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Comments (1,973)

I also have SFN with autonomic dysfunction. Have you been tested for rheumatology issues? You may...

https://connect.mayoclinic.org/comment/929254/

the same issue and found I have RA, Sjogren

Discussion: Chronic Fatigue Syndrome and Small Fiber Neuropathy: What helps?

Support Group: Neuropathy

Posted: Sep 13, 2023

I have discussed this with my rheumatologist & cardiologist. It’s quite frustrating with my rheumatologist as...

https://connect.mayoclinic.org/comment/1078655/

t honk the pain is related to the Sjorgren

Discussion: Sjogren’s Syndrome with heart pain

Support Group: Autoimmune Diseases

Posted: May 31 8:04pm

I do have heart pain. I don’t know if it is because of me having Sjogren’s...

https://connect.mayoclinic.org/comment/1079309/

know if it is because of me having Sjogren ... and mindful of the fact that I have Sjogren ... block (that part is probably not the Sjogren

Discussion: Sjogren’s Syndrome with heart pain

Support Group: Autoimmune Diseases

Posted: Jun 2 7:10am

Welcome @smc55, I'm sorry to hear that your rheumatologist blows it off and your cardiologist doesn't...

https://connect.mayoclinic.org/comment/1078767/

#39;t think the pain is related to Sjogren

Discussion: Sjogren’s Syndrome with heart pain

Support Group: Autoimmune Diseases

Posted: Jun 1 6:30am

Becky, i’m sorry that i don’t have any useful information to provide you. i have repeatedly...

https://connect.mayoclinic.org/comment/1079502/

I have been tested for Sjorgrens and

Discussion: Sjogren’s Syndrome with heart pain

Support Group: Autoimmune Diseases

Posted: Jun 2 12:20pm

I take 1200mg Alpha Lipoic Acid daily (NOW brand). It seems to help with my neuropathy...

https://connect.mayoclinic.org/comment/676699/

I have been diagnosed with Lupus/Sjogrens

Discussion: SFSN: Symptom Relief

Support Group: Neuropathy

Posted: Jan 31, 2022

Not sure if you’d call mine blistering but they have been peeling burning some swelling with...

https://connect.mayoclinic.org/comment/1065201/

I have Sjogrens Raynards and scleroderma

Discussion: Does anyone have a solution for blistering around the lips bc of sjog

Support Group: Autoimmune Diseases

Posted: May 10 7:15am

It was a two fold reason. My numbers (14 normal) had at some point gotten to...

https://connect.mayoclinic.org/comment/1066138/

have not ever had any symptoms of Sjogren ... basically because I had had no symptoms of Sjogren ... but she didn't think it was the Sjogren

Discussion: crown is making saliva thick and dried. Feels like peeling.

Support Group: Autoimmune Diseases

Posted: May 11 2:11pm

Is your rheumatologist with Mayo Clinic? My sister is being referred there because no one can...

https://connect.mayoclinic.org/comment/1066265/

she’s so sick but we think she has Sjogren

Discussion: Does anyone have a solution for blistering around the lips bc of sjog

Support Group: Autoimmune Diseases

Posted: May 11 7:54pm

I have Sjogrens, I have dry lips, purple spot on my bottom lip that has been...

https://connect.mayoclinic.org/comment/1066189/

I have Sjogrens, I have dry lips, purple ... said if it’s the whole ear it’s from Sjogrens