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Comments (917)

Scott22 @Scott22 to Autoimmune Support Group CIDP This autoimmune disease has many different causes. If you...

https://connect.mayoclinic.org/comment/1053164/

Scott22 to Autoimmune Support Group CIDP

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Apr 18, 2024

This is my first time so please bear with me. I’m itsmeagain and I developed CIDP-chronic...

https://connect.mayoclinic.org/comment/1230501/

I’m itsmeagain and I developed CIDP-chronic

Discussion: Long Covid and Neurological Symptoms

Support Group: Post-COVID Recovery & COVID-19

Posted: Feb 6 7:54am

Hi, I have a neuromuscular doctor. I had nerve conduction studies. All four extremities were tested...

https://connect.mayoclinic.org/comment/1020856/

the one who asked me if I’d heard of CIDP ... Is or can CIDP (poly radiculopathy)

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Feb 23, 2024

I also have MGUS which was discovered in lab work few years ago by accident. I...

https://connect.mayoclinic.org/comment/943307/

diagnosed generally few years ago with CIDP ... which has good results for people with CIDP

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2023

@ronoejello1, @SusanEllen66 - I would be interested to hear how your appointment went with Dr. David...

https://connect.mayoclinic.org/comment/921906/

show_locs=Y#locn • CIDP – The Gripper ... Treatment Related Fluctuations in CIDP

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Aug 31, 2023

Hi Chris, and thank you so much for taking the time to respond. I'd like to...

https://connect.mayoclinic.org/comment/733043/

CIDP - in asking/pushing one of my neurologists ... went to the Mayo Clinic to see if CIDP ... s no way my NP could be considered CIDP

Discussion: Medical marijuana vape for pain relief from Peripheral Neuropathy?

Support Group: Neuropathy

Posted: Aug 1, 2022

@cyp238ress I would only consider surgery if you would be able to decompress spinal cord/nerve roots/nerves...

https://connect.mayoclinic.org/comment/1110835/

If CIDP is a possibility, you may need

Discussion: MULTI-LEVEL CERVICAL DDD - SHARE INSIGHTS ON SURGERY PLEASE!!!

Support Group: Spine Health

Posted: Jul 24, 2024

I get it! I don't think I can even guess how many medications, therapies, pain specialists,...

https://connect.mayoclinic.org/comment/1105050/

I have CIDP with burning pain in my

Discussion: Spinal Cord Stimulator Removal

Support Group: Chronic Pain

Posted: Jul 13, 2024

All of my 5 siblings have told me that Gabapentin worked well for them. Unfortunately it...

https://connect.mayoclinic.org/comment/1039059/

Unfortunately it didn't help my CIDP

Discussion: Do not take gabapentin, makes it worse

Support Group: Neuropathy

Posted: Mar 23, 2024

Gila, I live in Fountain Hills just east of Scottsdale. My PCP referred me to Mark...

https://connect.mayoclinic.org/comment/1009708/

peripheral neuropathy to rule out CIDP

Discussion: scleroderma medications and quality of life questions

Support Group: Autoimmune Diseases

Posted: Feb 4, 2024

@txsmo Hi Susan, back on 9/28 you mentioned that you were only being treated with gabapentin,...

https://connect.mayoclinic.org/comment/99622/

You said you were diagnosed with CIDP

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Nov 5, 2020

Thanks fir welcoming me. I have had cidp for 16 years, my neuropathy is unexplained...have been...

https://connect.mayoclinic.org/comment/158110/

I have had cidp for 16 years, my neuropathy

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Dec 15, 2019

I have been on Vyvgart Hytrulo almost 6 months with mild improvement. I’ve had upper respiratory...

https://connect.mayoclinic.org/comment/1300057/

disease has progressed to a full-blown CIDP

Discussion: Anyone on VYVGART Hytrulo, a new treatment for CIDP?

Support Group: Autoimmune Diseases

Posted: May 8 7:02pm

CIDP stands for chronic inflammatory demyelinating polyradiculopthy, which is why it’s always abbreviated, ha. It’s an...

https://connect.mayoclinic.org/comment/1045995/

CIDP stands for chronic inflammatory

Discussion: Anyone familiar with MAST cell activation syndrome?

Support Group: Autoimmune Diseases

Posted: Apr 5, 2024

Hello @jansendscards I have a different rare form of PN (CIDP) but many symptoms in common...

https://connect.mayoclinic.org/comment/652002/

have a different rare form of PN (CIDP

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Nov 7, 2021

Hi Ray and welcome back! Wow, you have been through the wringer and I am so...

https://connect.mayoclinic.org/comment/1068701/

My PN is from CIDP, autoimmune.

Discussion: First peripheral neuropathy … and now a sepsis infection? $%*&#@

Support Group: Neuropathy

Posted: May 15, 2024

My initial neuropathy started in 2012 after knee replacement. Mild symptoms numbness in fingertips and arm...

https://connect.mayoclinic.org/comment/844581/

many tests finally got diagnosed with CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Apr 17, 2023

Neurologist #1 did an EMG/NCS test, told me I have SFSN and that nothing can be...

https://connect.mayoclinic.org/comment/660664/

extensive blood work, concluded I have CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Dec 8, 2021

I did 3 rounds of plasmapheresis while in the hospital & rehab last summer & fall....

https://connect.mayoclinic.org/comment/1036187/

downs, the diagnosis was changed to CIDP

Discussion: Chronic Inflammatory Demyelinating Polyneuropathy and IVIG reactions

Support Group: Neuropathy

Posted: Mar 18, 2024

Hello Todd, I am so sorry to hear about your diagnosis! First and foremost in this...

https://connect.mayoclinic.org/comment/800311/

I have CIDP and I started out on 300mg

Discussion: Idiopathic Progressive Polyneuropathy: How to find a specialist?

Support Group: Neuropathy

Posted: Jan 22, 2023