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Comments (2,138)

Love this Greek saying! I was diagnosed with Schleraderma (and MCTD) in 1996. Come to find...

https://connect.mayoclinic.org/comment/934075/

dry skin/eyes/mouth, which also is Sjogrens

Discussion: One Minute of Patience, Ten Years of Peace. Greek Proverb

Support Group: Just Want to Talk

Posted: Sep 21, 2023

Been awhile since I posted on this section since things have been quiet with the PMR...

https://connect.mayoclinic.org/comment/932534/

I think it is back, along with my Sjogren

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 19, 2023

When I was evaluated for fibromyalgia at Mayo in Rochester, I recall the doctor saying that...

https://connect.mayoclinic.org/comment/931816/

I have Sjogren’s, Raynaud’s, GERD, migraines

Discussion: MCTD, Fibromyalgia, and Hot Weather - Oh My!

Support Group: Autoimmune Diseases

Posted: Sep 18, 2023

I have sjogren’s and osteoarthritis.

https://connect.mayoclinic.org/comment/931420/

I have sjogren’s and osteoarthritis.

Discussion: Would like to know people's experience using Fosamax

Support Group: Osteoporosis & Bone Health

Posted: Sep 17, 2023

I had leg weakness too. Sjogrens I thought was the easiest. Can come with some interesting...

https://connect.mayoclinic.org/comment/931287/

Sjogrens I thought was the easiest.

Discussion: Small Fiber Neuropathy

Support Group: Neuropathy

Posted: Sep 17, 2023

I also have SFN with autonomic dysfunction. Have you been tested for rheumatology issues? You may...

https://connect.mayoclinic.org/comment/929254/

the same issue and found I have RA, Sjogren

Discussion: Chronic Fatigue Syndrome and Small Fiber Neuropathy: What helps?

Support Group: Neuropathy

Posted: Sep 13, 2023

The Sjogren's Advocate and Smart Patients are two very good websites for information. Smart Patients is...

https://connect.mayoclinic.org/comment/928099/

The Sjogren's Advocate and Smart ... Patients is a blog that others with Sjogren ... So many doctors think Sjogren's

Discussion: Would like to hear from people with Sjogrens

Support Group: Autoimmune Diseases

Posted: Sep 11, 2023

I was diagnosed with Sjogrens many years ago and was treated with methotrexate. I said was...

https://connect.mayoclinic.org/comment/922588/

I was diagnosed with Sjogrens many years ... attributed to PN are really coming from Sjogrens

Discussion: Would like to hear from people with Sjogrens

Support Group: Autoimmune Diseases

Posted: Sep 1, 2023

I have Sjogerns also. I had horrible joint pain at the beginning of my diagnosis (about...

https://connect.mayoclinic.org/comment/922315/

I have Sjogerns also.

Discussion: Would like to hear from people with Sjogrens

Support Group: Autoimmune Diseases

Posted: Sep 1, 2023

I have been checked for Sjorgens three times and nothing turns up. My eyes nose and...

https://connect.mayoclinic.org/comment/918882/

I have been checked for Sjorgens three

Discussion: Anyone experiencing dry eyes and vision changes?

Support Group: Post-COVID Recovery & COVID-19

Posted: Aug 25, 2023

I will I did see a dermatologist at Mayo. I moved from California where I had...

https://connect.mayoclinic.org/comment/916828/

I have sjogrens Scleroderma, raynaurds

Discussion: Cotton mouth?

Support Group: Autoimmune Diseases

Posted: Aug 21, 2023

Sjogrens & numerous auto-immune. My go-to is ACT lozenges. I have experimented w/everything on the market....

https://connect.mayoclinic.org/comment/916481/

Sjogrens & numerous auto-immune.

Discussion: Cotton mouth?

Support Group: Autoimmune Diseases

Posted: Aug 21, 2023

I am newly diagnosed with AIED and Sjogren's Syndrome. I finally got a diagnosis for the...

https://connect.mayoclinic.org/comment/915510/

I am newly diagnosed with AIED and Sjogren ... I finally got a diagnosis for the Sjogrens ... I am to start Methotrexate for the Sjogrens ... Not sure if Sjogren's, AIED, the

Discussion: Anyone out there with Autoimmune inner ear disease (AIED)?

Support Group: Autoimmune Diseases

Posted: Aug 19, 2023

Thank you, jmb73 for the dry eye advice. My optomotrist suggested I use the moisturizing drops...

https://connect.mayoclinic.org/comment/908544/

at Low Dose Naltrexone research for Sjogren

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Aug 6, 2023

Hi @paktoledo, I'm sorry to hear you are losing your rheumatology nurse practitioner. Rochester Mayo Clinic...

https://connect.mayoclinic.org/comment/907949/

specializes in Lupus, Scleroderma and Sjogren