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Comments (966)
@lucylaughs I also deal with obesity, bladder control issues (tied to my cervical spine stenosis/myelopathy), Hashimoto’s/hypothyroidism...
arthritis/degenerative disc disease, small ... fiber neuropathy (possibly linked to ... you are reaching out to others for help ... bars and built in chair are so very helpful ... I prioritize each day what is most important
Support Group: Neuropathy
Posted: Jul 25, 2025
@mmmerrimac: This Small Fiber Neuropathy lecture video you shared with us was fantastic. Yes, a little...
@mmmerrimac: This Small Fiber Neuropathy ... little over my head, but I finally had neuropathy ... However, I now can understand what is ... happening in my body when I have neuropathy ... This gives me a tool to help me accept
Discussion: Help me diagnose
Support Group: Chronic Pain
Posted: Jul 21, 2025
I've been taking low dose naltrexone for a little over a year now, and I've found...
ruled out Parkinson's but showed small ... fiber neuropathy. ... neurologist at John's Hopkins Small ... Fiber Neuropathy Center, and further ... What I've found is that the naltrexone
Support Group: Neuropathy
Posted: Jun 30, 2025
Thank you, Ray, for your arduous endeavors! I am a lay person with a degree in...
just desperate to find something to help ... with small fiber neuropathy. ... on treatment and that's kinda what
My husband is in cybersecurity for department of defense. He could look at setting us up...
For example what triggers your neuropathy ... and what helps. ... called spammers that claim to have neuropathy ... That is a problem with the Facebook neuropathy ... That have small fiber neuropathy.
Support Group: Neuropathy
Posted: Jun 12, 2025
Boy, can I relate to this thread! I too experience SVT and PVCs a lot, resulting...
because of test results that show I have small ... fiber neuropathy, and I'm hoping ... groups like this are so helpful to ... of having to debate the reality of what ... hugs and wishes for an accurate and helpful
Posted: May 18, 2025
hello watcher7t, welcome to our small, large family of people with neuropathy. And yes we all...
hello watcher7t, welcome to our small ... , large family of people with neuropathy ... and confirmed with as having large fiber ... peripheral neuropathy and bothe cervical ... knowledge of absolutely knowing nothing of what
Support Group: Neuropathy
Posted: May 4, 2025
Hi Donna, Perfect timing with what you mentioned. I have recently been experiencing major weirdness in...
Hi Donna, Perfect timing with what ... recently been diagnosed with large fiber ... and also a possible early onset of small ... fiber neuropathy, I will be seeing ... been on many medications and nothing helped
Support Group: Neuropathy
Posted: Apr 26, 2025
@gently I greatly appreciate everyone who chips in with information. I am a retired nurse and...
retired nurse and I am appalled at what ... Fiber neuropathy non length dependent ... So I am guessing my small nerve fiber ... I find it friendly and helpful. ... nerve fiber.
@caligirl1 I also have small fiber neuropathy and what you describe in your neck/arm/hand sounds like...
@caligirl1 I also have small fiber ... neuropathy and what you describe in ... MRI of your cervical spine to see what ... Medication won’t help something that
Support Group: Neuropathy
Posted: Apr 4, 2025
@gladysg It would be good to see a neurologist for neuropathy blood testing, EMG/nerve conduction studies...
, EMG/nerve conduction studies and small ... fiber neuropathy skin punch biopsy. ... good to see a nutritionist to see what ... and determine if supplements could help ... b12 and d (if deficient), etc. may help
Support Group: Neuropathy
Posted: Mar 30, 2025
I have idiopathic small fiber peripheral neuropathy and was diagnosed at Rochester Mayo Clinic. I did...
I have idiopathic small fiber peripheral ... would just be another test to confirm what ... Also, even though the biopsy is small ... That is what brought me to Connect back ... members different ways to help myself
Support Group: Neuropathy
Posted: Mar 19, 2025
Hi! I have small fiber neuropathy in my entire body and while is it a huge...
I have small fiber neuropathy in my ... connection, and nervous system regulation helps ... Learn your triggers and what calms your ... nervous system and they may help reduce
Support Group: Neuropathy
Posted: Mar 6, 2025
Hi, I am 35 and was diagnosed with idiopathic Small Fiber Neuropathy mid 2024 and like...
and was diagnosed with idiopathic Small ... Fiber Neuropathy mid 2024 and like ... seek but I'm trying and testing what ... weights are also very helpful. ... What helps very well for feet in a pinch
Support Group: Neuropathy
Posted: Feb 25, 2025
In 2017 I was being treated for Mortens Neuroma and at the same time had UTI....
replies it sounds as if you have (SFSN) small ... fiber sensory neuropathy in the feet ... I understand what you are experiencing ... learning any relaxation techniques can help ... calm the bodies nervous system and help
Support Group: Neuropathy
Posted: Feb 17, 2025
I am so sorry you’re going through this with. I have been on a similar journey...
I’ve learned so far that might be helpful ... test showed low intraepidermal nerve fiber ... levels, indicating small fiber neuropathy ... The small fiber density results, along ... I hope this LONG response helps you
Posted: Jan 26, 2025
Hi Pat @patevans, Welcome to Connect. I also have idiopathic small fiber PN but I don't...
I also have idiopathic small fiber PN ... no pain that medications can't help ... as you can about your condition and what ... start. -- Foundation for Peripheral Neuropathy
Support Group: Neuropathy
Posted: Aug 18, 2024
Good evening. I think I have found an important group tonight. I am currently trying to...
same time, I began a new program for help ... reliance on the medication(s) that help ... and discomfort of 10 years of SFN (small ... fiber neuropathy). ... What are their responsibilities?
@johnnyguitar What did your MRIs show? Do you have any stenosis/degenerative disc disease/myelopathy (spinal cord compression/flattening),...
@johnnyguitar What did your MRIs show ... neurologist that there is no cure for my small ... fiber neuropathy and only medication ... PT does help maintain some strength ... and vitamin/mineral supplements help
Support Group: Neuropathy
Posted: Jul 22, 2024
I cannot get anyone that cares to help. The first neurologist said " Noone has written...
I cannot get anyone that cares to help ... I WAS FINE AND I have Small fiver neuropathy ... Well yes I know that but this is not what ... WHAT?
Support Group: Autoimmune Diseases
Posted: Jul 7, 2024