After over 3 years of dealing with orthostatic hypotension symptoms, I am now looking at possible neuropathic causes. In the past, I first thought it was excessive fluid in my legs, then I thought it was cardiac problems. I have been seen by at least 6 cardiologists in the past 2 plus years, with no definitive diagnosis or treatment protocol other than …. yes you have OH.
I moved to a new town at 5,000 feet over a year ago, which didn't help matters. My symptoms have been getting worse over the past 2 months. In the past, my symptoms lessened thru the day, and by mid-afternoon, my symptoms of light-headedness were mild. In the past two months, my symptoms have progressed to being full-time. I like to use the elliptical trainer for exercise, and I can see the same worsening of symptoms there. It takes 5 minutes of very slow movement before my body starts to work better, and even then I may experience very fast a pulse rate some time later to the extent I have to step off the machine to recover.
In searching the internet, I found that my symptoms closely relate to the condition called neuropathic orthostatic hypotension, which is also called autonomic neuropathy, or AN. The other terminologies that I think match are nOH, and NDAN. At any rate, I've been looking for treatment centers in the Phoenix/Scottsdale and surrounding areas. The only one I've found so far is Honor Health. I see they do tilt table testing, which I think is a first step toward evaluating my condition.
I would be very interested in any and all comments anyone out there has to offer.