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257 total results
Comments (238)
I don't have what you have but have had burning legs, arms, plus going numb and...
I don't have what you have but have ... have generalized acquired sensory polyneuropathy ... Yet, not referred to anyone to get help
Hi, everyone. I haven't done the AIP diet per se, but I'm looking into what anti-inflammatory...
diet per se, but I'm looking into what ... anti-inflammatory diet has evidence for helping ... chronic inflammatory demyelinating polyneuropathy ... I want to know what foods are supported
Support Group: Autoimmune Diseases
Posted: Apr 3, 2024
Hello, jrc3vette (@jrc3vette) And welcome! I wasn't able to have a substantive conversation with a doctor...
" known as EB-N5, but that was what ... he had hoped might help with my particular ... neuropathy: idiopathic sensory-dominant polyneuropathy ... ;s possible that EB-N5 is hoped to help ... I wish you and your wife well and help
Support Group: Neuropathy
Posted: Mar 28, 2024
To be truthful I am surprised also. Dr. Anne Oaklander and her daughter been researching neuropathy...
What have I noticed I am 61 and have ... There is more help for diabetics then ... diagnosis severe axonal sensorimotor polyneuropathy
Support Group: Neuropathy
Posted: Mar 16, 2024
Hi, I'm Dawn. Diagnosed (after several doctor visits and tests) with peripheral polyneuropathy, which has become...
visits and tests) with peripheral polyneuropathy ... Gabapentin, but not sure how much it helps ... What a frustrating diagnosis!
Support Group: Neuropathy
Posted: Jun 4, 2023
I relate to the buckling knees, which for me came on fairly suddenly and unpredictably around...
I have been since diagnosed with polyneuropathy ... What has also helped me in PT is upper ... Specifically Aquatherapy has helped ... It all helps me live the life I want ... adjustment, but worth it to me and my helpful
Discussion: "Rubbery" Legs?
Support Group: Neuropathy
Posted: Apr 21, 2023
Hello again and thank you for your reply and the picture included! It will be most...
It will be most helpful 🙂 Sometimes ... have moderate to severe axonal distal polyneuropathy ... think it’s a slippery slope, and from what ... only for a short distance , really helps
Support Group: Neuropathy
Posted: Apr 18, 2023
Hello Jack @medman18, No need to join the group, if you have neuropathy you are welcome...
also find the following discussions helpful ... . -- Idiopathic Progressive Polyneuropathy ... /discussion/idiopathic-progressive-polyneuropathy ... Member Neuropathy Journey Stories: What ... member-neuoropathy-journey-stories-whats-yours
Support Group: Neuropathy
Posted: Nov 17, 2022
My husband was just told he has "Distal Sensory Axonal Polyneuropathy", by his fourth neurologist this...
he has "Distal Sensory Axonal Polyneuropathy ... m not able to get a clear sense of what ... Chronic Inflammatory Demyelinating Polyneuropathy ... neurologist said he didn't know what ... confused.Thanks in advance for your help
Support Group: Neuropathy
Posted: Nov 9, 2022
Hello community. I thought I was just getting old but I kept getting worse and worse....
My PCP was no help at all in the face ... to a new doctor and begged him to help ... me find out what was wrong with me. ... eventually diagnosed with Sensory Polyneuropathy ... what is happening to me.
Support Group: Neuropathy
Posted: Aug 15, 2022
Thank you for asking Every year since I was born, my birthday was a special day...
However, on my 61st birthday, what started ... called “severe axonal sensorimotor polyneuropathy ... I needed help entering and leaving a ... places in hopes that someone could help ... I have suffered with polyneuropathy
Support Group: Neuropathy
Posted: Apr 21, 2022
@bogibus Hi Megan, I am so glad you arrived at this forum. It is a great...
rare, fairly new, type of small fiber polyneuropathy ... I wonder what they mean by this? ... From what I know they should not be ... One thing I take that has helped my ... and I can tell you it has been very helpful
Support Group: Neuropathy
Posted: Jan 27, 2021
Hi John...and everyone! I am 46 yrs old and have been dealing with pain, syncope, cardiac...
Nothing can be done but taking drugs to help ... rare, fairly new, type of small fiber polyneuropathy ... What is the likelihood that one of the ... What can I be doing to minimize these ... suggestions on varieties or combos that have helped
Support Group: Neuropathy
Posted: Jan 26, 2021
@laureen8844 The first neurologist I saw was excellent, and diagnosed idiopathic pn. At that point I...
What caught my attention was your making ... As if idiopathic sfpn and autonomic polyneuropathy ... took a muscle relaxer, which may have helped ... I hope you will get the help you need
Support Group: Neuropathy
Posted: Jan 25, 2021
I have CIDP -- chronic inflammatory demyelinating polyneuropathy -- an autoimmune form of PN that is...
chronic inflammatory demyelinating polyneuropathy ... disease" of MS, and nobody know what ... neurologist doesn't seem to know how to help ... tired of having to beg doctors for help ... even get out of the house without help
Support Group: Neuropathy
Posted: Nov 11, 2020
@phoenix0509 - I have no experience or knowledge of polyneuropathy, sensorimotor axonal polyneuropathy or the other...
have no experience or knowledge of polyneuropathy ... , sensorimotor axonal polyneuropathy ... or the other symptoms other that what ... and found something but not sure how helpful
Support Group: Neuropathy
Posted: Nov 4, 2020
@chrs6 Here on Mayo Connect, talking is done via text. As the old ad said, "let...
, treatments you've tried, and what ... of information here that might be helpful ... I have idiopathic small fiber polyneuropathy
Support Group: Neuropathy
Posted: Sep 13, 2020
Hi Cindy @cindy62. I'm Rachel and I wanted to let you know that the whole middle...
difference is I have Small Fiber Peripheral Polyneuropathy ... I'm glad you do yoga to help strengthen ... stretching and fine tune stretches to what
Support Group: Neuropathy
Posted: Aug 17, 2020
@amandaburnett and @trip17 I'm sorry for both of your pain journeys. Pain can be very complex...
Neuralgia and Small Fiber Peripheral Polyneuropathy ... as much as I want off opiods, they help ... causing additional pain while trying to help ... What do you take for pain now and how
Support Group: Digestive Health
Posted: Aug 3, 2020