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853 total results
Comments (780)
Sounds like some form of Amyloidosis to me, perhaps Gelsolin. That is what I went through.
https://connect.mayoclinic.org/comment/334485/
Sounds like some form of Amyloidosis
I'm tagging @robertreidrx @jam5 and others who have experience with Wild-type ATTR Amyloidosis (ATTRwt) to join...
https://connect.mayoclinic.org/comment/1265110/
have experience with Wild-type ATTR Amyloidosis
Is anyone dealing with either of these cancers? My oncologist is currently trying to rule out...
https://connect.mayoclinic.org/comment/1276256/
is currently trying to rule out AL Amyloidosis
luckyme54216 @luckyme54216, I want to welcome you to Connect. I can understand why you have so...
https://connect.mayoclinic.org/comment/88312/
I don't know anything about AL Amyloidosis ... I also read that Amyloidosis is often ... protein disorders of the blood, such as amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis
Have you tried University of Pennsylvania Hospital? They run clinical trials for some types of amyloidosis....
https://connect.mayoclinic.org/comment/381222/
clinical trials for some types of amyloidosis ... trial at U Penn for Wild Type Cardiac Amyloidosis
@shorelady, I'd like to add my welcome along with @gingerw and tagging other members who have...
https://connect.mayoclinic.org/comment/807258/
members who have both myeloma and amyloidosis ... discussion:
- Current diagnosis is Amyloidosis
After the kidney byopsia,I had a diagnostic of Amyloidosis Al, and my gfr go down to...
https://connect.mayoclinic.org/comment/1268984/
kidney byopsia,I had a diagnostic of Amyloidosis
Pyrophosphate scans , history and labs with a doctor knowledgeable about the different forms of Amyloidosis
https://connect.mayoclinic.org/comment/754613/
knowledgeable about the different forms of Amyloidosis
@colleenyoung Colleen, I am new to this form and I am being treated for Amyloidosis with...
https://connect.mayoclinic.org/comment/1041672/
this form and I am being treated for Amyloidosis ... love to connect with others who have Amyloidosis
Hello @gala75, Welcome to Connect. I know it's difficult to be in so much pain and...
https://connect.mayoclinic.org/comment/768054/
@oldkarl has discussed amyloidosis in ... Hereditary ATTR Amyloidosis Testing ... www.hattrguide.com/diagnosing-hattr-amyloidosis ... /
Amyloidosis Foundation
— http: ... //amyloidosis.org/facts/al/
Diagnosis
I hope they can treat the amyloidosis for you, and you can improve 🌺
https://connect.mayoclinic.org/comment/963531/
I hope they can treat the amyloidosis
My husband has restrictive cardiomyopathy due to amyloidosis. He only takes diuretics currently.
https://connect.mayoclinic.org/comment/210857/
restrictive cardiomyopathy due to amyloidosis
Hi @rbnwalls2, have you been diagnosed with cardiac amyloidosis, also called “Stiff Heart Syndrome?”
https://connect.mayoclinic.org/comment/103017/
have you been diagnosed with cardiac amyloidosis
Thanks for pointing that out, @azlatina. Unfortunately that webinar is no longer available. However, here are...
https://connect.mayoclinic.org/comment/732756/
Amyloidosis: What you need to know - ... ://youtu.be/p6uUlqypLzA
Cardiac Amyloidosis
My first sign of Amyloidosis was increased protein in my urine….. Had a 24hr urine &...
https://connect.mayoclinic.org/comment/1119946/
My first sign of Amyloidosis was increased ... Confirmed the presence of amyloidosis ... My amyloidosis was in my kidneys &
No and I asked my cardiologist when I met with her yesterday if my HCM dx...
https://connect.mayoclinic.org/comment/945994/
could be in any way confused with amyloidosis ... cardiologist said that my labs checked for Amyloidosis ... light chain, serum, free” and that Amyloidosis
Sorry to hear of all your disappointments Is Hereditary Gersolin Amyloidosis different than HATTR?
https://connect.mayoclinic.org/comment/213889/
disappointments
Is Hereditary Gersolin Amyloidosis
After the kidney byopsia,I had a diagnostic of Amyloidosis Al, and my gfr go down to...
https://connect.mayoclinic.org/comment/1268990/
kidney byopsia,I had a diagnostic of Amyloidosis
I am in Florida as well, Lakeland, and my treatment is in Tampa. The treatment plan...
https://connect.mayoclinic.org/comment/1270412/
andromeda trail which is standard for Al Amyloidosis
s Seek an opinion with a cardiologist who is knowledgeable and experienced about cardiac amyloidosis at...
https://connect.mayoclinic.org/comment/761344/
knowledgeable and experienced about cardiac amyloidosis
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