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176 total results
Comments (156)
Consider getting an abdominal fat pad biopsy (assuming they didn't take that for the carpal tunnel...
I don't have amyloidosis, but was ... my.clevelandclinic.org/health/diseases/23398-amyloidosis ... article/139/19/2918/476883/How-I-treat-AL-amyloidosis
Support Group: Autoimmune Diseases
Posted: Jun 9, 2025
An insightful message. I was diagnosed of HoCM in February 2022. I started taking medicines like...
into the prognostic significance of AL ... Amyloidosis Cardiac. ... I was diagnosed of AL Amyloidosis in ... Dr) Satish Chandra Facilitator of Amyloidosis
Support Group: Heart & Blood Health
Posted: Mar 3, 2024
Thank you for sharing this, @oldkarl. This may sound naive, but with all your incredible research...
with all your incredible research on Amyloidosis ... 11 'open' studies, with respect to AL ... amyloidosis, and hereditary transthyretin-mediated ... amyloidosis (hATTR): http://www.mayoclinic.org ... Lab" which focuses on light chain amyloidosis
Hi @jenrico, Welcome to Connect. We hosted a webinar last June called "Amyloidosis – What Patients...
hosted a webinar last June called "Amyloidosis ... /connect.mayoclinic.org/discussion/amyloidosis-what-patients-need-to-know ... Kapoor, MD, provided an overview of amyloidosis ... mvpdda and @tmousetis who also have AL ... amyloidosis.
Posted: Mar 13, 2016
My husband was diagnosed with Acquired von Willebrand Syndrome almost a year ago today. Six months...
months later, he was diagnosed with AL ... (light chain lambda) Amyloidosis and ... multimers which is a result of his AL ... Amyloidosis somehow (or something similar ... unbelievable hard for him to be tested for amyloidosis
Posted: Nov 26, 2024
I would advise anyone who is diagnosed or suspects they may have AL Amyloidosis to get...
diagnosed or suspects they may have AL ... Amyloidosis to get to a "Center ... Support Groups(AL-Light Chain- Primary ... The Amyloidosis Foundation is another ... https://amyloidosis.org/al/ Please
Posted: Jan 2 7:49am
luckyme54216 @luckyme54216, I want to welcome you to Connect. I can understand why you have so...
I don't know anything about AL Amyloidosis ... I also read that Amyloidosis is often ... protein disorders of the blood, such as amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis
Posted: Feb 21, 2019
Welcome to Connect @3419harrison, AL Amyloidosis is a disease which occurs when a protein called amyloid...
Welcome to Connect @3419harrison, AL ... Amyloidosis is a disease which occurs ... members who have kidney involvement with amyloidosis
I've just got my diagnosis of AL amyloidosis today after having a bunch of testing and...
I've just got my diagnosis of AL ... amyloidosis today after having a bunch ... radiation in the area that I had my amyloidosis ... said she's never seen Cutaneous Amyloidosis
Posted: Feb 20, 2019
@jstpeachy Thank you in advanced for including my husband in your prayers warriors. I will do...
before he was diagnosed with Cardiac Amyloidosis ... diagnostic tests to find out if he has the AL ... Amyloidosis which if found, then he ... Heart Failure caused by the Cardiac Amyloidosis