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990 total results
Comments (942)
@frking I'm assuming you mean a cardiac catheterization, used to study the various functions of the...
which came back normal except for Small ... Fiber Neuropathy. ... Anyhow, CSS may help explain your unexplainable ... symptoms such as smelling burning wood ... Do you mind letting me know what you
I would like to join your group. Could you please invite me? Linda Tripp I was...
Tripp I was diagnosed with TS-HDS small ... fiber neuropathy several months ago ... and am trying to find as much about what ... helps as I can.
Support Group: Neuropathy
Posted: Jul 29, 2022
Good evening @lynndenver, and welcome to Connect. You are definitely someone looking for answers. Your first...
Your first question might be.....what ... find out, knowledge is power e.g. what ... I have (SFN) small fiber neuropathy ... for years and can help you immensely ... To help him a bit, would you be able
Support Group: Neuropathy
Posted: Jul 29, 2022
Hello @nullz, Thank you for sharing your experience. I've also been diagnosed with idiopathic small fiber...
also been diagnosed with idiopathic small ... fiber peripheral neuropathy but only ... made lifestyle changes to try and help ... Do you mind sharing what brought you ... to Connect, what you were searching
Support Group: Neuropathy
Posted: Jul 25, 2022
Thank you for your reply. I often used deep breathing to help me fall asleep. Breathing...
I often used deep breathing to help ... Physicians have such few drugs to use for neuropathic ... When I was initially hospitalized for what ... I now know as small fiber neuropathy ... They help many people.
Support Group: Neuropathy
Posted: Jul 24, 2022
I dont mean to be discouraged. Its my journey, but I can't stop thinking about what...
but I can't stop thinking about what ... I wouldn't have small fiber neuropathy ... Meds will help, I see a counselor and ... time will help too.
Support Group: Neuropathy
Posted: Jul 19, 2022
Hi there @lubelle. I see that Rachel @rwinney suggested that you visit with the SFN folks....
a go-getter with developing SFN, (small ... fiber neuropathy). ... a daughter older than your son and what ... I hear sometimes when I offer what ... I consider to be helpful information
Support Group: Neuropathy
Posted: Jun 13, 2022
@hmccarth5 Hello. I’m not very familiar with Raynaud’s. Do you know what type of doctor diagnosed...
Do you know what type of doctor diagnosed ... about it, some of the symptoms mimic small ... fiber neuropathy (SFN) symptoms. ... fibers of the peripheral nervous system ... I hope this information helps.
Support Group: Autoimmune Diseases
Posted: May 23, 2022
Hello @issacmrobinson77, Welcome to Connect. I have small fiber peripheral neuropathy but my neurologist diagnosed me...
I have small fiber peripheral neuropathy ... before, no treatment available to help ... The two sites I've found most helpful ... connect.mayoclinic.org/comment/310341/ What ... have you found most helpful?
Support Group: Neuropathy
Posted: May 19, 2022
@lahjuly4 Hi Liz! Welcome to Mayo Connect. I stumbled upon this site several months ago and...
with people who REALLY understand what ... I hope you find it as helpful and comforting ... , I explained I was diagnosed with small ... fiber neuropathy, autonomic dysfunction ... hope the information I provided is helpful
Support Group: Neuropathy
Posted: May 17, 2022
Good afternoon @joypalmer1, I notice that Amanda has reached out to some other SFN (Small Fiber...
has reached out to some other SFN (Small ... Fiber Neuropathy) members. ... (that's what I call them). ... Would you mind sharing what treatments ... That would be helpful.
Support Group: Neuropathy
Posted: May 13, 2022
Welcome @saki, Although I have neuropathy I don't have any experience with scalp neuropathy but did...
in a skin biopsy, suggesting that small-fibre ... manifestation of the DM syndrome." --- Small-fibre ... couple of other sites that might be helpful ... for learning more and what treatments ... mention any treatments that might help
Support Group: Neuropathy
Posted: Apr 28, 2022
Joanne, I’m so sorry you are going through this. A lot of us that have Small...
A lot of us that have Small Fiber Sensory ... Neuropathy and Autonomic Neuropathy ... had to deal with exactly what your ... a neurologist who deals with just neuropathy ... are probably going to not get the help
Support Group: Neuropathy
Posted: Apr 17, 2022
Greetings @timcryan, and welcome to Connect. This is a group of patients and caregivers who help...
group of patients and caregivers who help ... I would absolutely call nighttime Neuropathy ... I have had SFN small fiber neuropathy ... What have you tried? ... Where on your body is the neuropathy
Support Group: Neuropathy
Posted: Mar 11, 2022
Welcome Carlos @carlossierra1287, I was also diagnosed with small fiber peripheral neuropathy in 2016 except I...
carlossierra1287, I was also diagnosed with small ... fiber peripheral neuropathy in 2016 ... I posted my story and what has helped ... Journey Stories: What's Yours? ... if there are others you might find helpful
Support Group: Neuropathy
Posted: Mar 4, 2022
Hello, I'm sorry to hear you have this diagnosis. I'm a 50-something year old female, and...
female, and was diagnosed with SFN (Small ... Fiber Neuropathy) almost 5 years ago ... I take Lyrica, and it helps but try ... to only take what you need to function ... of the night with such a scare of what
Support Group: Neuropathy
Posted: Feb 27, 2022
Good morning @sikocesca. I am just waking up and saw your question about MFR. I am...
."Yes, MFR can help numbness and ... Here is what she told me about the way ... mobilization of the plantar area using cross-fiber ... Have you been diagnosed with SFN.....small ... fiber neuropathy?
Support Group: Neuropathy
Posted: Feb 25, 2022
Good evening @jlo70. It looks like you joined Connect right after Christmas. That is a good...
What you miss without THC is the &#34 ... I have been managing my small fiber ... neuropathy pain for several years with ... Can you tell me what the marijuana laws ... Does this help clear the air a bit?
Support Group: Chronic Pain
Posted: Feb 24, 2022
Good wintry afternoon @fala. I am so impressed with the manner in which you have attempted...
What is the elevation where you live ... I have idiopathic SFN, small fiber neuropathy ... I call the neuropathic itch. ... dispensaries have special pharmacists to help ... help "figure it out"?
Support Group: Chronic Pain
Posted: Jan 16, 2022
Welcome @fredamm, to Connect. I think I walk iin your shoes. I will be 80 soon...
I will be 80 soon and have SFN, small ... fiber neuropathy. ... low barometric pressure, I deal with what ... (Just teasing) What grade or specialty ... What questions do you have?
Support Group: Neuropathy
Posted: Dec 30, 2021