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Comments (966)
Good evening @lori70. Welcome to the Connect community. We believe in sharing and it looks like...
I don't know just what "severe ... pressure is trending down as the SFN (small ... fiber neuropathy) becomes more annoying ... What kind of exercises do you do? ... is a stretch yoga pose that is very helpful
Support Group: Neuropathy
Posted: Sep 19, 2023
Sfn pain started about 8 months after initial covid infection , pain began in Sept 2020...
tissue examined tested positive for small ... fiber neuropathy. ... dont know need feep weak and need help ... For some reason , xolair of course helps ... What other disease does this indicate
Support Group: Neuropathy
Posted: Aug 3, 2023
I use Fab CBD cream, and it seems to help me feel more comfortable, but it...
use Fab CBD cream, and it seems to help ... It really just depends on what you prefer ... one that’s been tested so you know what ... I also like the smell, which is blood ... discussion/topical-creams-and-lotions-for-small-fiber-neuropathy
Support Group: Neuropathy
Posted: Jul 31, 2023
This sounds terrible and scary. (And PS I HATE it when providers/nurses turn off the “reply”...
It seems they either don’t know what ... You could still have small fiber neuropathy ... even if your EMG is normal—small fiber ... traumatic experience, like it sounds like what ... that’s the type of person who treats neuropathy
Support Group: Neuropathy
Posted: Jul 23, 2023
Hello @foxmate57, Welcome to Connect. While we wait for @raebaby to share what type/model/manufacturer of the...
While we wait for @raebaby to share what ... only have numbness with my idiopathic small ... fiber peripheral neuropathy. ... started looking for things that might help ... for about 6 weeks but it didn't help
Support Group: Neuropathy
Posted: Jul 16, 2023
I have small fiber neuropathy in my legs, and I’ve tried acupuncture. I would say I...
I have small fiber neuropathy in my ... when my symptoms were worst and that helped ... I know it sounds strange, but it helped ... well: https://www.pathways.health/what-is-graded-motor-imagery-and-how-can-it ... your question, lol acupuncture did help
Hi @ripley- I’m so sorry for the delayed reply. I wrote this a few days after...
and focuses on getting you back to what ... Within that, I have small fiber neuropathy ... Some studies show it’s helped IBD or ... t feel comfortable seeing him, but what ... Hope it helps someone out there.
Support Group: Fibromyalgia
Posted: Jul 3, 2023
Welcome @gotosarah, I'm glad you found Connect. You are definitely not alone and hopefully you can...
I have idiopathic small fiber PN that ... discussing polyneuropathy and learn what ... to bookmark for learning more about neuropathy ... and things you can do to help yourself ... is the Foundation for Peripheral Neuropathy
Support Group: Neuropathy
Posted: Jun 3, 2023
Hi Pat, I glad to see that you saw my response in the other discussion where...
diagnosed at Rochester Mayo (idiopathic small ... fiber peripheral neuropathy) but since ... That's what brought me on my journey ... one suggestion I could make that did help ... as you can about your condition and what
@jwr - You asked me what I feel is helpful. The short answer is I go...
@jwr - You asked me what I feel is ... helpful. ... I have both small and large fiber neuropathy ... I can slow it down, for me that is helpful ... , and I'll do what is necessary
PN is relatively rare but increasingly less lately. I think it's because it is more frequent...
prescribe alpha lipoic acid and in what ... and attachments in "Small or large ... fiber neuropathy-What percentage is ... ; on 3/5/23 and in "Ideopathic Small ... Fiber Neuropathy Research" on 3
Support Group: Neuropathy
Posted: Mar 29, 2023
I have small fiber neuropathy. My toes and feet become freezing cold together with extremely painful...
I have small fiber neuropathy. ... from a hair dryer on my feet does not help ... and warm socks and blankets do not help ... I'd like to hear from other small ... fiber neuropathy patients what you
Support Group: Neuropathy
Posted: Mar 6, 2023
I just found your post because I was looking into a clinical study for myself, and...
another antibody, that is causing Small ... Fiber Neuropathy. ... There may be some helpful info even ... if that's not what you have (this ... Fiber Neuropathy With TS-HDS, FGFR-
Support Group: Neuropathy
Posted: Feb 22, 2023
Hi Donna @donnagautreaux, Welcome to Connect. I'm glad you found Connect. It's normal to have anxiety...
One of the best things you can do to help ... neurologist and a diagnosis of idiopathic small ... fiber peripheral neuropathy the neurologist ... told me what I already knew - there ... ever feel somewhat normal again but what
Support Group: Neuropathy
Posted: Jan 28, 2023
Greetings @busdriver57. And thank you @colleenyoung for the introduction. First of all, let me praise you...
That is so helpful. ... However, I do have SFN, (small fiber ... neuropathy) which can be the cause ... Do any sound helpful? ... Please let me know what works best for
Support Group: Joint Replacements
Posted: Nov 29, 2022
Good evening. You are absolutely right, PN or SFN (small fiber neuropathy) is a progressive condition....
You are absolutely right, PN or SFN (small ... fiber neuropathy) is a progressive ... What type of clinician would I choose ... gathering information now that will help ... And that is what makes Connect such
Support Group: Neuropathy
Posted: Nov 29, 2022
Hello @rpc, Welcome to Connect. I'm sorry to hear that your neuropathy pain symptoms were caused...
discussion you might want to read to learn what ... others have shared has helped them: ... -- Ideas for pain relief from Small ... Fiber Neuropathy (SFN): https://connect.mayoclinic.org ... /discussion/ideas-for-pain-from-small-fiber-neuropathy
Support Group: Neuropathy
Posted: Nov 22, 2022
Hello @trudi22, I'm sorry to hear you are struggling with balance along with the pain in...
I was diagnosed with idiopathic small ... fiber PN in 2016 when I was 73 which ... I started another discussion on what ... listed on the Foundation for Peripheral Neuropathy ... blog/balance-exercises-seniors/ What
Support Group: Neuropathy
Posted: Nov 15, 2022
I think I started taking statins when I was 35 (now I am 65). I have...
would review my cholesterol and ask me what ... reducing your cholesterol continue what ... neurologist and he determined I had small ... fiber neuropathy. ... I hope that helps.
Support Group: Neuropathy
Posted: Nov 11, 2022