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Comments (2,483)

Good plan for a second opinion when there is diagnostic difficulty. Always consider medications as possible...

https://connect.mayoclinic.org/comment/1022905/

antibodies it could show subacute lupus

Discussion: Peeling skin with autoimmune disease

Support Group: Autoimmune Diseases

Posted: Feb 26, 2024

I just joined because I'm in kidney failure. I saw this post and decided to make...

https://connect.mayoclinic.org/comment/175728/

this my first My Mom had drug index lupus

Discussion: Surgery caused autoimmune disease or Drug Induced Lupus

Support Group: Autoimmune Diseases

Posted: Dec 13, 2017

thecyborgenchi, Bless you sweet lady. I understand. You have not mentioned fibromyalgia. Has that been mentioned...

https://connect.mayoclinic.org/comment/976902/

and then do bloodwork to rule out Lupus ... difficult to get a diagnosis for Systemic Lupus ... from my Rheumatologist for borderline Lupus

Discussion: Lupus or not Lupus?

Support Group: Autoimmune Diseases

Posted: Dec 8, 2023

Overview Antinuclear Factor (ANF), Antinuclear Antibody (ANA) and Its ... In the context of an Antinuclear...

https://connect.mayoclinic.org/comment/1350033/

autoimmune diseases like Systemic Lupus

Discussion: ANA test follow up results - anyone else experience this

Support Group: Autoimmune Diseases

Posted: Jul 17 6:22am

Oh gee @lidiad that was not my intention. Noone else I know has lost hair on...

https://connect.mayoclinic.org/comment/1171986/

I have lupus which could be an explanation

Discussion: Side Effects of Evenity?

Support Group: Osteoporosis & Bone Health

Posted: Nov 11, 2024

Hello there .. Lupus on it's own is a serious disease .. but these "add ons"...

https://connect.mayoclinic.org/comment/1126945/

Lupus on it's own is a serious disease

Discussion: Multiple Auto-immune Diseases ?

Support Group: Autoimmune Diseases

Posted: Aug 19, 2024

Hello @wieczorkemaria, I'd like to invite @nbarnum27 and @twinkie23 who have talked about benlysta for systemic...

https://connect.mayoclinic.org/comment/988119/

talked about benlysta for systemic lupus

Discussion: Benalysta add on med for systemic lupus erythematosus (SLE)

Support Group: Autoimmune Diseases

Posted: Dec 29, 2023

Thank You for beginning to update the Transplant Community. The same appears to be happening to...

https://connect.mayoclinic.org/comment/597255/

(Cancer - Lupus, etc.)

Discussion: Moderna Vaccine not Creating antibodies for Transplant Patients

Support Group: Transplants

Posted: Apr 26, 2021

Thanks that makes a lot more sense. I know the one protein is very high, the...

https://connect.mayoclinic.org/comment/234519/

of bloodwork so they could rule out Lupus

Discussion: Hypogammaglobulinemia

Support Group: Autoimmune Diseases

Posted: Feb 15, 2021

@sunnyflower I was on the max dose of gaba. It did nothing to ease my pain...

https://connect.mayoclinic.org/comment/320799/

seem like valid pain because it’s not lupus

Discussion: Does anyone recommend a portable, rechargable TENS unit for pain?

Support Group: Neuropathy

Posted: Sep 26, 2020

Due to newer flea and tick control not killing mites per Dr. Alice Jeromin who sees...

https://connect.mayoclinic.org/comment/968855/

Father - Lewy body, son MCTD, self- lupus

Discussion: Anyone else dealing with Demodex Mites? What helps?

Support Group: Skin Health

Posted: Nov 21, 2023

Same symptoms here, for many years with many misdiagnoses. Fatigue and weakness led me to learn...

https://connect.mayoclinic.org/comment/1028826/

autoimmune disorders such as Graves, lupus

Discussion: Peripheral Neuropathy Foundation

Support Group: Neuropathy

Posted: Mar 6, 2024

Hi @twinkie23, I'd like to invite @sirgalahad, @debbybundy, @kuma and @covidstinks2023 to this discussion as they...

https://connect.mayoclinic.org/comment/952722/

they have all discussed a form of lupus

Discussion: Lupus pain

Support Group: Autoimmune Diseases

Posted: Oct 23, 2023

I have Sjogrens so does my only Daughter. It’s been challenging to get knowledgeable drs on...

https://connect.mayoclinic.org/comment/952449/

I also have fibro lupus. Pots.

Discussion: Would like to hear from people with Sjogrens

Support Group: Autoimmune Diseases

Posted: Oct 23, 2023

I had a high ANA and strange pains and was told I had Lupus and would...

https://connect.mayoclinic.org/comment/1312260/

and strange pains and was told I had Lupus

Discussion: I have an ANA of positive speckled at 1:80 .

Support Group: Autoimmune Diseases

Posted: May 25 6:49am

My aunt had something similar happen to her. She was diagnosed with and treated for lupus...

https://connect.mayoclinic.org/comment/1259524/

was diagnosed with and treated for lupus

Discussion: Conflicting diagnosis concerning lupus

Support Group: Autoimmune Diseases

Posted: Mar 16 12:32pm

SOOOO sorry 4 all ur goin thru! and dx of lupus is diff. I had 2...

https://connect.mayoclinic.org/comment/1262519/

and dx of lupus is diff.

Discussion: Need Help

Support Group: Autoimmune Diseases

Posted: Mar 20 9:14am

Thanks @jenatsky. My PT and others in the past have tried exercises but they increase inflammation...

https://connect.mayoclinic.org/comment/1151639/

inflammation and pain, possibly due to my lupus

Discussion: Shoulder Muscle and neck pain

Support Group: Chronic Pain

Posted: Oct 4, 2024

I am very thankful for this forum too. I do not know anyone else around me...

https://connect.mayoclinic.org/comment/689047/

until my daughter got diagnosed with lupus

Discussion: Tight Fitting Jeans or Leggings

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 13, 2022

@naturegirl5 @harriethodgson1 Advocating for ourselves is critical, in all aspects of our lives. Not accepting what...

https://connect.mayoclinic.org/comment/272880/

This advocacy is what got the lupus

Discussion: Endometrial Cancer: Noticing my blessings every day

Support Group: Gynecologic Cancers

Posted: Aug 20, 2019