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1,156 total results
Comments (1,069)
Hi @1pearl, I know in retrospect you’re feeling that you shouldn’t have gotten the bone marrow...
https://connect.mayoclinic.org/comment/1348033/
of blood cells such as red cells (PV
with platelets that high your very lucky you didnt have a clot form, TIA or even...
https://connect.mayoclinic.org/comment/1404569/
told the medication we take for the PV
Hi @raremiracl2 I posted this same reply where we left off in the PV discussion. But...
https://connect.mayoclinic.org/comment/795979/
same reply where we left off in the PV
After three Phlebotomies, I went from 720 down to 410 on platelets and 50 down to...
https://connect.mayoclinic.org/comment/1171914/
Many people who have PV have bone marrow
I was diagnosed with PV with a JKA2 mutant almos5 2 years ago. I will be...
https://connect.mayoclinic.org/comment/1065849/
I was diagnosed with PV with a JKA2
Thank you so much for all your encouragement, you are super positive & determined to keep...
https://connect.mayoclinic.org/comment/966802/
warfarin since the year before my PV
Hi @lyno29, You posted: “I’m choosing not to do chemo, even though my doctor recommends it....
https://connect.mayoclinic.org/comment/1230545/
myeloproliferative neoplasms such as ET, PV
@jabrown0407 I've been struggling with severe pain, high pain level comes in spurts and I call...
https://connect.mayoclinic.org/comment/1432177/
BMBX done about 9 months after my PV
Update! I started on Besremi in 2023, being injected in the clinic. I'm on Medicare Traditional...
https://connect.mayoclinic.org/comment/1010062/
very uneven with the drug and the PV
Good morning, @chella65. Thank you for your kind words. I’m happy I can be that voice...
https://connect.mayoclinic.org/comment/912141/
what is causing a condition such as PV
Hi @1pearl, I’m putting together pieces of your ET puzzle. When we first spoke the other...
https://connect.mayoclinic.org/comment/1231285/
myeloproliferative neoplasm (MPN) such as ET, PV
Lisa: I recently was diagnosed with PV and I went down the rabbit hole, reading everything...
https://connect.mayoclinic.org/comment/1163731/
Lisa: I recently was diagnosed with PV
Hi all. I am in the process of being diagnosed with an MPN. The doctor hasn't...
https://connect.mayoclinic.org/comment/878074/
but from my research it can only be PV
@binkybunny You received some great advice already. I just wanted to jump in and say how...
https://connect.mayoclinic.org/comment/1404042/
I was diagnosed with PV November 2024
I can see your concern for others dependent on you is stronger than your concern for...
https://connect.mayoclinic.org/comment/1325173/
signals emanate from the ostia of the PV
Hi Tom, There are quite a few members in the Connect forum who have been diagnosed...
https://connect.mayoclinic.org/comment/1076631/
Myeloproliferative disorder such as ET, PV
@eakin Movement helps my symptoms, sometimes, not all the time so more movement during the night...
https://connect.mayoclinic.org/comment/1413099/
were all very concerned when I had PV
@nicolekapr Hi Nicole, I’m feeling great, thank you for asking. Another BMBX coming up in July...
https://connect.mayoclinic.org/comment/604392/
a high number is also present with PV
Hi, Been a minute since ive been on here and realized I do need to get...
https://connect.mayoclinic.org/comment/1407215/
2 oncologists both insisted I had PV
Good morning, @sudutoo. I hope you have your reading glasses on! You have a lot of...
https://connect.mayoclinic.org/comment/1050553/
key factor in the development of ET, PV
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