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274 total results
Comments (260)
In 2008, I started with episodes of feeling like passing out. Then symptoms went away. Month...
I have a dual diagnosis of CMT and CIDP ... Got started on my IVIG treatments 2 ... balance are what gets bad before my treatments
Support Group: Autoimmune Diseases
Posted: Oct 24, 2020
I am new to this site- I was officially dx with Igm-CIDP/MGUS July 2019 by Mayo...
site- I was officially dx with Igm-CIDP ... I was first dx with CMT/CIDP after starting ... recommendation was to continue the IVIG treatments ... August 2020 and I now have my IVIG treatments ... I read that CIDP has association with
Support Group: Autoimmune Diseases
Posted: Oct 23, 2020
Hi I was just diagnosed with CIDP after 7 years of bizarre symptoms and neuropathy. I...
Hi I was just diagnosed with CIDP after ... Can this be related to my CIDP? ... Starting IVIG treatment next week, hoping
That’s a good question because I still don’t completely understand what I’ve been told (or not...
Pre CIDP diagnosis, I had neuropathy ... to a Neurologist, who gave me the CIDP ... I was supposed to get 3 IVIG treatments ... During treatment I started progressively ... I then received Plasma Apheresis treatments
Support Group: Autoimmune Diseases
Posted: Jul 10, 2019
@sherlock, I see that you have met some of the members in the Anyone here dealing...
but have started one specifically on CIDP ... discussion as they have all mentioned CIDP ... invite @angelarisstrom, who had IVIG treatments ... syndrome which is closely related to CIDP
Support Group: Autoimmune Diseases
Posted: Jan 6, 2019
Most neurologists treat small fiber neuropathy with drugs like cymbalta, lyrica, neurontin,etc. Since I have CIDP,...
Since I have CIDP, the first treatment ... insurances don't want to pay for this treatment ... to do the paperwork to justify IVIG treatment
Support Group: Neuropathy
Posted: Nov 29, 2018
Hi Tab, welcome to Connect. I'd like to introduce you to a few other members who...
other members who are talking about CIDP ... discussion – Anyone been diagnosed with CIDP ... care team take to monitor you after treatment
I just saw this upcoming webinar from the Foundation for Peripheral Neuropathy that I think might...
might be helpful for members with CIDP ... FPN Webinar: New Horizons in CIDP Therapy ... : Exploring Current and Future Treatments ... first-hand from a patient who has had CIDP ... She will also discuss CIDP treatment
I am 72 and was diagnosed with CIDP after my third Pfizer COVID-19 vaccine. There is...
I am 72 and was diagnosed with CIDP ... little information on the link between CIDP ... Does anyone know of any other treatments
Support Group: Neuropathy
Posted: Oct 10, 2024
Your history is quite interesting and a lot of puzzle pieces might fit. I would bet...
connections and you should inquire about CIDP ... but treatable so early diagnosis and treatment ... have chronic EBV, lupus, RA, PN and CIDP ... doesn’t put people in wheelchairs but CIDP
Posted: Oct 6, 2024
I think there’s specific guidance with respect to this new treatment and whether it would be...
guidance with respect to this new treatment ... would be helpful as an option for CIDP ... professional guidance on this or from the GBS CIDP
Support Group: Autoimmune Diseases
Posted: Sep 16, 2024
I have been on IVIG infusions for about two months, every two weeks. Because of a...
diagnosed, if possible, to determine a treatment ... Demyelinating Polyradiculoneuritis (CIDP ... me I should have started the IVIG treatment
Support Group: Neuropathy
Posted: May 28, 2024
I know what the testing involves. I am an RN. I have read so much about...
People who get CIDP is over 96% men. ... Epstein Barr virus which is part of CiDP ... reversed they would have had to begun treatment
Support Group: Neuropathy
Posted: May 1, 2024
Someone suggested ice water foot soak, but I didn't enjoy that at all. I have found...
we can't necessarily respond to treatments ... Prednisone to slow down the progression of CIDP
Discussion: Giving Nooro a try
Support Group: Neuropathy
Posted: Apr 9, 2024
My Abbott SCS was implanted in June, 2017. First year was wonderful! I had 80% pain...
tell, since I'm throwing several treatments ... in the mix for my CIDP pain in my feet
Support Group: Chronic Pain
Posted: Mar 28, 2024
Do you still have your foot drop? I had no idea what it was. I only...
I have CIDP. ... eventually led to my diagnosis of CIDP ... No treatment. ... what I am experiencing is related to CIDP
Support Group: Spine Health
Posted: Mar 15, 2024
The flip side of your observation is that there are many of us who suffer with...
into account, and begin any course of treatment ... Yet another health issue I face is CIDP ... many people, an opioid is the only treatment ... they begin the process of finding a treatment
Support Group: Depression & Anxiety
Posted: Feb 24, 2024