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1,063 total results

Comments (968)

I will be truthful. I have had several neurologist tell me this mimics Parkinson’s and MS....

https://connect.mayoclinic.org/comment/1032022/

severe axonal sensorimotor peripheral polyneuropathy

Discussion: Metanx, Repatha, Statins and making sure doctors keep check...

Support Group: Neuropathy

Posted: Mar 11 8:25pm

@magnum52 I've had idiopathic small fiber peripheral polyneuropathy for over 7 years, gradually progressing to more...

https://connect.mayoclinic.org/comment/292470/

idiopathic small fiber peripheral polyneuropathy

Discussion: Idiopathic Progressive Polyneuropathy: How to find a specialist?

Support Group: Neuropathy

Posted: Aug 25, 2020

I have esophageal dysmotility and silent reflux and a problem with the back of my tongue...

https://connect.mayoclinic.org/comment/231900/

I have small fiber idiopathic polyneuropathy

Discussion: Esophageal disorder - don’t know what to eat

Support Group: Digestive Health

Posted: Jan 10, 2020

Hi, After fighting for better health over 12 years and now finding there is no cure,...

https://connect.mayoclinic.org/comment/1131402/

Being polyneuropathy as well it incompasses

Discussion: GFR down from 58 to 43.8 over 3 years

Support Group: Kidney & Bladder

Posted: Aug 26 7:20pm

Hi John, Thank you for your response. I developed what is believed to have been a...

https://connect.mayoclinic.org/comment/625864/

length dependent small fiber peripheral polyneuropathy

Discussion: I am curious to know other’s stories of post viral neuropathy.

Support Group: Neuropathy

Posted: Aug 12, 2021

I too am new to this group. However I am not new to the world of...

https://connect.mayoclinic.org/comment/713014/

daily life is impacted by small-fiber polyneuropathy

Discussion: Spreading Sensory Peripheral Neuropathy - What next?

Support Group: Neuropathy

Posted: May 31, 2022

Hello @juliediane222 Welcome to Connect. I stumbled upon your post and it peeked my interest. I...

https://connect.mayoclinic.org/comment/54956/

diagnosed with progressive small fiber polyneuropathy

Discussion: "Electric Shock" type pain in my scalp!

Support Group: Chronic Pain

Posted: Mar 2, 2020

Hello @crshowers, Welcome to Mayo Clinic Connect. Thank you for the private message. I thought I...

https://connect.mayoclinic.org/comment/156994/

Masquerading as Diabetic Autoimmune Polyneuropathy

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Feb 9, 2019

Hello Hank I have Small Fiber Polyneuropathy, chronic migraines and photophobia (eye surgeries in the past...

https://connect.mayoclinic.org/comment/93287/

Hello Hank I have Small Fiber Polyneuropathy

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: May 8, 2020

@jamesinsonoma I added some other thoughts to this post for your consideration, in parentheses. I know...

https://connect.mayoclinic.org/comment/93281/

peripheral neuropathy, but could be polyneuropathy

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: May 8, 2020

@bogibus Hi Megan, I am so glad you arrived at this forum. It is a great...

https://connect.mayoclinic.org/comment/310527/

rare, fairly new, type of small fiber polyneuropathy

Discussion: Member Neuropathy Journey Stories: What's Yours?

Support Group: Neuropathy

Posted: Jan 27, 2021

@laureen8844 The first neurologist I saw was excellent, and diagnosed idiopathic pn. At that point I...

https://connect.mayoclinic.org/comment/219386/

As if idiopathic sfpn and autonomic polyneuropathy

Discussion: My experience with Small Fiber Neuropathy

Support Group: Neuropathy

Posted: Jan 25, 2021

Hello @atlas. I have become quite well versed with your condition over the past 5 years....

https://connect.mayoclinic.org/comment/225963/

almost a decade (progressive peripheral polyneuropathy

Discussion: where do I find testing for neuropathic OH in the Phoenix AZ area?

Support Group: Neuropathy

Posted: Jan 13, 2019

@faithwalker007 I'm not in your league when it comes to surgeries, but I've had my share,...

https://connect.mayoclinic.org/comment/99200/

idiopathic small fiber peripheral polyneuropathy

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Oct 5, 2020

@knocerine03 I am feeling connected to your journey as we have some similarities. And yes, after...

https://connect.mayoclinic.org/comment/201332/

progressive pain and debilitating issues of polyneuropathy

Discussion: Hydrocodone 5-325 3x a day vs Medical Marijuana Option

Support Group: Chronic Pain

Posted: May 28, 2018

Hi @neuroliz I'm 69, and have idiopathic small fiber polyneuropathy and am in the early stage...

https://connect.mayoclinic.org/comment/205711/

69, and have idiopathic small fiber polyneuropathy

Discussion: Does Stem Cell Therapy work for Neuropathy?

Support Group: Neuropathy

Posted: Mar 12, 2020

Hi all - I wanted to share my happenings as they pertain to this discussion about...

https://connect.mayoclinic.org/comment/243911/

B12 deficient and with Small Fiber Polyneuropathy

Discussion: Shingrix and peripheral neuropathy

Support Group: Neuropathy

Posted: Sep 17, 2020

Hi, It appears to me that there has been a shift away from doctoring as a...

https://connect.mayoclinic.org/comment/1140549/

that would only be if the Autonimic polyneuropathy

Discussion: Brain Fog, Tinnitus & Feeling Weak

Support Group: Brain & Nervous System

Posted: Sep 12 3:45pm

Hi @rwinney and @trip17, thank you so much for sharing your journey with us so far....

https://connect.mayoclinic.org/comment/317954/

Neuralgia and Small Fiber Peripheral Polyneuropathy

Discussion: Chronic upper stomach Pain/Nausea going on 4 yrs. ALL TESTS NEGATIVE

Support Group: Chronic Pain

Posted: Aug 7, 2020

@change25 Just been looking at the photos, and I have some comments. You may not have...

https://connect.mayoclinic.org/comment/598218/

Distal Polyneuropathy.

Discussion: At a loss, multiple consultations still no answer...any idea?

Support Group: Autoimmune Diseases

Posted: Apr 29, 2021