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Comments (966)
Hello @betl, Welcome to Connect. I also have been diagnosed with idiopathic small fiber peripheral neuropathy...
have been diagnosed with idiopathic small ... fiber peripheral neuropathy but I don ... website here that might be helpful ... Has your primary care doctor shared what ... causing the symptoms if it's not neuropathy
Support Group: Neuropathy
Posted: Nov 11, 2022
Good evening @alces, and @gmehl, what wonderful folks to land in our neuropathy group. Thanks for...
Good evening @alces, and @gmehl, what ... wonderful folks to land in our neuropathy ... head-on since my diagnosis of SFN (small ... fiber neuropathy) 10 years ago. ... If you can tell me what state you live
Support Group: Neuropathy
Posted: Nov 6, 2022
Hi Jeff @jeffrapp, My primary care doctor wanted me to take a statin to help lower...
doctor wanted me to take a statin to help ... my initial diagnosis of idiopathic small ... fiber PN and started doing some research ... on what helps and causes. ... I had neuropathy long before being diagnosed
Support Group: Neuropathy
Posted: Oct 26, 2022
Thank you @isaratex for your complete and informative description of your experience with Duloxetine. The one...
anxiety increased immensely with my SFN (small ... fiber neuropathy) diagnosis. ... And I don't need the nighttime help ... And this is what I admire about Connect ... Sharing helps all of us learn more about
Support Group: Chronic Pain
Posted: Oct 26, 2022
Hello @luckycharms4me, Welcome to Connect. I know it can be scary and worrisome when you have...
numbness and a little tingling with my small ... fiber peripheral neuropathy but no ... the following discussions to learn what ... others have shared: -- Neuropathy ... Have you thought about seeking help
Support Group: Neuropathy
Posted: Oct 20, 2022
Tada! -- Hi Angie @ancopau1998, I am easy to find when you tag me using my...
the first discussion you found -- Neuropathy ... on chemo induced peripheral neuropathy ... Webinar: Chemo-Induced Peripheral Neuropathy ... video in another discussion here – What ... helps the symptoms of Small Fiber Neuropathy
Support Group: Neuropathy
Posted: Sep 4, 2022
Good evening @sharka, it is wonderful to meet you on Connect. You've been quite busy since...
gather.....you have idiopathic SFN (small ... fiber neuropathy). ... under her wing and started me on a small ... that you make sure that he/she knows what ... medications you are taking and with what
Support Group: Neuropathy
Posted: Aug 31, 2022
@rhm601, Like you I also feel very fortunate that I don't have associated pain with my...
neurologist diagnosed me with idiopathic small ... fiber neuropathy and offered no treatments ... the neurologist to see if it would help ... pain (my non medical translation of what ... on studies about supplements that help
Support Group: Neuropathy
Posted: Aug 11, 2022
@frking I'm assuming you mean a cardiac catheterization, used to study the various functions of the...
which came back normal except for Small ... Fiber Neuropathy. ... Anyhow, CSS may help explain your unexplainable ... symptoms such as smelling burning wood ... Do you mind letting me know what you
I would like to join your group. Could you please invite me? Linda Tripp I was...
Tripp I was diagnosed with TS-HDS small ... fiber neuropathy several months ago ... and am trying to find as much about what ... helps as I can.
Support Group: Neuropathy
Posted: Jul 29, 2022
Good evening @lynndenver, and welcome to Connect. You are definitely someone looking for answers. Your first...
Your first question might be.....what ... find out, knowledge is power e.g. what ... I have (SFN) small fiber neuropathy ... for years and can help you immensely ... To help him a bit, would you be able
Support Group: Neuropathy
Posted: Jul 29, 2022
Hello @nullz, Thank you for sharing your experience. I've also been diagnosed with idiopathic small fiber...
also been diagnosed with idiopathic small ... fiber peripheral neuropathy but only ... made lifestyle changes to try and help ... Do you mind sharing what brought you ... to Connect, what you were searching
Support Group: Neuropathy
Posted: Jul 25, 2022
Thank you for your reply. I often used deep breathing to help me fall asleep. Breathing...
I often used deep breathing to help ... Physicians have such few drugs to use for neuropathic ... When I was initially hospitalized for what ... I now know as small fiber neuropathy ... They help many people.
Support Group: Neuropathy
Posted: Jul 24, 2022
I dont mean to be discouraged. Its my journey, but I can't stop thinking about what...
but I can't stop thinking about what ... I wouldn't have small fiber neuropathy ... Meds will help, I see a counselor and ... time will help too.
Support Group: Neuropathy
Posted: Jul 19, 2022
Hi there @lubelle. I see that Rachel @rwinney suggested that you visit with the SFN folks....
a go-getter with developing SFN, (small ... fiber neuropathy). ... a daughter older than your son and what ... I hear sometimes when I offer what ... I consider to be helpful information
Support Group: Neuropathy
Posted: Jun 13, 2022
@hmccarth5 Hello. I’m not very familiar with Raynaud’s. Do you know what type of doctor diagnosed...
Do you know what type of doctor diagnosed ... about it, some of the symptoms mimic small ... fiber neuropathy (SFN) symptoms. ... fibers of the peripheral nervous system ... I hope this information helps.
Support Group: Autoimmune Diseases
Posted: May 23, 2022
Hello @issacmrobinson77, Welcome to Connect. I have small fiber peripheral neuropathy but my neurologist diagnosed me...
I have small fiber peripheral neuropathy ... before, no treatment available to help ... The two sites I've found most helpful ... connect.mayoclinic.org/comment/310341/ What ... have you found most helpful?
Support Group: Neuropathy
Posted: May 19, 2022
@lahjuly4 Hi Liz! Welcome to Mayo Connect. I stumbled upon this site several months ago and...
with people who REALLY understand what ... I hope you find it as helpful and comforting ... , I explained I was diagnosed with small ... fiber neuropathy, autonomic dysfunction ... hope the information I provided is helpful
Support Group: Neuropathy
Posted: May 17, 2022
Good afternoon @joypalmer1, I notice that Amanda has reached out to some other SFN (Small Fiber...
has reached out to some other SFN (Small ... Fiber Neuropathy) members. ... (that's what I call them). ... Would you mind sharing what treatments ... That would be helpful.
Support Group: Neuropathy
Posted: May 13, 2022
Welcome @saki, Although I have neuropathy I don't have any experience with scalp neuropathy but did...
in a skin biopsy, suggesting that small-fibre ... manifestation of the DM syndrome." --- Small-fibre ... couple of other sites that might be helpful ... for learning more and what treatments ... mention any treatments that might help
Support Group: Neuropathy
Posted: Apr 28, 2022