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355 total results
Comments (305)
There are a lot of trials ahead. Ask your provider professionals lots of questions. Make yourselves...
https://connect.mayoclinic.org/comment/1163280/
and I have a non Hodgkins lymphoma (Waldenstroms
Waldenstroms for goin on two years Imbruvica and prednisone with rituxin stripped working. Bad numbers up...
https://connect.mayoclinic.org/comment/1293434/
Waldenstroms for goin on two years Imbruvica
Hello @jswv Some links I have squirreled away: - Have you joined the Waldenstrom's Foundation --...
https://connect.mayoclinic.org/comment/1394891/
squirreled away:
- Have you joined the Waldenstrom ... treatment/hematologic-oncology/programs/waldenstroms-macroglobulinemia ... - Waldenstrom's Macroglobulinemia
I married a Superwoman who takes care of me. She just finished up her last infusion...
https://connect.mayoclinic.org/comment/1459814/
I have Waldenstroms (non-Hodgkins lymphoma
Talk about chemo brain… just read my post about possible rectal prolapse and the letters and...
https://connect.mayoclinic.org/comment/1331208/
Being treated for Waldenstroms for about
I also had a long duration cold in Oct. I ended up with a sinus infection...
https://connect.mayoclinic.org/comment/1178696/
27, 2220, 317 (the high M is due to Waldenstroms
Your questions are 2 I have never asked the oncologist about so I don't really know...
https://connect.mayoclinic.org/comment/1146313/
likely to develop, if at all, into Waldenstroms
You may also want to check out the publications and resources in the website of the...
https://connect.mayoclinic.org/comment/722325/
in the website of the International Waldenstroms ... for the treatment of MYD88 wild-type Waldenström
My husband has recently been diagnosed with Waldenstrom macroglobulinemia. He has a hematologist/oncologist who currently has...
https://connect.mayoclinic.org/comment/1042337/
husband has recently been diagnosed with Waldenstrom ... who currently has five patients with Waldenstroms
I sent post to the wrong group a few days ago. Pretty embarrassed sending it the...
https://connect.mayoclinic.org/comment/1331884/
In the middle of Waldenstroms treatments
@pbettend Hello! Interesting to hear more about people taking BTK inhibitors. Calquence (acalabrutinib) is a bit...
https://connect.mayoclinic.org/comment/1486603/
which can be caused by Waldenstroms
The short answers are "diagnosed about two years ago and active surveillance until last month". But...
https://connect.mayoclinic.org/comment/1442191/
and separate igG-LPL and IgM-LPL (Waldenstroms
Me again. Still being treated for Waldenstroms but brain scan showed meningimoma few weeks ago and...
https://connect.mayoclinic.org/comment/1430557/
Still being treated for Waldenstroms
My understanding of Waldenstroms and amyloidosis is that it is a genetic disease that strikes primarily...
https://connect.mayoclinic.org/comment/113909/
My understanding of Waldenstroms and ... The Waldenstrom Foundation may also ... Not to upset anyone, but I was told Waldenstrom
@vicmar Hi Vicki! I'm glad I came across this site. I've been told LPL/Waldenstroms is fairly...
https://connect.mayoclinic.org/comment/1477689/
I've been told LPL/Waldenstroms
@vgdmayo Thanks to @loribmt for tagging me in this conversation. OHSU, going to their website, gave...
https://connect.mayoclinic.org/comment/1042904/
66089c29a76a25.04961389&sort=&term=waldenstroms
Hi @mrperezy50 Welcome to Mayo Clinic Connect. It’s easy to feel alone when you’ve been diagnosed...
https://connect.mayoclinic.org/comment/787456/
members in the forum who also have Waldenstrom ... provided links for International Waldenstrom ... Waldenstrom macroglobulinemia: What ... /connect.mayoclinic.org/discussion/waldenstrom ... /connect.mayoclinic.org/discussion/waldenstroms-and-amyloidosis
@ageeth Hello! Actually I'm Sue (CO64). I've seen comments from Vicki also since we are dealing...
https://connect.mayoclinic.org/comment/1476816/
myeloma (scary) but in my case it's Waldenstroms
When my oncologist was doing tests to determine Waldenstroms, she said I needed a BMB and...
https://connect.mayoclinic.org/comment/1048617/
oncologist was doing tests to determine Waldenstroms
Hi @lynnstefanik89, Welcome to the community! (and sorry you need to be here) I started my...
https://connect.mayoclinic.org/comment/1203242/
determine that I had CLL, SMZL, and WM (Waldenstroms
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