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927 total results
Comments (883)
Hello @ahendershot, welcome to Connect. I also have idiopathic small fiber peripheral neuropathy but have had...
I also have idiopathic small fiber peripheral ... neuropathy but have had it 20+ years ... it feels like I have the start of neuropathy ... Do you have pain with your neuropathy ... I posted what helps me earlier on Connect
Support Group: Neuropathy
Posted: Apr 2, 2019
Hello Bryan, sorry about loss of job. I must stress the importance of filing for social...
eight +years of pure agony not knowing what ... misdiagnosed with MS, DX with SPS and Small ... Fiber Neuropathy the first year of ... to insufficient Neurologic care in small ... Let me know if I can help in any way
Support Group: Brain & Nervous System
Posted: Nov 4, 2019
Hello @cindy62, I would like to add my welcome to Connect along with @helennicola and @jager5210....
I have idiopathic small fiber PN but ... Here are two discussion that might be helpful ... ; Small Fiber Neuropathy? ... /connect.mayoclinic.org/discussion/small-fiber-neuropathy ... -3/ What have you found that helps
Support Group: Neuropathy
Posted: Oct 20, 2019
Hi @betty1954 -- I shared a short video by Matthew B Jensen Assistant Professor of Neurology,...
good explanation of how the different neuropathies ... story of my diagnosis of idiopathic small ... fiber peripheral neuropathy and what ... has helped me in an early post here ... anyone-here-dealing-with-peripheral-neuropathy
Support Group: Neuropathy
Posted: Oct 19, 2019
@seniordon09 you might want to read through the following discussion and learn what others have tried...
the following discussion and learn what ... have tried that has or hasn't helped ... > Groups > Neuropathy > Ideas ... for pain relief from Small Fiber Neuropathy ... connect.mayoclinic.org/discussion/ideas-for-pain-from-small-fiber-neuropathy
Support Group: Neuropathy
Posted: Nov 1, 2019
@jwr - You asked me what I feel is helpful. The short answer is I go...
@jwr - You asked me what I feel is ... helpful. ... I have both small and large fiber neuropathy ... I can slow it down, for me that is helpful ... , and I'll do what is necessary
Hi Pat, I glad to see that you saw my response in the other discussion where...
diagnosed at Rochester Mayo (idiopathic small ... fiber peripheral neuropathy) but since ... That's what brought me on my journey ... one suggestion I could make that did help ... as you can about your condition and what
PN is relatively rare but increasingly less lately. I think it's because it is more frequent...
prescribe alpha lipoic acid and in what ... and attachments in "Small or large ... fiber neuropathy-What percentage is ... ; on 3/5/23 and in "Ideopathic Small ... Fiber Neuropathy Research" on 3
Support Group: Neuropathy
Posted: Mar 29, 2023
Hello @philio66 - I have idiopathic small fiber neuropathy in both legs and feet. Fortunately I...
Hello @philio66 - I have idiopathic small ... fiber neuropathy in both legs and feet ... is no drugs or topicals that will help ... counter vitamins/supplements that help ... am not a medical professional but what
Support Group: Neuropathy
Posted: Jan 12, 2017
Hello @richade, Welcome to Mayo Clinic Connect. Thank you for sharing your story. I feel the...
I have idiopathic small fiber PN and ... I shared what has helped me in an earlier ... anyone-here-dealing-with-peripheral-neuropathy
Support Group: Neuropathy
Posted: Mar 22, 2020
Hello @neuroliz and welcone! I'm curious what kind of Dr you are referring to that is...
I'm curious what kind of Dr you ... that is suggesting stem cells for neuropathy ... my disease but, I was desperate for help ... My underlying cause of progressive small ... fiber polyneuropathy was B12 deficiency
Support Group: Neuropathy
Posted: Mar 12, 2020
Hello Larry @oldshep, Welcome to Mayo Clinic Connect. I also have idiopathic small fiber peripheral neuropathy....
I also have idiopathic small fiber peripheral ... neuropathy. ... I posted my story and what helps me ... anyone-here-dealing-with-peripheral-neuropathy ... frustrating trying to find something that helps
Support Group: Neuropathy
Posted: Jan 24, 2020
Hello @purplewillow, Welcome to Mayo Clinic Connect. I think it would be hard for anyone to...
I have idiopathic small fiber peripheral ... here: https://www.foundationforpn.org/what-is-peripheral-neuropathy ... > Small fiber peripheral neuropathy ... /connect.mayoclinic.org/discussion/small-fiber-peripheral-neuropathy-and-alcohol ... thing is that you are actively seeking help
Support Group: Neuropathy
Posted: Jan 21, 2020
I was diagnosed with idiopathic small fiber neuropathy at age 64 about 3 years ago. Took...
I was diagnosed with idiopathic small ... fiber neuropathy at age 64 about 3 ... Rochester, as my final resort, to see what ... ganglion to see if it can offer me some help ... I am not one to give up on finding help
Support Group: Neuropathy
Posted: Aug 24, 2020
@jager5210, I found an article similar to what you describe but I'm not sure if it...
jager5210, I found an article similar to what ... fiber neuropathy. ... Hope this helps. ... PubMed -- Stronger evidence for small ... fiber sensory neuropathy in restless
Support Group: Brain & Nervous System
Posted: Nov 25, 2019
Good afternoon, @beth11 and @llsalucier. I have two of the myoclonus symptoms: "sleep starts" and toes...
Did you mean not helping with your pain ... or not helping with the "sleep ... When do you take the Neurontin and at what ... don't know if that medication helps ... It does help with the small fiber neuropathy
Support Group: Brain & Nervous System
Posted: Dec 28, 2019
@rwinney @jeffrapp Driving is no longer the pleasure that it always has been. I also have...
I also have small fiber idiopathic peripheral ... neuropathy, with burning pain in my ... a short term solution, but it does help ... Another thing that helps is to drive ... But we do what we can to make the best
Support Group: Neuropathy
Posted: Sep 27, 2019
Hi @jersey, I wasn't sure who you meant for your message but if it was me...
work for you but I can share how it's helped ... My small fiber peripheral neuropathy ... have stopped it's progress which is what ... autonomic nervous system (I think is what
Support Group: Neuropathy
Posted: Dec 1, 2017
Yup, been there and done that - Psst, my English teacher taught me better but it's...
to doing the best job I could with what ... exam and was given the idiopathic small ... fiber peripheral neuropathy diagnosis ... no real treatment that was going to help
Support Group: Neuropathy
Posted: Aug 1, 2017
Hi Tim (@timmckinney). Welcome to Connect. I can share my story and maybe offer some hope....
I also have idiopathic neuropathy but ... When I asked what could be done if it ... He confirmed idiopathic small fiber ... neuropathy for the diagnosis along with ... So to me what I'm taking is repairing
Support Group: Neuropathy
Posted: Mar 7, 2017