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Comments (749)

I had New valve. Did’nt need it. I was then told , I had Cardiomothy. I...

https://connect.mayoclinic.org/comment/936022/

I got new Dr. and was told I have Amylodosis ... Many doctors don’t screen for Amylodosis

Discussion: Aortic Valve Replacement with TAVR: What is it like?

Support Group: Heart & Blood Health

Posted: Sep 25, 2023

I was diagnosed with both Amylodosis and smoldering myeloma in June 2019 any hints on diet...

https://connect.mayoclinic.org/comment/81211/

I was diagnosed with both Amylodosis

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2020

I was given a heart valve to slow blood flow. Didn’t help! Then told I had...

https://connect.mayoclinic.org/comment/978368/

found thru tests, that I really have “Amylodosis ... Amylodosis is not easily recognized

Discussion: Cardiologist says not Hcm

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 11, 2023

I appreciate your reply and have had a chance to read much of the posts here....

https://connect.mayoclinic.org/comment/59712/

autoimmune group a person mentioned amyloidisis

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Jan 11, 2017

I have been diagnosed with Lychen Amlyoidosis. No one here knows anything about it. So this...

https://connect.mayoclinic.org/comment/381171/

I have been diagnosed with Lychen Amlyoidosis

Event: Video Q&A about Amyloidosis – What Patients Need to Know

Posted: Jun 4, 2015

Why you dont give egcg curcumine and reveratrol in your patients? If you look up in...

https://connect.mayoclinic.org/comment/381140/

diagnostiquee as younger patient of Belgium d amylloidosis'localised

Event: Video Q&A about Amyloidosis – What Patients Need to Know

Posted: Jun 2, 2015

They have light therapy and chemical peels. I myself prefer the chemical peels because when the...

https://connect.mayoclinic.org/comment/880961/

thinking my face resembled macular amylidosis

Discussion: Macular amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2023

Hello, I was just diagnosed with MGUS. I am 42 yr old white woman. Weight loss...

https://connect.mayoclinic.org/comment/937404/

under 425) Docs thought it was Amyloidois

Discussion: MGUS and Chemotherapy

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2023

Thanks that’s very interesting because I have sick node syndrome witch can be caused by Amylodosis...

https://connect.mayoclinic.org/comment/978398/

node syndrome witch can be caused by Amylodosis

Discussion: Cardiologist says not Hcm

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 11, 2023