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Comments (979)
Boy, can I relate to this thread! I too experience SVT and PVCs a lot, resulting...
because of test results that show I have small ... fiber neuropathy, and I'm hoping ... groups like this are so helpful to ... of having to debate the reality of what ... hugs and wishes for an accurate and helpful
Posted: May 18, 2025
Hello @luckycharms4me, Welcome to Connect. I know it can be scary and worrisome when you have...
numbness and a little tingling with my small ... fiber peripheral neuropathy but no ... the following discussions to learn what ... others have shared: -- Neuropathy ... Have you thought about seeking help
Support Group: Neuropathy
Posted: Oct 20, 2022
@johnbishop, I can not find the words to express how happy I am that you started...
I've been following the neuropathy ... No mention of small fiber or large fiber ... acupuncture or specific exercises could help ... and feet were trite in contrast to what ... the other group but don't know what
Support Group: Neuropathy
Posted: Sep 11, 2020
My husband is in cybersecurity for department of defense. He could look at setting us up...
For example what triggers your neuropathy ... and what helps. ... called spammers that claim to have neuropathy ... That is a problem with the Facebook neuropathy ... That have small fiber neuropathy.
Support Group: Neuropathy
Posted: Jun 12, 2025
Thank you, Ray, for your arduous endeavors! I am a lay person with a degree in...
just desperate to find something to help ... with small fiber neuropathy. ... on treatment and that's kinda what
I've been taking low dose naltrexone for a little over a year now, and I've found...
ruled out Parkinson's but showed small ... fiber neuropathy. ... neurologist at John's Hopkins Small ... Fiber Neuropathy Center, and further ... What I've found is that the naltrexone
Support Group: Neuropathy
Posted: Jun 30, 2025
@mmmerrimac: This Small Fiber Neuropathy lecture video you shared with us was fantastic. Yes, a little...
@mmmerrimac: This Small Fiber Neuropathy ... little over my head, but I finally had neuropathy ... However, I now can understand what is ... happening in my body when I have neuropathy ... This gives me a tool to help me accept
Discussion: Help me diagnose
Support Group: Chronic Pain
Posted: Jul 21, 2025
@hunterhadley03 You should not have to suffer with pain and need a proper diagnosis to get...
get the right treatments that will help ... do a skin punch biopsy to check for small ... fiber neuropathy and neuropathy bloodwork ... conditions.” 1. https://wellwisp.com/what-can-be-misdiagnosed-as-lupus ... / 2. https://wellwisp.com/what-is-lupus-like-syndrome
Support Group: Autoimmune Diseases
Posted: Jun 16, 2025
@bealillie I feel for you and can empathize with the vicious cycle of pain and de-conditioning....
vein specialist and a neurologist for small ... fiber neuropathy skin punch biopsy? ... transportation to therapy, you may want to see what ... is available to help you get started
Support Group: Chronic Pain
Posted: Aug 10, 2025
@debbienod I and most of us here can totally relate! I’m on my 3rd neurologist -...
Idiopathic (large fiber) sensor motor ... They can tell whether it’s large or small ... fiber. ... Over the last 20 years the neuropathy ... stated, having the knowledge hopefully helps
Support Group: Neuropathy
Posted: Aug 11, 2025
@debbieod, I think I grappled with the same questions with my neuropathy journey which I shared...
Finding Connect and learning what others ... I think it helps me make better choices ... and being able to hopefully accept what ... in the treatment for my idiopathic small ... fiber peripheral neuropathy because
Support Group: Neuropathy
Posted: Aug 9, 2025
Welcome @lisette, I’ve also made some diet and lifestyle changes that I think have helped some...
lifestyle changes that I think have helped ... some with my idiopathic small fiber ... neuropathy. ... What type of neuropathy do you have?
Support Group: Neuropathy
Posted: Aug 14, 2025
Welcome Steve @laporta, Thanks for joining the Connect community and sharing your experience. I'm one of...
little tingling with my idiopathic small ... fiber peripheral neuropathy. ... It really helps to learn as much as ... we can about our conditions and what ... Here's what search shows for &#34
Support Group: Autoimmune Diseases
Posted: Oct 16, 2025
@hmccarth5 Hello. I’m not very familiar with Raynaud’s. Do you know what type of doctor diagnosed...
Do you know what type of doctor diagnosed ... about it, some of the symptoms mimic small ... fiber neuropathy (SFN) symptoms. ... fibers of the peripheral nervous system ... I hope this information helps.
Support Group: Autoimmune Diseases
Posted: May 23, 2022
Hi all This is my story. I am 75. Up until about 3 years ago, I...
discovered a large tumor (lymphoma) on my small ... skin biopsy, and was diagnosed with small ... fiber neuropathy of unknown cause. ... that bothers me is the peripheral neuropathy ... tired of having to explain to people what
Support Group: Neuropathy
Posted: May 12, 2020
In 2017 I was being treated for Mortens Neuroma and at the same time had UTI....
replies it sounds as if you have (SFSN) small ... fiber sensory neuropathy in the feet ... I understand what you are experiencing ... learning any relaxation techniques can help ... calm the bodies nervous system and help
Support Group: Neuropathy
Posted: Feb 17, 2025
I have had several back issues for many years. I suppose there is one diagnosis that...
My Doctor believe these small amounts ... truth, miniscule doses compared to what ... The neuropathy took the feeling in the ... Looking back at what I've written ... drowsiness, no constipation that a little fiber
Support Group: Chronic Pain
Posted: Nov 13, 2018
I started my journey with neuropathy when I was in my early 50s, with some numbness...
was worried about my mobility and what ... I was diagnosed with idiopathic small ... fiber peripheral neuropathy but unlike ... After I received my diagnosis of small ... fiber PN I was trying every topical
Support Group: Neuropathy
Posted: May 12, 2020
@gently I greatly appreciate everyone who chips in with information. I am a retired nurse and...
retired nurse and I am appalled at what ... Fiber neuropathy non length dependent ... So I am guessing my small nerve fiber ... I find it friendly and helpful. ... nerve fiber.