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964 total results
Comments (917)
I am so sorry you've been going through this. Your experience really resonates with me. Because...
have Parkinson's but did indicate small ... fiber neuropathy. ... neurologists at Johns Hopkins to figure out what ... I've found some ways to help deal ... more I learn, the more I understand what
Support Group: Neuropathy
Posted: Jan 20 12:51pm
Hello everyone, I am new to the group. I was also told that I have MGUS...
The results stated that I have small ... fiber neuropathy/ which is peripheral ... And the hand brace helped for some months ... a roller coaster to digest all of what
Posted: Jan 26 6:55pm
What is the cause of the neuropathy? https://www.youtube.com/watch?v=KtNnlY6RUdA Dr Ann Oaklander is a research neurologist out...
What is the cause of the neuropathy? ... Neuropathy is just the beginning what ... fiber neuropathy? ... Dr Oaklander helped a lot. ... fiber neuropathy.
Support Group: Neuropathy
Posted: Feb 7 9:07am
Thankyou for responding! I am sorry you are going through all of this as well. The...
The exercising is definitely what definitely ... torso I am thinking could possibly be Small ... Fiber Neuropathy. ... never had in my life.Can I ask you what ... supplements helped you at all?
Posted: Mar 6 8:29am
I am so sorry you’re going through this with. I have been on a similar journey...
I’ve learned so far that might be helpful ... test showed low intraepidermal nerve fiber ... levels, indicating small fiber neuropathy ... The small fiber density results, along ... I hope this LONG response helps you
Posted: Jan 26 9:27am
Hi, I am 35 and was diagnosed with idiopathic Small Fiber Neuropathy mid 2024 and like...
and was diagnosed with idiopathic Small ... Fiber Neuropathy mid 2024 and like ... seek but I'm trying and testing what ... weights are also very helpful. ... What helps very well for feet in a pinch
Support Group: Neuropathy
Posted: Feb 25 3:29am
In 2017 I was being treated for Mortens Neuroma and at the same time had UTI....
replies it sounds as if you have (SFSN) small ... fiber sensory neuropathy in the feet ... I understand what you are experiencing ... learning any relaxation techniques can help ... calm the bodies nervous system and help
Support Group: Neuropathy
Posted: Feb 17 1:00pm
Hi! I have small fiber neuropathy in my entire body and while is it a huge...
I have small fiber neuropathy in my ... connection, and nervous system regulation helps ... Learn your triggers and what calms your ... nervous system and they may help reduce
Support Group: Neuropathy
Posted: Mar 6 6:23am
Hello @gooilers18, Welcome to Connect. We have all been there with no clue where to go...
That's what brought me to Connect ... in their medication wheelhouse can help ... fiber neuropathy - https://connect.mayoclinic.org ... search=idiopathic+small+fiber+neuropathy ... as you can about your condition and what
Support Group: Neuropathy
Posted: Dec 31, 2024
I am now 81 years old and I have been suffering with different degrees of PN...
was able to diagnose my idiopathic small ... fiber polyneuropathy and autonomic ... neuropathy via skin biopsy but he also ... My symptoms are very similar to what ... is: https://suzycohen.com/articles/small-fiber-neuropathy-its-different
Support Group: Neuropathy
Posted: Dec 8, 2024
@fairwinds24 Employers, workers compensation, etc. don’t want to open up a Pandora’s box with your claim...
keep pursuing and appealing with the help ... you had a neurologist test you for small ... fiber neuropathy using a skin punch ... of the details (dates/times/names/what ... Have you ruled out other causes of neuropathy
Support Group: Neuropathy
Posted: Oct 21, 2024
Not all will help with the neuropathy it’s not their specialty. He is starting me on...
Not all will help with the neuropathy ... sensorimotor peripheral polyneuropathy Small ... fiber neuropathy Cardiac autonomic ... My neuropathy has gotten to the point ... Panzyga is what we are going with
Support Group: Neuropathy
Posted: Sep 19, 2024
@roslyn2314 I have idiopathic small fiber neuropathy. My neurologist said there really is no cure for...
@roslyn2314 I have idiopathic small ... fiber neuropathy. ... but if you know the cause, that is what ... is treated to stop the damage to small ... nerve fibers.
@jgk177 What types of doctors/specialists have you already seen? What tests have you had beyond bloodwork?...
@jgk177 What types of doctors/specialists ... What tests have you had beyond bloodwork ... You may also need small fiber neuropathy ... and rheumatologists were not much help ... My neurologist did the small fiber neuropathy
Support Group: Autoimmune Diseases
Posted: Sep 4, 2024
@thurlibier I am a 55 year old female. When I was 47, I started to have...
was also diagnosed with idiopathic small ... fiber neuropathy (they did a skin punch ... your head, neck and lower back to see what ... Prayer is also very important and helpful
Support Group: Neuropathy
Posted: Sep 1, 2024
Good evening @mdcatlin, welcome to this wonderful avenue that is willing and able to Connect you...
years or so ago I found myself in a small ... What an adventurous change for me. ... You will probably be able to predict what ... I was diagnosed with SFN (small fiber ... neuropathy) and increasing mental stumbling
Support Group: Caregivers: Dementia
Posted: Aug 25, 2024
@kadfrompa3232 Were you told what caused your neuropathy? Did they do blood tests to see if...
@kadfrompa3232 Were you told what caused ... your neuropathy? ... I have peripheral/small fiber neuropathy ... some with neuropathy (they do seem ... nervous system through nutrition and what
Support Group: Chronic Pain
Posted: Jul 26, 2024
@demeter, There are a few existing discussions that you might want to read through to learn...
might want to read through to learn what ... . -- Supplements - What helps nerve ... discussion/supplement-recommendations-can-help ... Fiber Neuropathy? ... alternative-pain-relieving-methods-for-small-fiber-neuropathy
Good evening, "@orygun66," and welcome to Connect. Thank you, @johnbishop, for the introduction. And welcome to...
What has the diagnosis been? ... With the diagnosis of SFN (small fiber ... neuropathy), other types of cannabis ... and inquiries with me, I will try to help
Support Group: Chronic Pain
Posted: Jun 8, 2024
Hello @amandayounts14, Welcome to Connect. Thank you for sharing your experience with helping other patients. I...
you for sharing your experience with helping ... Neuropathy is definitely strange with ... with the numbness which is what brought ... I have idiopathic small fiber peripheral ... Do you mind sharing what brought you
Support Group: Neuropathy
Posted: Jun 8, 2024