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158 total results

Comments (147)

A funny thing happened on the way to surgery. Actually, it was during the pre-surgery conference...

https://connect.mayoclinic.org/comment/319799/

share this information so others with CMT ... So, if you or anyone you know has CMT

Discussion: Tough diagnosis: Anyone else diagnosed with Recruitment?

Support Group: Hearing Loss

Posted: Dec 20, 2020

https://connect.mayoclinic.org/comment/1121571/

Sensorimotor Axonal Polyneuropathy plus CMT

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Aug 11, 2024

Sorry to hear about your issues. Follow up on getting DNA checked for the markers for...

https://connect.mayoclinic.org/comment/1197159/

getting DNA checked for the markers for CMT

Discussion: Paraplegic with no diagnosis and multiple test

Support Group: Neuropathy

Posted: Dec 25, 2024

Hi, I tried ALA but gave me nausea, so I stopped. Also it was at the...

https://connect.mayoclinic.org/comment/970535/

Doctors thought it is CMT, but it turned

Discussion: Supplements

Support Group: Neuropathy

Posted: Nov 26, 2023

I’ve been doing yoga for about 25 years and had to stop Vinyasa (flow) because of...

https://connect.mayoclinic.org/comment/157244/

BTW.. has anyone been diagnosed with CMT

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: May 10, 2019

Have you considered a genetic test? For example, INVITAE.com offers many genetic tests that can reveal...

https://connect.mayoclinic.org/comment/1138175/

of that test I was diagnosed with CMT2 ... and CMT4B. ... They all inherited the CMT mutations

Discussion: Severe Neuropathy in legs and feet and not a diabetic or alcoholic

Support Group: Neuropathy

Posted: Sep 8, 2024

@dbeshears - When I was first getting tests for PN, my doc sent me to the...

https://connect.mayoclinic.org/comment/913640/

hammer toes but he did blood test for CMT

Discussion: Hammertoe Surgery and Neuropathy

Support Group: Neuropathy

Posted: Aug 15, 2023

Debbie - I went to Johns Hopkins in Dec of 2021, the neuro doc said that...

https://connect.mayoclinic.org/comment/750976/

I've had blood work done for CMT

Discussion: Can Neuropathy be cured?

Support Group: Neuropathy

Posted: Sep 18, 2022

I have at least five generations on my mother’s side who were diagnosed with Hereditary Sensory...

https://connect.mayoclinic.org/comment/950638/

Hereditary Sensory Neuropathy (now CMT ... and CMT4B. ... Oldest daughter was negative for CMT ... Youngest daughter positive for CMT2 ... and CMT4B.

Discussion: DNA testing

Support Group: Neuropathy

Posted: Oct 20, 2023

I am a 73-year-old female with a recent diagnosis of MAC along with a history of...

https://connect.mayoclinic.org/comment/62373/

and a neuromuscular disease called CMT ... which can be one of the symptoms of CMT

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Jul 7, 2017

I had neck muscle spasms so acutely that I wanted to scream. I had numbness in...

https://connect.mayoclinic.org/comment/316476/

I got incredibly lucky to find a CMT ... I visited the CMT if I ever had any

Discussion: What helps spinal stenosis besides surgery?

Support Group: Spine Health

Posted: Aug 11, 2020

In 2020, being on Medicare, only Mayo in MN would accept me so my wife and...

https://connect.mayoclinic.org/comment/1221855/

In 2018, I did have a CMT test done,

Discussion: Drop foot

Support Group: Neuropathy

Posted: Jan 26 6:56am

I asked my prior Neurologist, actually from a recommendation you made several months ago. He basically...

https://connect.mayoclinic.org/comment/913655/

we need to know, that it meant no CMT ... No need for CMT testing, no need for

Discussion: Hammertoe Surgery and Neuropathy

Support Group: Neuropathy

Posted: Aug 15, 2023

I told my Oncologist that I would not go through a stem cell transplant after 80....

https://connect.mayoclinic.org/comment/870265/

Sensorimotor Axonal Polyneuropathy, CMT2 ... and CMT4B. ... CMT comes down on the X chromosome. ... Daughter 2 had the CMT2 mutation. ... Daughter 3 has both the CMT2and CMT4B

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

Thank you for the very thoughtful post. While science will eventually find out the facts about...

https://connect.mayoclinic.org/comment/186517/

I hav CMT and my CBD contains 11% THC

Discussion: Does CBD oil help you with your depression and/or anxiety?

Support Group: Depression & Anxiety

Posted: Jul 3, 2018

I am 68 female, with a hereditary peripheral neuropathy (CMT) which was diagnosed at around 50...

https://connect.mayoclinic.org/comment/1248976/

hereditary peripheral neuropathy (CMT

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: 6 days ago

I am fortunate to live in a city that has a research center, and a clinic....

https://connect.mayoclinic.org/comment/950106/

She really felt like I would have CMT

Discussion: DNA testing

Support Group: Neuropathy

Posted: Oct 19, 2023

I am 87 years old Two years ago I was diagnosed with sciatica. I have had...

https://connect.mayoclinic.org/comment/861994/

neuropathy and have concluded that I have CMT ... have two distinct characteristics of CMT

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: May 18, 2023

My daughters and I underwent EMGS, Needle EMGs and genetic testing (whole Exome Sequencing) at Weill...

https://connect.mayoclinic.org/comment/1102095/

because we have a family history of CMT ... have the gene mutations linked to CMT2 ... and CMT4B. ... oldest daughter tested positive for CMT2 ... , and CMT4B.

Discussion: Question: What testing have you had for neuropathy?

Support Group: Neuropathy

Posted: Jul 9, 2024

First, a Neurologist at Stony Brook ordered a saliva test from INVITAE.com which indicated I had...

https://connect.mayoclinic.org/comment/952067/

project based on our family history of CMT

Discussion: DNA testing

Support Group: Neuropathy

Posted: Oct 22, 2023