.
So far, I am unaware of any side effects of Actemra. I've been having weekly injections...
is also the point at which I began tapering ... off the 60 mg/day of Prednisone I was ... I am now down to 9 mg/day of Prednisone ... avoid relapse, I will be completely off ... Prednisone in mid-October 2023, but
Posted: Jun 22, 2023
I am on Kevzara, too, starting in April, soon after I was diagnosed and started on...
after I was diagnosed and started on prednisone ... Now I am starting to taper off from ... on 8 and I think will try a slower taper
Posted: Oct 6, 2023
I believe you will get better eventually. For me PmR came on fast and hard. It...
just a bit stiff in the AM and have tapered ... to 2.5 mg predisone. ... I will be so glad to be off predisone
Posted: Oct 9, 2023
Have they done a kidney biopsy? I was diagnosed with IGA vasculitis and I had blood...
upped to 60mg, when I was weaning off ... in 2 weeks and hoping he takes me off ... Prednisone is bad but I’m doing soo ... much better now that I’ve tapered down
Hi apb, You are not alone! I was diagnosed with TTP in 2009. The cause is...
am treated with plasma pheresis and prednisone ... (80 mg then eventually taper off). ... 18,2022 I didn’t receive Rituximab, just Prednisone ... The prednisone contributes to higher
Posted: Sep 6, 2023
It took over 4 months to diagnose my PMR. I could barely walk. I was so...
my PMR and started me on 15 mg of prednisone ... it for 4 months, than began a slow taper ... off of it. ... The prednisone was not fun, and I developed ... Even with that, the prednisone was so
Hi @chzuck, I've had two occurrences of PMR. Starting at 20mg prednisone for both. I always...
Starting at 20mg prednisone for both ... I also only tapered when my pain level ... off, the second time six years later ... took 1 and a half years to taper off ... pain in the morning and the dose of prednisone
Posted: Aug 23, 2023
Hi, Just to add to the confusion. When I was diagnosed in May 2023 I started...
She then upped my prednisone to 30mg ... without pain during several months of tapering ... No side effects so far from prednisone ... My goal is to get off the prednisone ... Right now I am tapering 1mg per month
wilmigtonemperor, after reading a lot of discussions on this site, it is evident that no two...
My rheumatologist is postulating prednisone ... tapering triggering an autoimmune response ... I'm trying to ward off the swelling
I think you would have much to contribute to a PMR forum. I don't know where...
when I had just manged to taper off ... worked well for PMR and allowed me to taper ... off prednisone. ... Unfortunately, I couldn't taper ... off prednisone a second time because
@emaureen, I think we are all a little impatient when trying to taper off of prednisone....
a little impatient when trying to taper ... off of prednisone. ... also explained when it was time to taper ... dose by half of what I previously tapered ... level when you wake up and the dose of prednisone
I think the 5.9 years as the "average" duration of PMR came from the following study....
Some people take prednisone for a short ... period of time and some people take prednisone ... Some people take prednisone for the ... rest of their lives ... some people taper ... off quickly.
Posted: Aug 10, 2023
I don't think normal is coming back for me. I had started with 15mg of Prednisone...
I had started with 15mg of Prednisone ... after being up a half hour without Prednisone ... doctor she gave me instructions about tapering ... off *if things are going well* - two ... pain relief, then when do you start tapering
It took maybe another few days for 100%! I was good at this level until I...
Rheumy put me up 1 mg to 11 mg prednisone ... days, then back to 10, i began to taper ... oncologist says we have to get me off
Since you live in Colorado I would recommend you get a referral to doctor Ann’s Louise...
Has she considered a study with IViG/prednisone ... a year she had two groups one IVIG/prednisone ... I have had friends tapered off of gabapentin ... She came off of it and felt a lot better
Support Group: Neuropathy
Posted: Oct 15, 2023