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162 total results

Comments (151)

I have a family history of PN going back at least four generations. They said it...

https://connect.mayoclinic.org/comment/317874/

Canada diagnosed my oldest brother with CMT ... looked at 83 genes known to cause CMT ... detection if the SMN1 coding gene and CMT

Discussion: Is it worth trying to resolve peripheral neuropathy?

Support Group: Neuropathy

Posted: Aug 24, 2020

Hello @mhr31, Welcome to Connect. The weather affects my neuropathy also but I just have the...

https://connect.mayoclinic.org/comment/806500/

. -- CMT=Charcot Marie Tooth Disease ... The CMT Research Foundation has a series

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Feb 5, 2023

Same here. I was on Gabapentin 600mg 3X per day for 4 months. Never worked. Currently...

https://connect.mayoclinic.org/comment/310996/

She ordered one for CMT and HSN. ... Hospital about three (3) years ago for CMT ... 80 known gene mutations that cause CMT

Discussion: Neuropathy in feet and limited toe movement?

Support Group: Neuropathy

Posted: Jul 17, 2020

A funny thing happened on the way to surgery. Actually, it was during the pre-surgery conference...

https://connect.mayoclinic.org/comment/319799/

share this information so others with CMT ... So, if you or anyone you know has CMT

Discussion: Tough diagnosis: Anyone else diagnosed with Recruitment?

Support Group: Hearing Loss

Posted: Dec 20, 2020

https://connect.mayoclinic.org/comment/1121571/

Sensorimotor Axonal Polyneuropathy plus CMT

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Aug 11, 2024

Hi, I tried ALA but gave me nausea, so I stopped. Also it was at the...

https://connect.mayoclinic.org/comment/970535/

Doctors thought it is CMT, but it turned

Discussion: Supplements

Support Group: Neuropathy

Posted: Nov 26, 2023

I’ve been doing yoga for about 25 years and had to stop Vinyasa (flow) because of...

https://connect.mayoclinic.org/comment/157244/

BTW.. has anyone been diagnosed with CMT

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: May 10, 2019

I have at least five generations on my mother’s side who were diagnosed with Hereditary Sensory...

https://connect.mayoclinic.org/comment/950638/

Hereditary Sensory Neuropathy (now CMT ... and CMT4B. ... Oldest daughter was negative for CMT ... Youngest daughter positive for CMT2 ... and CMT4B.

Discussion: DNA testing

Support Group: Neuropathy

Posted: Oct 20, 2023

I am a 73-year-old female with a recent diagnosis of MAC along with a history of...

https://connect.mayoclinic.org/comment/62373/

and a neuromuscular disease called CMT ... which can be one of the symptoms of CMT

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Jul 7, 2017

Debbie - I went to Johns Hopkins in Dec of 2021, the neuro doc said that...

https://connect.mayoclinic.org/comment/750976/

I've had blood work done for CMT

Discussion: Can Neuropathy be cured?

Support Group: Neuropathy

Posted: Sep 18, 2022

I had neck muscle spasms so acutely that I wanted to scream. I had numbness in...

https://connect.mayoclinic.org/comment/316476/

I got incredibly lucky to find a CMT ... I visited the CMT if I ever had any

Discussion: What helps spinal stenosis besides surgery?

Support Group: Spine Health

Posted: Aug 11, 2020

Have you considered a genetic test? For example, INVITAE.com offers many genetic tests that can reveal...

https://connect.mayoclinic.org/comment/1138175/

of that test I was diagnosed with CMT2 ... and CMT4B. ... They all inherited the CMT mutations

Discussion: Severe Neuropathy in legs and feet and not a diabetic or alcoholic

Support Group: Neuropathy

Posted: Sep 8, 2024

@dbeshears - When I was first getting tests for PN, my doc sent me to the...

https://connect.mayoclinic.org/comment/913640/

hammer toes but he did blood test for CMT

Discussion: Hammertoe Surgery and Neuropathy

Support Group: Neuropathy

Posted: Aug 15, 2023

I asked my prior Neurologist, actually from a recommendation you made several months ago. He basically...

https://connect.mayoclinic.org/comment/913655/

we need to know, that it meant no CMT ... No need for CMT testing, no need for

Discussion: Hammertoe Surgery and Neuropathy

Support Group: Neuropathy

Posted: Aug 15, 2023

I told my Oncologist that I would not go through a stem cell transplant after 80....

https://connect.mayoclinic.org/comment/870265/

Sensorimotor Axonal Polyneuropathy, CMT2 ... and CMT4B. ... CMT comes down on the X chromosome. ... Daughter 2 had the CMT2 mutation. ... Daughter 3 has both the CMT2and CMT4B

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

Welcome @charlie24, I see you also mentioned your husband is struggling with PMR since 2018 and...

https://connect.mayoclinic.org/comment/1257041/

through the comments by other members on CMT

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Mar 13 12:10pm

Thank you for the very thoughtful post. While science will eventually find out the facts about...

https://connect.mayoclinic.org/comment/186517/

I hav CMT and my CBD contains 11% THC