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181 total results
Comments (160)
Consider getting an abdominal fat pad biopsy (assuming they didn't take that for the carpal tunnel...
https://connect.mayoclinic.org/comment/1323464/
I don't have amyloidosis, but was ... my.clevelandclinic.org/health/diseases/23398-amyloidosis ... article/139/19/2918/476883/How-I-treat-AL-amyloidosis
Discussion: Amyloidosis - but no type yet. How do I get that?
Support Group: Autoimmune Diseases
Posted: Jun 9, 2025
I would advise anyone who is diagnosed or suspects they may have AL Amyloidosis to get...
https://connect.mayoclinic.org/comment/1472654/
diagnosed or suspects they may have AL ... Amyloidosis to get to a "Center ... Support Groups(AL-Light Chain- Primary ... The Amyloidosis Foundation is another ... https://amyloidosis.org/al/ Please
Discussion: Could this be Amyloidosis?
Support Group: Blood Cancers & Disorders
Posted: Jan 2 7:49am
An insightful message. I was diagnosed of HoCM in February 2022. I started taking medicines like...
https://connect.mayoclinic.org/comment/1026506/
into the prognostic significance of AL ... Amyloidosis Cardiac. ... I was diagnosed of AL Amyloidosis in ... Dr) Satish Chandra Facilitator of Amyloidosis
Discussion: Stiff Heart - diastolic heart failure
Support Group: Heart & Blood Health
Posted: Mar 3, 2024
Hi @jenrico, Welcome to Connect. We hosted a webinar last June called "Amyloidosis – What Patients...
https://connect.mayoclinic.org/comment/88299/
hosted a webinar last June called "Amyloidosis ... /connect.mayoclinic.org/discussion/amyloidosis-what-patients-need-to-know ... Kapoor, MD, provided an overview of amyloidosis ... mvpdda and @tmousetis who also have AL ... amyloidosis.
Discussion: Diagnosed with AL Amyloidosis. What can I expect?
Support Group: Blood Cancers & Disorders
Posted: Mar 13, 2016
Thank you for sharing this, @oldkarl. This may sound naive, but with all your incredible research...
https://connect.mayoclinic.org/comment/164376/
with all your incredible research on Amyloidosis ... 11 'open' studies, with respect to AL ... amyloidosis, and hereditary transthyretin-mediated ... amyloidosis (hATTR): http://www.mayoclinic.org ... Lab" which focuses on light chain amyloidosis
Discussion: Amyloidosis. Diagnosis, treatment, frustration. AL, hATTR, etc.
Support Group: Autoimmune Diseases
Posted: Aug 25, 2017
My husband was diagnosed with Acquired von Willebrand Syndrome almost a year ago today. Six months...
https://connect.mayoclinic.org/comment/1180018/
months later, he was diagnosed with AL ... (light chain lambda) Amyloidosis and ... multimers which is a result of his AL ... Amyloidosis somehow (or something similar ... unbelievable hard for him to be tested for amyloidosis
Discussion: Acquired Von Willebrand syndrome
Support Group: Blood Cancers & Disorders
Posted: Nov 26, 2024
luckyme54216 @luckyme54216, I want to welcome you to Connect. I can understand why you have so...
https://connect.mayoclinic.org/comment/88312/
I don't know anything about AL Amyloidosis ... I also read that Amyloidosis is often ... protein disorders of the blood, such as amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis
Discussion: Diagnosed with AL Amyloidosis. What can I expect?
Support Group: Blood Cancers & Disorders
Posted: Feb 21, 2019
Welcome to Connect @3419harrison, AL Amyloidosis is a disease which occurs when a protein called amyloid...
https://connect.mayoclinic.org/comment/1112342/
Welcome to Connect @3419harrison, AL ... Amyloidosis is a disease which occurs ... members who have kidney involvement with amyloidosis
Discussion: Amyloidosis diagnosed through blood tests: Kidney biopsy necessary?
Support Group: Blood Cancers & Disorders
Posted: Jul 26, 2024