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826 total results
Comments (757)
Pyrophosphate scans , history and labs with a doctor knowledgeable about the different forms of Amyloidosis
https://connect.mayoclinic.org/comment/754613/
knowledgeable about the different forms of Amyloidosis
Hello @gala75, Welcome to Connect. I know it's difficult to be in so much pain and...
https://connect.mayoclinic.org/comment/768054/
@oldkarl has discussed amyloidosis in ... Hereditary ATTR Amyloidosis Testing ... www.hattrguide.com/diagnosing-hattr-amyloidosis ... /
Amyloidosis Foundation
— http: ... //amyloidosis.org/facts/al/
Diagnosis
For individuals who are immunocompromised and also have cardiac amyloidosis is this drug contraindicated due to...
https://connect.mayoclinic.org/comment/673967/
immunocompromised and also have cardiac amyloidosis
Sounds like some form of Amyloidosis to me, perhaps Gelsolin. That is what I went through.
https://connect.mayoclinic.org/comment/334485/
Sounds like some form of Amyloidosis
I hope they can treat the amyloidosis for you, and you can improve 🌺
https://connect.mayoclinic.org/comment/963531/
I hope they can treat the amyloidosis
Thanks for pointing that out, @azlatina. Unfortunately that webinar is no longer available. However, here are...
https://connect.mayoclinic.org/comment/732756/
Amyloidosis: What you need to know - ... ://youtu.be/p6uUlqypLzA
Cardiac Amyloidosis
Finally I got an appointment with Dr Grajales Cruz on May 5. I hope to find...
https://connect.mayoclinic.org/comment/1288965/
treatment that helps me to control the amyloidosis
Was the Amyloidosis caused from the Septel Alcohol Ablation . I am glad to hear your...
https://connect.mayoclinic.org/comment/1314157/
Was the Amyloidosis caused from the
I also diagnosis with ATTR amyloidosis. Its a new desease in South Africa an medicenes for...
https://connect.mayoclinic.org/comment/1301488/
I also diagnosis with ATTR amyloidosis
My husband has restrictive cardiomyopathy due to amyloidosis. He only takes diuretics currently.
https://connect.mayoclinic.org/comment/210857/
restrictive cardiomyopathy due to amyloidosis
Sorry to hear of all your disappointments Is Hereditary Gersolin Amyloidosis different than HATTR?
https://connect.mayoclinic.org/comment/213889/
disappointments
Is Hereditary Gersolin Amyloidosis
Hi @rbnwalls2, have you been diagnosed with cardiac amyloidosis, also called “Stiff Heart Syndrome?”
https://connect.mayoclinic.org/comment/103017/
have you been diagnosed with cardiac amyloidosis
My first sign of Amyloidosis was increased protein in my urine….. Had a 24hr urine &...
https://connect.mayoclinic.org/comment/1119946/
My first sign of Amyloidosis was increased ... Confirmed the presence of amyloidosis ... My amyloidosis was in my kidneys &
No and I asked my cardiologist when I met with her yesterday if my HCM dx...
https://connect.mayoclinic.org/comment/945994/
could be in any way confused with amyloidosis ... cardiologist said that my labs checked for Amyloidosis ... light chain, serum, free” and that Amyloidosis
I have had the same positive results with Zofran. I don't need it often, but on...
https://connect.mayoclinic.org/comment/1330874/
darzalex faspro injections (chemo) for Amyloidosis
s Seek an opinion with a cardiologist who is knowledgeable and experienced about cardiac amyloidosis at...
https://connect.mayoclinic.org/comment/761344/
knowledgeable and experienced about cardiac amyloidosis
@oakbourne First, I always welcome the questions about Amyloidosis. I have my own story on the...
https://connect.mayoclinic.org/comment/163068/
always welcome the questions about Amyloidosis ... more at the Mayo search line under Amyloidosis ... Hereditary gelsolin amyloidosis. ... slowly progressive but devastating amyloidosis ... ; hereditary amyloidosis; peripheral
What do you mean Finnish Amyloidosis? I have Amyloidosis of Laryngeal and it spread to sinuses...
https://connect.mayoclinic.org/comment/684904/
What do you mean Finnish Amyloidosis ... I have Amyloidosis of Laryngeal and
@rosalynclifton Hi, Rosalyn. Several years ago, Mayo issued a list of signs ond symptoms of Gelsolin...
https://connect.mayoclinic.org/comment/333038/
of signs ond symptoms of Gelsolin Amyloidosis ... learned later that I have GSN (AGel) Amyloidosis
Welcome, @chrissteyn51. I moved your question about medications for amyloidosis ATTR to this existing discussion to...
https://connect.mayoclinic.org/comment/1265776/
your question about medications for amyloidosis ... - Wild-type ATTR Amyloidosis (ATTRwt
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