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364 total results

Comments (338)

rhawk, I was diagnosed with cutaneous masto almost 40 years ago. I am Case #138 ever...

https://connect.mayoclinic.org/comment/729259/

I am now self-diagnosed with MCAS and ... How did you get diagnosed with MCAS?

Discussion: Mast Cell Activation Syndrome: What treatments help you?

Support Group: Blood Cancers & Disorders

Posted: Jul 21, 2022

I don’t have advice but I have empathy. The exhaustion hits me around 2:00 pm. Headaches...

https://connect.mayoclinic.org/comment/1282555/

Headaches whenever… I also have MCAS

Discussion: Teriparitide - ugly fatigue & headache. Need ideas, please!

Support Group: Osteoporosis & Bone Health

Posted: Apr 15 1:19pm

Yes, and thats my clue that my Mast Cell Activation Syndrome is acting up and I...

https://connect.mayoclinic.org/comment/886494/

you may want to school yourself on MCAS ... MCAS can also give you heart palpitations

Discussion: Any longhaulers noticing vision changes?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jun 28, 2023

Hi @dmearney There are a number of doctors who treat Mast Cell Activation Syndrome (MCAS) at...

https://connect.mayoclinic.org/comment/805313/

treat Mast Cell Activation Syndrome (MCAS ... 20352859 Have you been diagnosed with MCAS

Discussion: Mast Cell Activation Syndrome: What treatments help you?

Support Group: Blood Cancers & Disorders

Posted: Feb 2, 2023

Welcome, @jessindy. I moved your post to the Diabetes & Endocrine System group here: https://connect.mayoclinic.org/group/diabetes-and-endocrine-problems/ Here...

https://connect.mayoclinic.org/comment/777015/

edshsd-calling-all-types/ - Ehlers Danlos Syndrome, MCAS ... /discussion/ehlers-danlos-syndrome-mcas-pots-and-mals

Discussion: Hashimoto's, low AM cortisol, high PM cortisol

Support Group: Diabetes & Endocrine System

Posted: Nov 24, 2022

I think I just lost my long response. All to say I appreciate your response and...

https://connect.mayoclinic.org/comment/1287052/

MCAS , chronic Lyme and more.

Discussion: Teriparitide - ugly fatigue & headache. Need ideas, please!

Support Group: Osteoporosis & Bone Health

Posted: Apr 21 6:46pm

Just wanted to update. My tinnitus and whooshing are gone, seems to be something I develop...

https://connect.mayoclinic.org/comment/919875/

Additionally, I have been diagnosed with MCAS

Discussion: Thumping in right ear, only triggered by sound

Support Group: Ear, Nose & Throat (ENT)

Posted: Aug 27, 2023

Ah, cool. Regarding treatments: loradidine and quercertin. I keep a fairly healthy diet and lifestyle. During...

https://connect.mayoclinic.org/comment/742117/

ashwagandha supplemtent helps with the MCAS

Discussion: Mast Cell Activation Syndrome: What treatments help you?

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2022

I'm not sure as I've never been diagnosed as I always present as a perfectly healthy...

https://connect.mayoclinic.org/comment/775360/

an vocal advocate for people with MCAS ... , and I believe MCAS is major component

Discussion: What testing should I look forward to be properly tested for MCAS

Support Group: Autoimmune Diseases

Posted: Nov 20, 2022

Exactly my symptoms … with the vertigo but now acid reflux .. my diet is totally...

https://connect.mayoclinic.org/comment/897711/

totally low histamine natural as I have MCAS

Discussion: Have long haul covid and acid reflux; what are treatments?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 17, 2023

I have had serious abdominal pain since childhood, urticarias, cough problems, and other symptoms that match...

https://connect.mayoclinic.org/comment/134292/

the new international criteria for MCAS ... researchers now know that IBS and MCAS ... But not the MCAS symptoms. ... But that test is not one for MCAS. ... Idiopathic MCAS.

Discussion: Mast Cell Activation

Support Group: Blood Cancers & Disorders

Posted: May 3, 2017

It's turmeric. Wonderful Indian/ayurvedic remedy. BUT Milk for me right now is a huge MCAS inducer...

https://connect.mayoclinic.org/comment/899604/

BUT Milk for me right now is a huge MCAS

Discussion: Has anyone tried golden milk for their long Covid?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 21, 2023

Oh you are in NYC...I'm just in a rural area with so little access to decent...

https://connect.mayoclinic.org/comment/1374316/

How do they treat MCAS?

Discussion: I am afraid of trying Tymlos and other drugs due to side effects

Support Group: Osteoporosis & Bone Health

Posted: Aug 19 12:56pm

There is an incredible Facebook page for Mastocytosis and Mast Cell Disorders. Over 19,000 people in...

https://connect.mayoclinic.org/comment/943392/

who listens and is experienced in MCAS

Discussion: Mast Cell Activation

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2023

@colleenyoung can you get me admitted to mayo for long haul and reinfection? I feel like...

https://connect.mayoclinic.org/comment/977281/

I dont know of i have mcas, blood clots

Discussion: Can our doctors call Mayo long haul clinic to guide and help us?

Support Group: Post-COVID Recovery & COVID-19

Posted: Dec 8, 2023

Correct. 19 months of face and neck hives triggered by paxlovid that altered something in my...

https://connect.mayoclinic.org/comment/960623/

paxlovid that altered something in my MCAS ... I've tried all the basic MCAS stuff ... I need an MCAS expert and can't ... My PCP recommended an MCAS specialist ... see an allergist or dermatologist or MCAS

Discussion: Severe Allergy to Paxlovid

Support Group: Post-COVID Recovery & COVID-19

Posted: Nov 7, 2023

Additional comment on that. The normal protocols for MCAS of high veg. Diet did not work...

https://connect.mayoclinic.org/comment/886499/

The normal protocols for MCAS of high

Discussion: Has anyone experienced Covid Gut? What helps?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jun 28, 2023

@vostie I’m so sorry that you’re dealing With all the skin problems and Long Covid! I...

https://connect.mayoclinic.org/comment/1257235/

hopefully, find a doctor who knows MCAS

Discussion: skin is extremely sensitive to touch. it. started after Covid

Support Group: Autoimmune Diseases

Posted: Mar 13 3:54pm

Same here. It has been that way for me from the start though, bad days and...

https://connect.mayoclinic.org/comment/930121/

see if it has to do with histamine / MCAS

Discussion: Continued Post-Nasal Drip and Constant Mucus in Throat

Support Group: Post-COVID Recovery & COVID-19

Posted: Sep 14, 2023

I am just starting to explore reasons why I have these same symptoms. Possibilities that I...

https://connect.mayoclinic.org/comment/1052309/

to Mass Cell Activation Syndrome (MCAS

Discussion: Adrenaline spikes: Med detective needed, award given

Support Group: Diabetes & Endocrine System

Posted: Apr 17, 2024