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Comments (952)
Welcome Gilbert @quadwilly, I only have the numbness and started looking into supplements to hopefully slow...
https://connect.mayoclinic.org/comment/1342392/
stop the progression of my idiopathic small ... fiber PN and although I still have ... different discussions and member posts on what ... helps with neuropathy if you want to ... search=neuropathy+what+helps.
@oliver8112000 I was not diagnosed with CIDP. I was diagnosed with idiopathic small fiber neuropathy (started...
https://connect.mayoclinic.org/comment/1383599/
I was diagnosed with idiopathic small ... fiber neuropathy (started with burning ... decompression and fusion surgeries in my spine helped ... more answers to your questions on what ... do extensive bloodwork to check for neuropathy
Hello @justin1982, welcome to Mayo Clinic Connect! You may notice I updated your title to help...
https://connect.mayoclinic.org/comment/1370727/
may notice I updated your title to help ... Journey Stories: What's Yours? ... connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours ... and @marietter have all discussed small ... fiber neuropathy as well and may share
@lucylaughs I also deal with obesity, bladder control issues (tied to my cervical spine stenosis/myelopathy), Hashimoto’s/hypothyroidism...
https://connect.mayoclinic.org/comment/1356379/
arthritis/degenerative disc disease, small ... fiber neuropathy (possibly linked to ... you are reaching out to others for help ... bars and built in chair are so very helpful ... I prioritize each day what is most important
@mmmerrimac: This Small Fiber Neuropathy lecture video you shared with us was fantastic. Yes, a little...
https://connect.mayoclinic.org/comment/1353410/
@mmmerrimac: This Small Fiber Neuropathy ... little over my head, but I finally had neuropathy ... However, I now can understand what is ... happening in my body when I have neuropathy ... This gives me a tool to help me accept
@bealillie I feel for you and can empathize with the vicious cycle of pain and de-conditioning....
https://connect.mayoclinic.org/comment/1367549/
vein specialist and a neurologist for small ... fiber neuropathy skin punch biopsy? ... transportation to therapy, you may want to see what ... is available to help you get started
@debbienod I and most of us here can totally relate! I’m on my 3rd neurologist -...
https://connect.mayoclinic.org/comment/1368267/
Idiopathic (large fiber) sensor motor ... They can tell whether it’s large or small ... fiber. ... Over the last 20 years the neuropathy ... stated, having the knowledge hopefully helps
@debbieod, I think I grappled with the same questions with my neuropathy journey which I shared...
https://connect.mayoclinic.org/comment/1367132/
Finding Connect and learning what others ... I think it helps me make better choices ... and being able to hopefully accept what ... in the treatment for my idiopathic small ... fiber peripheral neuropathy because
Welcome @lisette, I’ve also made some diet and lifestyle changes that I think have helped some...
https://connect.mayoclinic.org/comment/1370379/
lifestyle changes that I think have helped ... some with my idiopathic small fiber ... neuropathy. ... What type of neuropathy do you have?
Rachel. @rwinney Maybe I missed it because I'm in excruciating pain from new onset of occipital...
https://connect.mayoclinic.org/comment/1382058/
I've had small-fiber neuropathy ... What is the cure? ... At first it seemed to help.
I am now 81 years old and I have been suffering with different degrees of PN...
https://connect.mayoclinic.org/comment/1186919/
was able to diagnose my idiopathic small ... fiber polyneuropathy and autonomic ... neuropathy via skin biopsy but he also ... My symptoms are very similar to what ... is: https://suzycohen.com/articles/small-fiber-neuropathy-its-different
Hello @janeenelizabeth, Welcome to Connect. You are not alone being after hearing your doctors say that...
https://connect.mayoclinic.org/comment/1316248/
I also have idiopathic small fiber peripheral ... neuropathy with just numbness and some ... have any treatments or suggestions to help ... looking for information that might help ... as we can about our condition and what
Hello @ranchguy221, Welcome to Connect. You are not alone with your struggle to find out what's...
https://connect.mayoclinic.org/comment/1317710/
alone with your struggle to find out what ... I have idiopathic small fiber PN and ... which I don't like but it does help ... What really helped me get my weight ... What’s your why?
@peggyn -- I think I shared with you before that I've been taking the protocol from...
https://connect.mayoclinic.org/comment/268624/
it has slowed the progression of my small ... fiber PN so I'm happy with my new ... You can read my neuropathy story posted ... Here are some links that will help you ... determine what's legit and what
I have Experienced small fiber peripheral neuropathy for about 4 yrs with mostly pain in my...
https://connect.mayoclinic.org/comment/308305/
I have Experienced small fiber peripheral ... neuropathy for about 4 yrs with mostly ... pain Doctor, although she is not much help ... The foundation for peripheral neuropathy ... keep trying different things to try what
Good evening @rastapoppa. Welcome to Connect. Thank you for sharing some of your symptoms. In order...
https://connect.mayoclinic.org/comment/835954/
In order to help you and/or refer you ... sensations could be related to SFN (small ... fiber neuropathy). ... and itch on the way to finding out what ... it was and what helped me get rid of
Greetings @alfer. As @johnbishop mentioned, nortryptyline was the first medication my neurologist prescribed in hope that...
https://connect.mayoclinic.org/comment/777814/
It was very helpful and I continued ... dosage has been increased as the SFN (small ... fiber neuropathy) symptoms increased ... What else are you using to control the ... effects of neuropathy?
Hello @gregoria, I can understand wanting to find the cause of the neuropathic pain in your...
https://connect.mayoclinic.org/comment/1294027/
cause just that I have idiopathic small ... fiber peripheral neuropathy. ... figure out what type of Neuropathy? ... connect.mayoclinic.org/discussion/can-mayo-help-figure-out-what-type-of-neuropathy ... Fiber Neuropathy and genetic testing
Thank you John for your welcoming message and the included information. The test I had today...
https://connect.mayoclinic.org/comment/1278803/
also revealed early manifestation of small ... fiber neuropathy in addition to the ... I shall see what the neurologist will ... In the meantime, I shall visit the links ... you sent me and see what help I may
Hi @pedie - you are right about the meds and neuropathy. They do nothing for numbness...
https://connect.mayoclinic.org/comment/91871/
neurologist diagnosed me with idiopathic small ... fiber peripheral neuropathy which was ... done - no meds or topical creams/oils help ... least has stopped progressing which is what ... There is a lot of good information on what
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