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Comments (2,428)

Due to newer flea and tick control not killing mites per Dr. Alice Jeromin who sees...

https://connect.mayoclinic.org/comment/968855/

Father - Lewy body, son MCTD, self- lupus

Discussion: Anyone else dealing with Demodex Mites? What helps?

Support Group: Skin Health

Posted: Nov 21, 2023

Thanks @jenatsky. My PT and others in the past have tried exercises but they increase inflammation...

https://connect.mayoclinic.org/comment/1151639/

inflammation and pain, possibly due to my lupus

Discussion: Shoulder Muscle and neck pain

Support Group: Chronic Pain

Posted: Oct 4, 2024

I am very thankful for this forum too. I do not know anyone else around me...

https://connect.mayoclinic.org/comment/689047/

until my daughter got diagnosed with lupus

Discussion: Tight Fitting Jeans or Leggings

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 13, 2022

SOOOO sorry 4 all ur goin thru! and dx of lupus is diff. I had 2...

https://connect.mayoclinic.org/comment/1262519/

and dx of lupus is diff.

Discussion: Need Help

Support Group: Autoimmune Diseases

Posted: Mar 20 9:14am

@naturegirl5 @harriethodgson1 Advocating for ourselves is critical, in all aspects of our lives. Not accepting what...

https://connect.mayoclinic.org/comment/272880/

This advocacy is what got the lupus

Discussion: Endometrial Cancer: Noticing my blessings every day

Support Group: Gynecologic Cancers

Posted: Aug 20, 2019

Hi @tunkins1, Welcome to Connect; I'm so sorry to hear about your symptoms. Have you had...

https://connect.mayoclinic.org/comment/152149/

discussion about SLE as well: Tumid Lupus

Discussion: Tumid Lupus with SLE Symptoms?

Support Group: Autoimmune Diseases

Posted: Jun 7, 2017

My aunt had something similar happen to her. She was diagnosed with and treated for lupus...

https://connect.mayoclinic.org/comment/1259524/

was diagnosed with and treated for lupus

Discussion: Conflicting diagnosis concerning lupus

Support Group: Autoimmune Diseases

Posted: Mar 16 12:32pm

@blm1007blm1007 I have been taking Dupixent for 7 months for asthma, BE, eczema, etc. (Also have...

https://connect.mayoclinic.org/comment/1352979/

(Also have Lupus and deep chronic lung

Discussion: DUPIXENT (dupilumab)

Support Group: MAC & Bronchiectasis

Posted: 1 day ago

I see a nephrologist for what was originally diagnosed as CKD 3b then went to 3a....

https://connect.mayoclinic.org/comment/1310205/

to do a kidney biopsy to check for lupus ... be done to make sure I don’t have lupus

Discussion: Am I wrong to be concerned about my Stage 3a CKD?

Support Group: Kidney & Bladder

Posted: May 22 9:58am

I just wanted to add, though I have mixed connective tissue disease, my primary symptoms are...

https://connect.mayoclinic.org/comment/1197399/

tissue Disease can include sjogrens, lupus

Discussion: Nighttime Dry Mouth

Support Group: Autoimmune Diseases

Posted: Dec 26, 2024

@ rwinney, thanks for your story. I get sick on about everything, but hydrocodone works well...

https://connect.mayoclinic.org/comment/299235/

biopsy so i can know I don't have lupus

Discussion: Lyrica - Looking for Patient Experiences

Support Group: Neuropathy

Posted: May 10, 2020

I was diagnosed with Lupus, Sjogren, and primary biliary Cirrhosis in 2010. I just got diagnosed...

https://connect.mayoclinic.org/comment/235130/

I was diagnosed with Lupus, Sjogren,

Discussion: Primary Biliary Cholangitis and Autoimmune Hepatitis

Support Group: Transplants

Posted: Apr 12, 2019

I have lupus and did not experience any flares. However, I was, at first, unable to...

https://connect.mayoclinic.org/comment/1121690/

I have lupus and did not experience

Discussion: Does anyone have RA side effects on Tymlos

Support Group: Osteoporosis & Bone Health

Posted: Aug 11, 2024

Fortunately, I have great insurance and referrals aren't needed so I booked my own endocrinologist appt...

https://connect.mayoclinic.org/comment/1115784/

The last Dr I went to asked me if Lupus

Discussion: Cortisol deficiency, but with weight gain

Support Group: Autoimmune Diseases

Posted: Aug 1, 2024

Swelling of the hand’s combined with Raynauds color changes and wrinkled fingers can be a sign...

https://connect.mayoclinic.org/comment/1030880/

autoimmune disorder with features of lupus

Discussion: Pruney fingertips? Hashimotos?

Support Group: Autoimmune Diseases

Posted: Mar 10, 2024

I have not been tested for either (as far as I know). I went through my...

https://connect.mayoclinic.org/comment/943586/

reading right that would be the test for Lupus

Discussion: Undiagnosed - autoimmune?

Support Group: Autoimmune Diseases

Posted: Oct 7, 2023

You’re not alone in this struggle. If your hair loss is significant; they have great caps...

https://connect.mayoclinic.org/comment/893235/

support group probably for generalized lupus

Discussion: Tumid Lupus

Support Group: Autoimmune Diseases

Posted: Jul 10, 2023

I’ve had iron checked recently and it was fine, they check my thyroid yearly, a bunch...

https://connect.mayoclinic.org/comment/1057359/

thing that came up positive was the lupus ... anticoagulant but that doesn’t mean i have lupus

Discussion: Pain, tingling and fatigue

Support Group: Brain & Nervous System

Posted: Apr 25, 2024

I have ILC, and Lupus. Diagnosed at NWMH in Chicago, but went to City of Hope...

https://connect.mayoclinic.org/comment/1039228/

I have ILC, and Lupus. ... In addition to ILC, and Lupus-- I have

Discussion: Atypical Ductal Hyperplasia AND Invasive Lobular Carcinoma

Support Group: Breast Cancer

Posted: Mar 24, 2024

Hi Paula, I was diagnosed with Tumid Lupus in April of 2016, two days before my...

https://connect.mayoclinic.org/comment/117609/

Paula, I was diagnosed with Tumid Lupus ... My mother has tumid lupus with positive

Discussion: Tumid Lupus

Support Group: Autoimmune Diseases

Posted: Jul 17, 2017